17 research outputs found

    Combatting insecurity in the everyday: the global anti-street harassment movement as everyday security practitioners

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    Street harassment renders countless women, girls and others insecure in their everyday lives. Over the past two decades a global grassroots movement developed to combat street harassment and its attendant insecurities. But neither phenomenon has excited the attention of Security Studies, critical or otherwise. In this paper, we focus on the global anti-street harassment movement, conceptualising its activists as ‘everyday security practitioners’ who, like privileged security practitioners in the state or the academy, theorise street harassment and devise and implement strategies to tackle it. In so doing we argue that Security Studies should pay more attention to the everyday, to insecurities like street harassment, and to such ‘everyday security practitioners’. To illustrate this argument we first define street harassment. We then consider Security Studies and its exclusion of the everyday. To argue for its inclusion in Security Studies, we explicate the diverse insecurities produced by street harassment, conceptualise 'everyday security practitioners’, and provide some illustrations of strategies deployed by the global anti-street harassment movement both to bring street harassment to wider public attention as a pervasive everyday insecurity and to combat it. We conclude with two suggestions for Security Studies

    The current understanding of precision medicine and personalised medicine in selected research disciplines:study protocol of a systematic concept analysis

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    INTRODUCTION: The terms ‘precision medicine’ and ‘personalised medicine’ have become key terms in health-related research and in science-related public communication. However, the application of these two concepts and their interpretation in various disciplines are heterogeneous, which also affects research translation and public awareness. This leads to confusion regarding the use and distinction of the two concepts. Our aim is to provide a snapshot of the current understanding of these concepts. METHODS AND ANALYSIS: Our study will use Rodgers’ evolutionary concept analysis to systematically examine the current understanding of the concepts ‘precision medicine’ and ‘personalised medicine’ in clinical medicine, biomedicine (incorporating genomics and bioinformatics), health services research, physics, chemistry, engineering, machine learning and artificial intelligence, and to identify their respective attributes (clusters of characteristics) and surrogate and related terms. A systematic search of the literature will be conducted for 2016–2022 using databases relevant to each of these disciplines: ACM Digital Library, CINAHL, Cochrane Library, F1000Research, IEEE Xplore, PubMed/Medline, Science Direct, Scopus and Web of Science. These are among the most representative databases for the included disciplines. We will examine similarities and differences in definitions of ‘precision medicine’ and ‘personalised medicine’ in the respective disciplines and across (sub)disciplines, including attributes of each term. This will enable us to determine how these two concepts are distinguished. ETHICS AND DISSEMINATION: Following ethical and research standards, we will comprehensively report the methodology for a systematic analysis following Rodgers’ concept analysis method. Our systematic concept analysis will contribute to the clarification of the two concepts and distinction in their application in given settings and circumstances. Such a broad concept analysis will contribute to non-systematic syntheses of the concepts, or occasional systematic reviews on one of the concepts that have been published in specific disciplines, in order to facilitate interdisciplinary communication, translational medical research and implementation science

    Experiences of young people and their caregivers of using technology to manage type 1 diabetes mellitus: Systematic literature review and narrative synthesis

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    Background: In the last decade, diabetes management has begun to transition to technology-based care, with young people being the focus of many technological advances. Yet, detailed insights into the experiences of young people and their caregivers of using technology to manage type 1 diabetes mellitus are lacking.Objective: The objective of our study was to describe the breadth of experiences and perspectives on diabetes technology use among children and adolescents with type 1 diabetes mellitus and their caregivers.Methods: This systematic literature review used integrated thematic analysis to guide a narrative synthesis of the included studies. We analyzed the perspectives and experiences of young people with type 1 diabetes mellitus and their caregivers reported in qualitative studies, quantitative descriptive studies, and studies with a mixed methods design.Results:Seventeen articles met the inclusion criteria, and they included studies on insulin pump, glucose sensors, and remote monitoring systems. The following eight themes were derived from the analysis: (1) expectations of the technology prior to use, (2) perceived impact on sleep and overnight experiences, (3) experiences with alarms, (4) impact on independence and relationships, (5) perceived usage impact on blood glucose control, (6) device design and features, (7) financial cost, and (8) user satisfaction. While many advantages of using diabetes technology were reported, several challenges for its use were also reported, such as cost, the size and visibility of devices, and the intrusiveness of alarms, which drew attention to the fact that the user had type 1 diabetes mellitus. Continued use of diabetes technology was underpinned by its benefits outweighing its challenges, especially among younger people.Conclusions: Diabetes technologies have improved the quality of life of many young people with type 1 diabetes mellitus and their caregivers. Future design needs to consider the impact of these technologies on relationships between young people and their caregivers, and the impact of device features and characteristics such as size, ease of use, and cost.</p

