Arthritis and disability

Executive summary: Arthritis Australia commissioned the Social Policy Research Centre (SPRC) at UNSW Australia to carry out research on the lived experience of people with arthritis related conditions. This report outlines the methods, findings and implications of the research. Arthritis is the second leading cause of disability and the most common cause of chronic pain in Australia; it is the most prevalent long-term health condition, affecting 3 million people or about 15 per cent of the population. Studies are available on the health costs and loss of productivity associated with arthritis, but not as much is understood about the extent to which arthritis is associated with disability–who is affected, how people are affected, what helps people cope with their condition day to day, and how support services can be improved. Improving understanding of the disability impact of arthritis is particularly important given the transition in Australia to the National Disability Insurance Scheme and the impact this may have on service availability and delivery

Supported accommodation evaluation framework (SAEF) guide

High hopes for the NDIS are that people with disability will be able to live as independently as they choose, with the housing of their choice, and with the paid support that suits their preferences and life goals. Research conducted by the Social Policy Research Centre for the NSW government about disability housing support that is like the NDIS found that most people did achieve some positive outcomes. Least change was evident in people’s interpersonal relationships and employment, and some people did not live in housing that met their needs.&nbsp

“The most brutal immigration regime in the developed world”: International Media Responses to Australia’s Asylum-Seeker Policy

Despite intense media coverage of Australia’s asylum-seeker policy, there is minimal attention to structures and processes that influence international media perspectives. This article explores international media responses to Australia’s policy using a mixed-method approach. Our research focused on twenty-five articles from international media outlets surrounding the 2014 “riots” at Manus Island Regional Processing Centre. Three major themes (political relationships, domestic policy and practice, and treatment of asylum-seekers) highlight some key trends in international media representations of this event as an example. We discuss the implications of such findings for the production, representation, and reception of international media stories.Malgré une couverture médiatique intense de la politique australienne concernant les chercheurs d’asile, il y a très peu d’attention portée aux structures et processus qui influencent les perspectives médiatiques internationales. Cet article étudie les réactions de la part des médias internationaux concernant la politique australienne en utilisant une approche à méthodologie mixte. Nos recherches se sont portées sur 25 articles émanant de diffuseurs de médias internationaux autour des «émeutes» de 2014 au Manus Island Regional Processing Centre (centre de traitement régional pour l’immigration de l’île de Manus). Trois thèmes principaux (Relations politiques, Politique interne et pratiques, et Traitement des chercheurs d’asile) mettent en valeur des tendances clés dans la représentation de la part des médias internationaux de cet évènement particulier en tant qu’exemple. Nous abordons une discussion des implications de ces recherches pour la production, la représentation et la réception des actualités médiatiques internationales

Sick leave among home-care personnel: a longitudinal study of risk factors

BACKGROUND: Sick leave due to neck, shoulder and back disorders (NSBD) is higher among health-care workers, especially nursing aides/assistant nurses, compared with employees in other occupations. More information is needed about predictors of sick leave among health care workers. The aim of the study was to assess whether self-reported factors related to health, work and leisure time could predict: 1) future certified sick leave due to any cause, in nursing aides/assistant nurses (Study group I) and 2) future self-reported sick leave due to NSBD in nursing aides/assistant nurses (Study group II). METHODS: Study group I, comprised 443 female nursing aides/assistant nurses, not on sick leave at baseline when a questionnaire was completed. Data on certified sick leave were collected after 18 months. Study group II comprised 274 of the women, who at baseline reported no sick leave during the preceding year due to NSBD and who participated at the 18 month follow-up. Data on sick leave due to NSBD were collected from the questionnaire at 18 months. The associations between future sick leave and factors related to health, work and leisure time were tested by logistic regression analyses. RESULTS: Health-related factors such as previous low back disorders (OR: 1.89; 95% CI 1.20–2.97) and previous sick leave (OR 6.40; 95%CI 3.97–10.31), were associated with a higher risk of future sick leave due to any cause. Factors related to health, work and leisure time, i.e. previous low back disorders (OR: 4.45; 95% CI 1.27–15.77) previous sick leave, not due to NSBD (OR 3.30; 95%CI 1.33–8.17), high strain work (OR 2.34; 95%CI 1.05–5.23) and high perceived physical exertion in domestic work (OR 2.56; 95%CI 1.12–5.86) were associated with a higher risk of future sick leave due to NSBD. In the final analyses, previous low back disorders and previous sick leave remained significant in both study groups. CONCLUSION: The results suggest a focus on previous low back disorders and previous sick leave for the design of early prevention programmes aiming at reducing future sick leave due to any cause, as well as due to NSBD, among nursing aides/assistant nurses. A multifactorial approach may be of importance in the early prevention of sick leave due to NSBD

Expansion of the Human Phenotype Ontology (HPO) knowledge base and resources.

