Role of Spirituality and Religion in Family Quality of Life for Families of Children with Disabilities

Results from a qualitative inquiry investigating conceptualization of family quality of life are provided. Focus groups and individual interviews were comprised of 187 individuals that included family members (e.g., parents, siblings) of children with a disability, eight individuals with a disability, family members of children without a disability, service providers, and administrators. Data were collected in urban and rural settings to elicit participants’ understanding of domains of family quality of life. Themes of spirituality and religion in the context of family quality of life for families of children with disabilities are explored in this article. Families described the importance of spirituality in their lives and their participation in religious communities. Discussion and implications include strategies to enhance family spiritual well being, to provide spiritually sensitive supports, and to promote inclusive religious communities for children with mental retardation and developmental disabilities (MR/DD) and their families

Measuring the quality of family-professional partnerships in special education services

This is the published version, also found here: http://cec.metapress.com/content/jr8655lg61k1n440/?p=edbc223bb2fb4291b6b55663014711a2&pi=3One difficulty in monitoring the quality of family-professional partnerships has been the lack of a psychometrically acceptable and sufficiently general instrument with which to assess them. The current work describes the development of the Family-Professional Partnership Scale, which assesses parents' perceptions of the importance of and their satisfaction with family-professional partnerships. Indicators were constructed from qualitative research on families with children with and without disabilities, and the scale was refined across two field tests that included families with children with a wide range of ages and disability types and severity. Both the 18-item overall scale and the two 9-item subscales demonstrated excellent psychometric properties. The possible uses of this scale in future research and service delivery are discus

Perspectives of Five Stakeholder Groups: Challenging Behavior of Individuals with Mental Retardatoin and/or Autism

Data from five focus groups, each representing a different stakeholder constituency interested in the challenging behavior of individuals with mental retardation and/or autism, were reported. Emergent themes across administrators and policy makers, families, friends, individuals with disabilities, and teachers and practitioners included current barriers faced; practical, positive solutions found; and preferences for helpful informational products concerning challenging behavior. Key recommendations focus on the implications of this information for research, training, and dissemination activities

Altered skeletal muscle insulin signaling and mitochondrial complex II-III linked activity in adult offspring of obese mice

We recently reported insulin resistance in adult offspring of obese C57BL/6J mice. We have now evaluated whether parameters of skeletal muscle structure and function may play a role in insulin resistance in this model of developmental programming. Obesity was induced in female mice by feeding a highly palatable sugar and fat-rich diet for 6 wk prior to pregnancy, and during pregnancy and lactation. Offspring of obese dams were weaned onto standard laboratory chow. At 3 mo of age, skeletal muscle insulin signaling protein expression, mitochondrial electron transport chain activity (ETC), muscle fiber type, fiber density, and fiber cross-sectional area were compared with that of offspring of control dams weaned onto the chow diet. Female offspring of obese dams demonstrated decreased skeletal muscle expression of p110 beta, the catalytic subunit of PI3K (P <0.01), as well as reduced Akt phosphorylation at Serine residue 473 compared with control offspring. Male offspring of obese dams demonstrated increased skeletal muscle Akt2 and PKC zeta expression (P <0.01; P <0.001, respectively). A decrease in mitochondrial-linked complex II-III was observed in male offspring of obese dams (P <0.01), which was unrelated to CoQ deficiency. This was not observed in females. There were no differences in muscle fiber density between offspring of obese dams and control offspring in either sex. Sex-related alterations in key insulin-signaling proteins and in mitochondrial ETC may contribute to a state of insulin resistance in offspring of obese mice