Privacy provision in eHealth using external services

Privacy provision is a key issue for successful secure access to patients’ health information. Current approaches do not always provide patients with the ability to define suitable rules to access to their information in a secure way. This paper presents an approach to give patients control over their information by means of external services. In this way, health information management and access control are kept independent and more secure.Postprint (published version

La educación ambiental en la escuela de primaria

El presente, Trabajo de Fin de Grado se centra, en constituir una propuesta educativa entorno a la educación medioambiental, en un colegio cuya etapa será la de primaria. En primer lugar, voy a desarrollar una metodología, que posteriormente será usada en el último apartado del presente trabajo, junto a una serie de sesiones que se llevarán a cabo en el aula de primaria. Después de esta base metodológica se establecerá un marco conceptual y teórico, basándome tanto en la legislación de educación primaria como en la de educación ambiental. En el último apartado se plantea una propuesta de educación, donde se establecerán unos objetivos, contenidos, competencias y criterios de evaluación a través de una serie de actividades y juegos aplicándose a la etapa de primaria. Sin olvidar que se establecerá una relación entre las máximas áreas posibles, creando una propuesta educativa interdisciplinar medioambiental. Con todo ello, se pretendería una mayor concienciación del alumnado, profesorado y también de madres y padres de dichos alumnos. Se quiere transmitir con esta propuesta la importancia de cuidar el medio ambiente y que empiecen los alumnos a tener conciencia de los problemas de conservación del planeta tierra.Grado en Educación Primari

Tests d’autoavaluació de l’assignatura Xarxes de Computadors

Mòdul desenvolupat sobre Moodle que permet definir tests per a que els alumnes s’autoavaluïn Objectius: Proporcionar als alumnes més problemes resolts. Noves activitats docents per reduir les sessions presencials. Fomentar l’aprenentatge autònom. Millorar la percepció dels alumnes envers la docència rebuda. Com assolir-los? Incloent tot tipus de problemes (resposta curta, resolució numèrica, etc.) Preguntes reals d’exàmens i controls fets a altres cursos. Afegint una justificació per a què l’alumne sàpiga perquè ha fallat.Peer Reviewe

The potential of drama techniques in the bilingual classroom: A new perspective on Social Theatre with a focus on Infant Education

Theatre has been used in education since middle ages and this has been reflected in the successive educational laws. However, global society has brought about two requirements to our schools: learning a second language and the development of cultural and social awareness. Social Theatre seems to give an answer to both needs, being not just a tool for real communication in the bilingual classroom but a way to achieve the required holistic and comprehensive child development, considering always a ludic approach. That is why this study would like to demonstrate the potential of socio-bilingual drama techniques in the infant education classroom, focusing on the adaptation of Listening Theatre (Mato, 2006), Poor Theatre (Grotowski, 1970) and Theatre of the Oppressed (Boal, 1992) techniques in the CLIL context

FAIR aspects of a genomic information protection and management system

To handle genomic information while supporting FAIR principles, we present GIPAMS, a modular architecture. GIPAMS provides security and privacy to manage genomic information by means of several independent services and modules that interact among them in an orchestrated way. The paper analyzes how some security and privacy aspects of the FAIRification process are covered by the GIPAMS platform.This work is partly supported by the Spanish Government (GenClinLab-Sec, PID2020-114394RB-C31) and by the Generalitat de Catalunya (2017 SGR 1749).Peer ReviewedPostprint (published version

FAIR aspects of a health information protection and management system

Background: Privacy management is a key issue when dealing with storage and distribution of health information. However, FAIR (Findability, Accessibility, Interoperability, and Reusability) principles when sharing information are in increasing demand in several organizations, especially for information generated in public-funded research projects. Objectives: The two main objectives of the presented work are the definition of a secure and interoperable modular architecture to manage different kinds of medical content (xIPAMS [x, for Any kind of content, Information Protection And Management System] and HIPAMS [Health Information Protection And Management System]), and the application of FAIR principles to that architecture in such a way that privacy and security are compatible with FAIR. Methods: We propose the concept of xIPAMS as a modular architecture, following standards for interoperability, which defines mechanisms for privacy, protection, storage, search, and access to health-related information. Results: xIPAMS provides FAIR principles and preserves patient's privacy. For each module, we identify how FAIR principles apply. Conclusions: We have analyzed how xIPAMS, and in particular HIPAMS (Health content), support the FAIR principles focusing on security and privacy. We have identified the FAIR principles supported by the different xIPAMS modules, concluding that the four principles are supported. Our analysis has also considered a possible implementation based on the concept of DACS (Document Access and Communication System), a system storing medical documents in a private and secure way. In addition, we have analyzed security aspects of the FAIRification process and how they are provided by xIPAMS modules.The work presented in this article has been partially supported by the Spanish Government under the project: GenClinLab-Sec (Mechanisms for secure and efficient management of genomic information tailored to clinical laboratories: Security Aspects, PID2020-114394RB-C31) funded by MCIN/AEI/10.13039/501100011033 and by the Generalitat de Catalunya (2017 SGR 1749).Peer ReviewedPostprint (published version

