Whose Personal Control? Creating Private, Personally Controlled Health Records for Pediatric and Adolescent Patients

Personally controlled health records (PCHRs) enable patients to store, manage, and share their own health data, and promise unprecedented consumer access to medical information. To deploy a PCHR in the pediatric population requires crafting of access and security policies, tailored to a record that is not only under patient control, but one that may also be accessed by parents, guardians, and third-party entities. Such hybrid control of health information requires careful consideration of both the PCHR vendor's access policies, as well as institutional policies regulating data feeds to the PCHR, to ensure that the privacy and confidentiality of each user is preserved. Such policies must ensure compliance with legal mandates to prevent unintended disclosures and must preserve the complex interactions of the patient-provider relationship. Informed by our own operational involvement in the implementation of the Indivo PCHR, we provide a framework for understanding and addressing the challenges posed by child, adolescent, and family access to PCHRs

Introduction: Migrant worlds, material cultures

While much scholarly work exists on both migration and material culture, there is remarkably little literature explicitly concerned with how these areas of study converge. In this introduction we suggest a number of points of departure for the exploration of the relationships between 'migrant worlds' and 'material cultures' and we link these points with the contributions to this Special Issue. We hope thereby to shift the theoretical framing of migrancy into some areas of concern that have been of long-standing importance within anthropology (the gift, temporality, translation), but have not necessarily been those raised most frequently in relation to migration studies