3 research outputs found

    Indigenous Cultural Identity of Research Authors Standard: research and reconciliation with Indigenous Peoples in rural health journals

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    The Indigenous Cultural Identity of Research Authors Standard (ICIRAS) is based on a gap in research publishing practice where Indigenous peoples' identity is not systematically and rigorously recognised in rural health research publications. There are widespread reforms, in different research areas, to counter the reputation of scientific research as a vehicle of racism and discrimination. Reflecting on these broader movements, the editorial teams of three rural health journals - Rural and Remote Health, the Australian Journal of Rural Health, and the Canadian Journal of Rural Medicine - adopted a policy of 'Nothing about Indigenous Peoples, without Indigenous Peoples'. This meant changing practices so that Indigenous Peoples' identity could be embedded in authorship credentials - such as in the byline. An environmental scan of literature about the inclusion of Indigenous Peoples in research revealed many ways in which editorial boards of journals could improve their process to signal to readers that Indigenous voices are included in rural health research publication governance. Improving the health and wellbeing of Indigenous peoples worldwide requires high-quality research evidence. This quality benchmark needs to explicitly signal the inclusion of Indigenous authors. The ICIRAS is a call to action for research journals and institutions to rigorously improve research governance and leadership to amplify the cultural identity of Indigenous peoples in rural health research

    Schools’ air quality monitoring for health and education: methods and protocols of the SAMHE initiative and project

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    Background: Children spend significant amounts of time at school, making the school environment a potentially important contributor to air quality exposure.  Aim: The SAMHE initiative has a dual aim: 1) to develop and test a bespoke citizen science framework for collecting environment and indoor air quality data in classrooms, alongside contextual data capable of enriching analysis, at an unprecedented scale; and, 2) to simultaneously use these methods to raise awareness among communities regarding their exposure to air pollution in the school environment.  Methodology: To achieve this dual aim, the SAMHE project was initiated to deploy more than 2 000 low-cost indoor air quality monitors in school classrooms. A Web App has been co-designed with schools to support collecting a large comprehensive dataset (including school buildings characteristics, operation, and behavioural patterns) and to enable students and teachers to interact with the data gathered in their school. Results and outlook: We present the design of the interface and visuals that have been co-designed with 20+ schools and tested with 120+ schools. Within one week of the SAMHE launch week, 537 schools had registered to join the project, and at the time of writing (just seven weeks later) this number had grown to around 800 schools. This highlights the potential for this novel initiative to provide a step-change in the way that indoor air quality datasets are gathered at a national and, potentially, international level while simultaneously enabling schools to better manage their indoor environment and empowering students and teachers to reduce their environmental health risks.</p

    STIMULATE-ICP-Delphi (Symptoms, Trajectory, Inequalities and Management: Understanding Long-COVID to Address and Transform Existing Integrated Care Pathways Delphi): Study protocol

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    Introduction As mortality rates from COVID-19 disease fall, the high prevalence of long-term sequelae (Long COVID) is becoming increasingly widespread, challenging healthcare systems globally. Traditional pathways of care for Long Term Conditions (LTCs) have tended to be managed by disease-specific specialties, an approach that has been ineffective in delivering care for patients with multi-morbidity. The multi-system nature of Long COVID and its impact on physical and psychological health demands a more effective model of holistic, integrated care. The evolution of integrated care systems (ICSs) in the UK presents an important opportunity to explore areas of mutual benefit to LTC, multi-morbidity and Long COVID care. There may be benefits in comparing and contrasting ICPs for Long COVID with ICPs for other LTCs. Methods and analysis This study aims to evaluate health services requirements for ICPs for Long COVID and their applicability to other LTCs including multi-morbidity and the overlap with medically not yet explained symptoms (MNYES). The study will follow a Delphi design and involve an expert panel of stakeholders including people with lived experience, as well as clinicians with expertise in Long COVID and other LTCs. Study processes will include expert panel and moderator panel meetings, surveys, and interviews. The Delphi process is part of the overall STIMULATE-ICP programme, aimed at improving integrated care for people with Long COVID. Ethics and dissemination Ethical approval for this Delphi study has been obtained (Research Governance Board of the University of York) as have approvals for the other STIMULATE-ICP studies. Study outcomes are likely to inform policy for ICPs across LTCs. Results will be disseminated through scientific publication, conference presentation and communications with patients and stakeholders involved in care of other LTCs and Long COVID
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