The Promise and Pitfalls of Facebook Advertising: a Genetic Counselor’s Perspective

Facebook advertising is a powerful tool for increasing the outreach and recruitment of research participants. We describe our experience as genetic counselors within the context of an internet-based research study, recruiting subjects for a Parkinson disease (PD) biomarker study

Community-Academic Partnerships to Understand Barriers to and Promoters of Participation of Underrepresented Populations in Parkinson's Disease Research

<p>Groups underrepresented in PD research are at risk for worsened clinical outcomes. Factors influencing the enrollment of minoritized populations into research studies are not well understood. Objectives: To understand key barriers to and facilitators of clinical trial enrollment for underrepresented populations. To describe sample community outreach events to engage target audience. To outline actionable steps to improve diversity, equity, and inclusivity (DEI) in PD research.</p&gt

User Experience (UX): Successful Remote Engagement Strategy for Individuals at Risk for Parkinson's Disease in PPMI

Digital instruments continue to gain footing in clinical trials as enhancements to in-clinic engagement. However, few studies focus on how remote engagement can be associated with high rates of attrition due to various aspects of the UX. The study design for the Parkinson’s Progression Markers Initiative (PPMI) Smell Test (ST) Direct screening structure, initiated in mid-2022, incorporates practices within the web-based portal that help to sustain progressive UX and facilitate study compliance. Olfactory dysfunction is a key risk factor for the typical symptoms of PD. Strategic use of technology enables the study to guide participants through a multi-step digital process