    A user preference analysis of commercial breath ketone sensors to inform the development of portable breath ketone sensors for diabetes management in young people

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    BACKGROUNDPortable breath ketone sensors may help people with Type 1 Diabetes Mellitus (T1DM) avoid episodes of diabetic ketoacidosis; however, the design features preferred by users have not been studied. We aimed to elucidate breath sensor design preferences of young people with T1DM (age 12 to 16) and their parents to inform the development of a breath ketone sensor prototype that would best suit their diabetes management needs.RESEARCH DESIGNS AND METHODSTo elicit foundational experiences from which design preference ideas could be generated, two commercially available breath ketone sensors, designed for ketogenic diet monitoring, were explored over one week by ten young people with T1DM. Participants interacted with the breath ketone sensing devices, and undertook blood ketone testing, at least twice daily for five days to simulate use within a real life and ambulatory care setting. Semi-structured interviews were conducted post-testing with the ten young participants and their caregivers (n = 10) to elicit preferences related to breath sensor design and use, and to inform the co-design of a breath ketone sensor prototype for use in T1DM self-management. We triangulated our data collection with key informant interviews with two diabetes educators working in pediatric care about their perspectives related to young people using breath ketone sensors.RESULTSParticipants acknowledged the non-invasiveness of breath sensors as compared to blood testing. Affordability, reliability and accuracy were identified as prerequisites for breath ketone sensors used for diabetes management. Design features valued by young people included portability, ease of use, sustainability, readability and suitability for use in public. The time required to use breath sensors was similar to that for blood testing. The requirement to maintain a 10-second breath exhalation posed a challenge for users. Diabetes educators highlighted the ease of use of breath devices especially for young people who tended to under-test using blood ketone strips.CONCLUSIONSBreath ketone sensors for diabetes management have potential that may facilitate ketone testing in young people. Our study affirms features for young people that drive usability of breath sensors among this population, and provides a model of user preference assessment.</p

    Usability of patient experience surveys in Australian primary health care: a scoping review

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    Monitoring patient experience is essential for stimulating innovation in health care and improving quality and accountability. Internationally, standardised approaches are used to collect patient experience information, but in Australian primary health care (PHC), little is known about which patient experience surveys are used and which aspects of experience they measure. This prevents routine inclusion of patient experience data in quality improvement or system performance measurement. A scoping review was undertaken to identify relevant surveys. Data on survey availability, psychometric properties, target population, method and frequency of administration were extracted. Survey items were mapped against six dimensions of patient experience described internationally. Ninety-five surveys were identified; 34 were developed for use in Australia. Surveys vary in content, size, aspects of experience measured and methods of administration. The quality of data collected and the extent to which it is used in quality improvement is unclear. Collection of patient experience data in Australian PHC is not well developed or standardised and there are few publicly available instruments. There is a need to clearly identify the purposes for which data are to be used and to develop an integrated approach that articulates these collections with other quality and performance data. Some options are discussed

    RECLAIMING DIGITAL INTIMACY FOR YOUTH: PILOTING DIGITAL SEXUAL VIOLENCE WORKSHOPS FOR UNDER-18S DURING THE COVID-19 PANDEMIC IN ENGLAND AND IRELAND

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    Online sexual abuse and violence have become an urgent global problem for women and girls, and in particular for poor women, women of colour and LGBTQ women (Ging and Siapera, 2019). Online sexual harassment and abuse is an especially urgent issue for young people, for whom digital spaces are key sites of communication, identity formation, self-expression and sexual interaction. The toxic dynamics that frequently underpin these complex entanglements thus pose a significant threat to ethical digital intimacy. This situation became substantially more extreme during COVID-19, with rates of online abuse and harassment rising as young people have been forced to spend more and more time online. During this period, usage of particular platforms (e.g. TikTok) dramatically increased. A substantial rise in screen time also impacted young people’s experiences and digital intimacies in important ways. This paper reports on the findings of a cross-national study conducted in England and Ireland, which explored pedagogical interventions into the continuum of online and offline sexual violence amongst young people in schools. In particular, we are interested in how different social media platforms are used to perpetuate different types of online abuse based on certain technological affordances, such as Snapchat quick adds, shout outs and streaks, and Instagram direct message and group chat features. We make a number of concrete recommendations, pointing in particular to urgent paradigm shifts in digital ethics and digital safety initiatives, with a particular focus on platform algorithims, policies and governance
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