55 research outputs found
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The functional rating scale taskforce for pre-Huntington's disease: an empirically-driven initiative for new scale development
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Assessing anger and irritability prior to clinical diagnosis of Huntington's disease: the functional rating scale taskforce for pre-Huntington's disease
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Assessment of cognitive symptoms in prodromal and early Huntington disease
The Functional Rating Scale Taskforce for pre-Huntington Disease (FuRST-pHD) is a multinational, multidisciplinary initiative with the goal of developing a data-driven, comprehensive, psychometrically sound, rating scale for assessing symptoms and functional ability in prodromal and early Huntington disease (HD) gene expansion carriers. The process involves input from numerous sources to identify relevant symptom domains, including HD individuals, caregivers, and experts from a variety of fields, as well as knowledge gained from the analysis of data from ongoing large-scale studies in HD using existing clinical scales. This is an iterative process in which an ongoing series of field tests in prodromal (prHD) and early HD individuals provides the team with data on which to make decisions regarding which questions should undergo further development or testing and which should be excluded. We report here the development and assessment of the first iteration of interview questions aimed to assess cognitive symptoms in prHD and early HD individuals
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Assessment of motor symptoms and functional impact in prodromal and early Huntington disease.
The Functional Rating Scale Taskforce for pre-Huntington Disease (FuRST-pHD) is a multinational, multidisciplinary initiative with the goal of developing a data-driven, comprehensive, psychometrically sound, rating scale for assessing symptoms and functional ability in prodromal and early Huntington disease (HD) gene expansion carriers. The process involves input from numerous sources to identify relevant symptom domains, including HD individuals, caregivers, and experts from a variety of fields, as well as knowledge gained from the analysis of data from ongoing large-scale studies in HD using existing clinical scales. This is an iterative process in which an ongoing series of field tests in prodromal (prHD) and early HD individuals provides the team with data on which to make decisions regarding which questions should undergo further development or testing and which should be excluded. We report here the development and assessment of the first iteration of interview questions aimed to assess functional impact of motor manifestations in prHD and early HD individuals
Recommended from our members
Assessing Behavioural Manifestations Prior to Clinical Diagnosis of Huntington Disease: "Anger and Irritability" and "Obsessions and Compulsions"
The Functional Rating Scale Taskforce for pre-Huntington Disease (FuRST-pHD) is a multinational, multidisciplinary initiative with the goal of developing a data-driven, comprehensive, psychometrically sound, rating scale for assessing symptoms and functional ability in prodromal and early Huntington disease (HD) gene expansion carriers. The process involves input from numerous sources to identify relevant symptom domains, including HD individuals, caregivers, and experts from a variety of fields, as well as knowledge gained from the analysis of data from ongoing large-scale studies in HD using existing clinical scales. This is an iterative process in which an ongoing series of field tests in prodromal (prHD) and early HD individuals provides the team with data on which to make decisions regarding which questions should undergo further development or testing and which should be excluded. We report here the development and assessment of the first iteration of interview questions aimed to assess "Anger and Irritability" and "Obsessions and Compulsions" in prHD individuals
Recommended from our members
Assessment of Depression, Anxiety and Apathy in Prodromal and Early Huntington Disease
The Functional Rating Scale Taskforce for pre-Huntington Disease (FuRST-pHD) is a
multinational, multidisciplinary initiative with the goal of developing a
data-driven, comprehensive, psychometrically sound, rating scale for assessing
symptoms and functional ability in prodromal and early Huntington disease (HD) gene
expansion carriers. The process involves input from numerous sources to identify
relevant symptom domains, including HD individuals, caregivers, and experts from a
variety of fields, as well as knowledge gained from the analysis of data from
ongoing large-scale studies in HD using existing clinical scales. This is an
iterative process in which an ongoing series of field tests in prodromal (prHD) and
early HD individuals provides the team with data on which to make decisions
regarding which questions should undergo further development or testing and which
should be excluded. We report here the development and assessment of the first
iteration of interview questions aimed to assess Depression, Anxiety and Apathy in
prHD and early HD individuals
Hyperformaldehydism: A unifying hypothesis for the major biochemical theories of schizophrenia
Robotic-assisted locomotor treadmill therapy does not change gait pattern in children with cerebral palsy
Plasmid transformation of naturally competent Acinetobacter calcoaceticus in non-sterile soil extract and groundwater
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