11 research outputs found

    Preparing for and Coping with Breast Cancer-Related Lymphedema

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    Latinas and Breast Cancer in the Midwest: Factors Influencing Survivorship

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    Latinos are the largest ethnic minority group in the U.S. and the Midwest is experiencing the fastest growth in residents of Hispanic descent. Rural health care delivery systems in these areas must therefore respond to changing demographics and provide culturally appropriate service delivery. The incidence rate of breast cancer among Latinas is lower than that among non-Hispanic women; however an increasing number of Latinas are being diagnosed with breast cancer. Despite higher mortality rates from cancer than non-Hispanic women, more Latinas are being treated for breast cancer and are now facing their own unique survivorship experiences This paper addresses factors that may influence Latinas\u27 breast cancer survivorship in the Midwest (e.g., risk factors such as biology, lifestyle, culturally mediated health beliefs; access to necessary cancer care in rural areas) and survey research on survivorship experiences in cultural contexts. Essential areas for future research are identified

    Leadership doesn\u27t have to be lonely: Creating cross-institutional community

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    Presenters and participants will build communities of support through engaging in interactive co-writing surrounding shared challenges, opportunities, and solutions for academic administrators as servant leaders

    Understanding breast-cancer patientsā€™ perceptions: Health information-seeking behaviour and passive information receipt

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    It is critical to understand patientsā€™ information use from the patient perspective, especially when patients are from different cultures and levels of health literacy. A cross-sectional survey supplemented with interviews of breast cancer survivors including both Latina and non- Latina women was undertaken. Subjects were classified as active information seekers, passive information receivers, and/or users of information. Subjects were further classified by stage of information use, progressing from unawareness or awareness of available information to use or non-use of information to make health decisions. Information sources used and use patterns were examined. Most were active information seekers; many were also passive receivers. Healthcare providers remain the primary information source. Interpersonal communication was far more often cited than either the internet or traditional print and broadcast media. Important cross-cultural differences were found. This study provides insight into how patients use actively sought and passively received information. Despite dramatic growth of the internet and other new media, healthcare providers currently remain keys to health information. Findings may help develop more successful communication strategies when viewed in light of the National Cancer Instituteā€™s ā€˜Making Health Communication Programs Workā€™ and the four stages it proposes. It is hoped that future work will focus on evidence-based methods to improve health communication, especially for vulnerable populations. A major lesson learned is the importance of understanding where patients decided to seek information outside the traditional provideroriented approach taken in many health education programmes

    Understanding Breast-Cancer Patients\u27 Perceptions: Health Information-Seeking Behaviour and Passive Information Receipt

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    It is critical to understand patients\u27 information use from the patient perspective, especially when patients are from different cultures and levels of health literacy. A cross-sectional survey supplemented with interviews of breast cancer survivors including both Latina and non-Latina women was undertaken. Subjects were classified as active information seekers, passive information receivers, and/or users of information. Subjects were further classified by stage of information use, progressing from unawareness or awareness of available information to use or non-use of information to make health decisions. Information sources used and use patterns were examined. Most were active information seekers; many were also passive receivers. Healthcare providers remain the primary information source. Interpersonal communication was far more often cited than either the internet or traditional print and broadcast media. Important cross-cultural differences were found. This study provides insight into how patients use actively sought and passively received information. Despite dramatic growth of the internet and other new media, healthcare providers currently remain keys to health information. Findings may help develop more successful communication strategies when viewed in light of the National Cancer Institute\u27s \u27Making Health Communication Programs Work\u27 and the four stages it proposes. It is hoped that future work will focus on evidence-based methods to improve health communication, especially for vulnerable populations. A major lesson learned is the importance of understanding where patients decided to seek information outside the traditional provider-oriented approach taken in many health education programme
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