33 research outputs found

    Quality of life and disability assessment in neuropathy: a multicenter study

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    BACKGROUND: pain is a common symptom of peripheral neuropathies that may severely affect patients' Quality of Life. Pain questionnaires, based on verbal descriptors, are a useful way to investigate it. METHODS: we performed a multicentre study through validated measures to characterize pain in a sample of consecutive patients affected by immune-mediated neuropathies. RESULTS: ninety-three patients were enrolled in 16 Italian centres. Based on the numeric rating scale, almost half of the patients complained of moderate pain and one-third of the patients severe pain. Overall, up to 50% of our patients with immune-mediated neuropathies complained of neuropathic pain. The most common neuropathic symptoms were paraesthesia/dysesthesia and superficial spontaneous pain. Surprisingly, also patients with neuropathies commonly thought to be painless (such as multifocal motor neuropathy) reported discomfort and painful symptoms. CONCLUSIONS: pain questionnaires should be considered in the clinical evaluation of immune-mediated neuropathies, also when evaluating therapy efficacy, because they may provide clinicians with useful information on painful symptoms and patients' quality of life

    Digital media and information rights

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    This entry advances theoretical reflections in the area of digital media access and citizen engagement and participation through digital communications. Specifically, it seeks to provide a framework to investigate the relationship between social development, civic and political participation, and access to digital media in countries where rights such as freedom of speech and information are not always upheld by governments. The authors observe that improving access to digital media in a country by providing good quality, low-cost Internet service and information technology literacy does not unquestioningly facilitate a country's development when those media are subjected to government control. The issue this raises, in contrast, is that improved digital media access may result in increased control and restriction of freedoms in cases where telecommunications and Internet infrastructures are under government control
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