An architecture for providing personalized digital health

Patients need mechanisms to integrate health information coming from different sources, including personal devices. This would lead to Personalized Digital Health (PDH). HIPAMS (Health Information Protection And Management System) is a modular and interoperable secure architecture that helps in achieving this objective and building a Framework for PDH. The paper presents HIPAMS and how it supports PDH.The work presented in this paper has been partially supported by the Spanish Government under the project GenClinLab-Sec (Mechanisms for secure and efficient management of genomic information tailored to clinical laboratories: Security Aspects, PID2020-114394RB-C31) funded by MCIN/AEI/10.13039/501100011033 and by the Generalitat de Catalunya (2017 SGR 1749).Peer ReviewedObjectius de Desenvolupament Sostenible::3 - Salut i BenestarPostprint (published version

Provenance and dynamic consents for the management of medical data

Medical data describe patient health information, both in healthy and disease conditions. In any case, health institutions need to ask for patient consent in order to provide their services. Patients usually give consent on a one-time basis, for a specific usage. Afterwards, if medical data usage is research, original patient consent does not apply and further consents should be required. On the other hand, provenance of medical data to verify the origin of health procedures is desirable, as digital health is increasing. We propose HIPAMS modular architecture to provide both provenance and dynamic consents for medical data as described in this paper.This work is partly supported by the Spanish Government (GenClinLab-Sec, PID2020-114394RB-C31) and by the Generalitat de Catalunya (2017 SGR 1749)Peer ReviewedPostprint (published version

Implementation of privacy and security for a genomic information system based on standards

Genomic information is a very sensitive type of digital information as it not only applies to a person, but also to close relatives. Therefore, privacy provision is key to protecting genomic information from unauthorized access. It is worth noting that most of the current genomic information formats do not provide specific mechanisms by which to secure the stored information. In order to solve, among other things, the privacy provision issue, we proposed the GIPAMS (Genomic Information Protection And Management System) modular architecture, which is based on the use of standards such as ISO/IEC 23092 and a few GA4GH (Global Alliance for Genomics and Health) initiatives. Some of the GIPAMS modules have already been implemented, mainly based on ISO/IEC 23092 features, and we are conducting work on the complete version of the architecture, and other standards are also considered. One of the objectives of GIPAMS is to enable the management of different formats of genomic information in a unique and interoperable way, providing privacy and security for formats that do not currently support them.This research has been partially supported by the Spanish Government under the project GenClinLab-Sec (Mechanisms for secure and efficient management of genomic information tailored to clinical laboratories: Security Aspects, PID2020-114394RB-C31) funded by MCIN/AEI/10.13039/ 501100011033 and by the Generalitat de Catalunya (2017 SGR 1749).Peer ReviewedPostprint (published version

Uso de surfactante pulmonar como factor protector de enterocolitis necrotizante en neonatos prematuros del Hospital Belén, Trujillo, 2008-2018

Objetivo: Determinar si el uso del surfactante pulmonar es un factor protector para la enterocolitis necrotizante en neonatos prematuros en el Hospital Belén de Trujillo 2008-2018. Métodos y procedimientos: Estudio observacional, analítico, retrospectivo, de casos y controles. La población estuvo conformada por los neonatos prematuros de la Unidad de Cuidados Intensivos Neonatal del Hospital Belén de Trujillo durante el período 2008-2018. Se realizó un aleatorizado con 128 unidades de análisis divididas en 55 casos y 73 controles. Resultados: Del análisis estadístico se determinó que las variables sociodemográficas de peso, edad gestacional, APGAR 5’, uso de glucocorticoides, alimentación enteral no presentaron resultados estadísticamente significativos. Se encontró que aquellos pacientes que usaron surfactante pulmonar intratraqueal tuvieron 0.35 veces protección de tener ENC en comparación con los que no lo usaron (IC95% 0.44-0.97, p=0.036) Conclusiones: Se encontró que el uso de surfactante pulmonar es un factor protector para la enterocolitis necrotizante. Aquellos neonatos prematuros que recibieron surfactante intratraqueal presentaron protección de un 35% para no desarrollar enterocolitis necrotizante frente a los que no utilizaron surfactante intratraqueal.Objective: To determine if the use of pulmonary surfactant is a protective factor for necrotizing enterocolitis in preterm infants in the Hospital Belen de Trujillo 2008-2018. Materials and Methods: Observational, analytical, transversal, retrospective study. The population consisted of premature neonates of the Neonatal Intensive Care Unit of the Belen de Trujillo Hospital during the 2013-2018 period. A randomization was performed with 146 analysis units divided into 73 cases and 73 controls. Results: From the statistical analysis it was determined that the sociodemographic variables of weight, gestational age, APGAR 5 ', use of glucocorticoids, enteral feeding did not show statistically significant results. It was found that those patients who used intratracheal pulmonary surfactant had 0.35 times protection from having ENC compared to those who do not use (95% CI 0.44-0.97, p = 0.036). Conclusions: It was found that the use of pulmonary surfactant is a protective factor for necrotizing enterocolitis. Those premature infants who received intratracheal surfactant had 35% protection to avoid developing necrotizing enterocolitis against those who did not use intratracheal surfactant.Tesi