4 research outputs found

    Trump, Jerusalem, and the Future of Palestine

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    What does Trump’s recognition of Jerusalem as the capital of Israel mean for the future of Palestine and the Palestinians, and what does it reveal about US policy? Al-Shabaka policy analysts examine these questions and recommend ways for Palestinian civil society and leaders to safeguard Palestinian rights in the face of such a setback. Nur Arafeh argues that Trump’s announcement cements Israel’s apartheid regime and “Judaization” policies in Jerusalem, and calls for the PA to end coordination with Israel and nullify the Oslo Accords. Dana El Kurd makes the case that the US move creates two opposing legal frameworks for Jerusalem, one that follows international law and one that bends to Israeli interests. “[Trump’s declaration] sets a precedent for greater legal recognition in the future,” she writes. “Palestinians should consider new ways of resisting Israeli colonization.” Munir Nuseibah reasons that the development confirms the US as a biased mediator. “The only positive outcome is that it ends the illusion that the ‘peace process’ is legitimate,” he writes. Victor Kattan and Tareq Baconi recommend ways for the PA to respond and move forward. While Kattan outlines a number of strategies for the leadership, including calling on more states to recognize Palestine and devoting more energy to producing a concrete vision of the state it wants to establish, Baconi calls for the PA to be restructured to support a redirection of the Palestinian struggle – but in such a way that would mitigate the economic detriment of its collapse

    Mental health problems in adults with diabetes: prevalence and potential determinants

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    Depression is associated with several chronic diseases such as diabetes. Diabetes is a long-term health disorder that have many health complications such as mental health problems, if left untreated. Our study aimed to determine the prevalence of depression among Qatari patients with diabetes, and to investigate the potential determinants of depression. Our results revealed that the prevalence of depression among the target population was 15.4%. Females, younger adults, smokers and patients with higher education had more depressive symptoms

    Navigating meaningful engagement: lessons from partnering with youth and families in brain-based disability research

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    Abstract Background While patient and family engagement in research has become a widespread practice, meaningful and authentic engagement remains a challenge. In the READYorNotℱ Brain-Based Disabilities Study, we developed the MyREADY Transitionℱ Brain-Based Disabilities App to promote education, empowerment, and navigation for the transition from pediatric to adult care among youth with brain-based disabilities, aged 15–17 years old. Our research team created a Patient and Family Advisory Council (PFAC) to engage adolescents, young adults, and parent caregivers as partners throughout our multi-year and multi-stage project. Main body This commentary, initiated and co-authored by members of our PFAC, researchers, staff, and a trainee, describes how we corrected the course of our partnership in response to critical feedback from partners. We begin by highlighting an email testimonial from a young adult PFAC member, which constituted a “critical turning point,” that unveiled feelings of unclear expectations, lack of appreciation, and imbalanced relationships among PFAC members. As a team, we reflected on our partnership experiences and reviewed documentation of PFAC activities. This process allowed us to set three intentions to create a collective goal of authentic and meaningful engagement and to chart the course to get us there: (1) offering clarity and flexibility around participation; (2) valuing and acknowledging partners and their contributions; and (3) providing choice and leveraging individual interests and strengths. Our key recommendations include: (1) charting the course with a plan to guide our work; (2) learning the ropes by developing capacity for patient-oriented research; (3) all hands on deck by building a community of engagement; and (4) making course corrections and being prepared to weather the storms by remaining open to reflection, re-evaluation, and adjustment as necessary. Conclusions We share key recommendations and lessons learned from our experiences alongside examples from the literature to offer guidance for multi-stage research projects partnering with adolescents, young adults, and family partners. We hope that by sharing challenges and lessons learned, we can help advance patient and family engagement in research

    CHILD-BRIGHT READYorNot Brain-Based Disabilities Trial: protocol of a randomised controlled trial (RCT) investigating the effectiveness of a patient-facing e-health intervention designed to enhance healthcare transition readiness in youth

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    Introduction Youth with brain-based disabilities (BBDs), as well as their parents/caregivers, often feel ill-prepared for the transfer from paediatric to adult healthcare services. To address this pressing issue, we developed the MyREADY TransitionTM BBD App, a patient-facing e-health intervention. The primary aim of this randomised controlled trial (RCT) was to determine whether the App will result in greater transition readiness compared with usual care for youth with BBD. Secondary aims included exploring the contextual experiences of youth using the App, as well as the interactive processes of youth, their parents/caregivers and healthcare providers around use of the intervention.Methods and analysis We aimed to randomise 264 youth with BBD between 15 and 17 years of age, to receive existing services/usual care (control group) or to receive usual care along with the App (intervention group). Our recruitment strategy includes remote and virtual options in response to the current requirements for physical distancing due to the COVID-19 pandemic. We will use an embedded experimental model design which involves embedding a qualitative study within a RCT. The Transition Readiness Assessment Questionnaire will be administered as the primary outcome measure. Analysis of covariance will be used to compare change in the two groups on the primary outcome measure; analysis will be intention-to-treat. Interviews will be conducted with subsets of youth in the intervention group, as well as parents/caregivers and healthcare providers.Ethics and dissemination The study has been approved by the research ethics board of each participating site in four different regions in Canada. We will leverage our patient and family partnerships to find novel dissemination strategies. Study findings will be shared with the academic and stakeholder community, including dissemination of teaching and training tools through patient associations, and patient and family advocacy groups.Trial registration number NCT03852550
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