The Human Phenotype Ontology (HPO)-a standardized vocabulary of phenotypic abnormalities associated with 7000+ diseases-is used by thousands of researchers, clinicians, informaticians and electronic health record systems around the world. Its detailed descriptions of clinical abnormalities and computable disease definitions have made HPO the de facto standard for deep phenotyping in the field of rare disease. The HPO\u27s interoperability with other ontologies has enabled it to be used to improve diagnostic accuracy by incorporating model organism data. It also plays a key role in the popular Exomiser tool, which identifies potential disease-causing variants from whole-exome or whole-genome sequencing data. Since the HPO was first introduced in 2008, its users have become both more numerous and more diverse. To meet these emerging needs, the project has added new content, language translations, mappings and computational tooling, as well as integrations with external community data. The HPO continues to collaborate with clinical adopters to improve specific areas of the ontology and extend standardized disease descriptions. The newly redesigned HPO website (www.human-phenotype-ontology.org) simplifies browsing terms and exploring clinical features, diseases, and human genes

Finishing the euchromatic sequence of the human genome

The sequence of the human genome encodes the genetic instructions for human physiology, as well as rich information about human evolution. In 2001, the International Human Genome Sequencing Consortium reported a draft sequence of the euchromatic portion of the human genome. Since then, the international collaboration has worked to convert this draft into a genome sequence with high accuracy and nearly complete coverage. Here, we report the result of this finishing process. The current genome sequence (Build 35) contains 2.85 billion nucleotides interrupted by only 341 gaps. It covers ∼99% of the euchromatic genome and is accurate to an error rate of ∼1 event per 100,000 bases. Many of the remaining euchromatic gaps are associated with segmental duplications and will require focused work with new methods. The near-complete sequence, the first for a vertebrate, greatly improves the precision of biological analyses of the human genome including studies of gene number, birth and death. Notably, the human enome seems to encode only 20,000-25,000 protein-coding genes. The genome sequence reported here should serve as a firm foundation for biomedical research in the decades ahead

Enduring Social Representations of Disability: A reflective qualitative study of print media, occupational therapy and disability policy

This thesis examines enduring stereotypes of and discursive struggles over social representation of disability inthe print media, in professional groups such as occupational therapists who work with disabled people and in thepolicy, design and delivery of services.Literature from the disability movement accessed during the study suggested the print media, allied health andsocial care professionals, and government disability policy were three areas of discourse with the potential to influencethe lives of disabled people through their discursive practices.This qualitative study was conducted in three consecutive phases from 1996 to 2003 in both the UnitedKingdom and Australia. It uses Critical Discourse Analysis and a multi-methodological approach to collect and analysetime-specific textual data for depictions of disability within the three discourse areas. The analysis employed textualmaterial from three UK broadsheet newspapers, educational and practice documents developed by occupationaltherapists in NSW, and disability policy documents produced by the Australian Federal and NSW State Governments.All three phases of the analysis suggested discursive practices which continue to represent disability within fourmajor enduring or stereotypical depictions (Barnes 1992:5). These depictions often showed disabled people as: sick andin need of treatment, financial burdens, objects of charitable care and/or as ‘super-crips’. Some of the time disabledpeople were often missing from the discourse altogether and only rarely were representations of disabilitycommensurate with precepts of the social model of disability.Since the research commenced in the late 1990s, the position of disabled people in the UK has improved by theintroduction of new services acknowledging some of the demands from disability organisations. However, the story hasnot been replicated in NSW and understanding disability as resulting from social barriers still flounders. The analysissuggests this is partly because of the ideological ascendancy of neo-liberal policies. It is also due to medical dominancein services which permeates the press, professional practice and the design and delivery of community-based disabilityservices. This ideological and discursive struggle seems to be particular to Australia (Willis 2006) and is unlikely tochange while services and systems fail to include more appropriate models of disability in the dialogue of theirdevelopment