Management of hereditary angioedema: 2010 Canadian approach

C1-inhibitor (C1-INH) deficiency is a rare blood disorder resulting in angioedema attacks that are debilitating and may be life-threatening. Prophylaxis and therapy of events has changed since our first Canadian Consensus Conference on the diagnosis, therapy and management of HAE. We have formed the Canadian Hereditary Angioedema Network (CHAEN)/Réseau Canadien d'Angioédème Héréditaire (RCAH) - http://www.haecanada.com to advance care of patients with this disorder in Canada. We here present a review of management of HAE in Canada

Mining the material archive : balancing sensate experience and sense-making in digitized print collections

Large-scale digitization appears to put literary collections at one’s fingertips, but, as some critics warn, the books themselves are increasingly out of reach as university libraries continue to shift from being ‘physical repositories’ to becoming ‘access portals’ to digitized materials (Stauffer, 2012). People who are drawn to print books often find that digital surrogates ‘lack feeling’ (Piper, 2012). Digitized texts preserve linguistic content of print works but not their many meaningful physical features that fundamentally shape interpretation (McGann, 1991) and contain valuable historical traces of print technologies, markets, and readerly interactions (Stauffer, 2012). Changing how we physically interact with texts also changes how we sense and make sense of them. How can we harness the potential of digital media to better represent and analyze print collections? How can we accentuate their unique historic, aesthetic, and material qualities while also allowing rich linking supported by computer-assisted content analyses? How can design critically engage with the sensory differences between reading print materials and on-screen reading in order to promote different modes of meaningful textual engagement? Addressing these questions, we introduce synesthetic visualization as a speculative approach to creating digital on-screen and tangible representations of print collections that translate — not replicate — sensory experiences of interacting with print collections by coupling visual representations with cues for other sensory modalities (e.g, sonic, tactile) that are routinely engaged by print texts. Drawing insights from aesthetic theory, book history, reception studies, literary studies, information visualization, human computer interaction (HCI), and digital arts, we propose possible ways to experiment with digital on-screen and tangible representations of print collections that explicitly aim to translate — not replicate — sensory and sense-making experiences inherent in interacting with print collections. We illustrate this through our own ongoing work with the Bob Gibson Anthologies of Speculative Fiction, unique hand-crafted booklets composed of science-fictional items culled from popular periodicals published between 1844 and 1992.Publisher PDFPeer reviewe

Data Management Planning

Research data, whether made up of spreadsheets, interview transcripts, image collections, digital records, or other material, will be crucial to your career as a graduate student and researcher. Properly managing this data you will save you time and headaches by ensuring your data is not accidentally lost while making your data easier to work with and verifying your research findings. This session will focus on how to manage your data before, during, and after your research, as well as describe how to use Data Management Plan Assistant, a Canadian online tool for creating data management plans

Critical Roles for Libraries in Today’s Research Enterprise

Research has changed: have libraries? Today many academic libraries are seeking ways to better align with current research practice and to engage as vital partners in campus research. The issues are critical, necessary changes are fundamental, and libraries are developing new means and partnerships to sustain relevance. Held following the CNI Fall Membership Meeting, Critical Roles for Libraries in Today’s Research Enterprise was held December 11, 2019 in Washington DC for librarians, research administrators, and technology professionals to identify responses to this challenge.Othe

Using Digital Tabletops

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The flexible projection framework

Bibliography: p. 194-200Most pages are in colour.Includes copies of copyright permission. Original copies with original Partial Copyright Licence

Redesigning the Researcher-Library Experience

Project Briefing at the Coalition for Networked Information (CNI) Fall Meeting 2019Libraries have developed ways of designing their online user experience and student experience. What is our design method for research? Researchers no longer depend on libraries for “search” and the resources purchased and licensed are of diminishing centrality. Providing new functional services, infrastructure, and expertise is essential. Services such as data curation, visualization, and geospatial analytics are now core capabilities. Capacities such as metadata, digitization, and copyright are being deployed in new ways. Library expertise and collaborative spaces are of critical importance. Yet, these often remain hidden by traditional image of libraries, or by organizational models obscuring vital points of intersection for both researchers and library staff. In this session, we will identify essential elements derived from case studies and offer recommendations and checklists for assessing, redesigning, and repositioning the library’s presence in campus research.Othe

Shape Defined Panoramas

Panoramic projections are often defined by the geometric surfaces used to derive the projections’ equations (e.g., spherical and cylindrical panoramas). The parameterization of these surfaces greatly affects the resulting projection equations and image properties. Problematically, unusual parameterization can reproduce panoramas associated with other shapes. In this paper, we ensure an explicit link between surface shape and projection behavior by suggesting use of projection surfaces parameterized by arc-length, binding rendering behavior to surface modeling. This allows us to create new panorama variations beyond the conventional for creating panoramas of CG environments as well as for resampling panoramas created from cameras. Further we describe an interface for composing these panoramas and show how this technique lends itself to controlling distortion and composition of panoramic projections. Additionally we provide details on rendering these projections