Older parents of people who have a learning disability : perceptions of future accomodation needs

The aim of this qualitative study was to provide an insight into the perceptions of older parents of learning disabled people on the future accommodation needs of their adult children. Semi-structured interviews were used to seek parental awareness of residential options available, concerns in relation to future accommodation and the preferred accommodation options for their offspring. Four couples who shared the family home with an adult who has a learning disability took part in the study and data was analysed using a step by step form of content analysis as described by Burnard (1991). Emergent themes from transcripts were then organised into main categories The results of this study suggest that older parents are dissatisfied with both statutory and private services, that they have concerns for their non-disabled children and their own ageing. Being a parent to a person who has a learning disability is seen to be a difficult task and yet parents may want to provide support at home for as long a possible. Of the parents who participated in this study, three couples wanted to maintain their adult child at home for as long as possible and the parents who were actively seeking accommodation outside the family home expected to be involved in all aspects of their daughter�s care for the long term future

Quality of life and quality of support for people with severe intellectual disability and complex needs

Background: People with severe and profound intellectual disabilities often spend substantial time isolated and disengaged. The nature and quality of the support appears to be important in determining quality of life. Methods: Structured observations and staff questionnaires were used to explore the quality of life and quality of support for 110 people with severe and profound disabilities and complex needs. Results: On average, people spent approximately 40% of their time engaged in meaningful activities, received contact from staff 25% of the time (6% in the form of assistance to be engaged). Just over one-third received consistently good active support, which was associated with other measures of quality of support and emerged as the strongest predictor of outcomes. Conclusions: Quality of life and quality of support were relatively poor, although with about one-third of people receiving skilled support. Consistently good active support was the best predictor of outcome and proposed as a good indicator of skilled support

Bridging the divide at transition What happens for young people with learning difficulties and their families?

Includes bibliographical referencesSIGLEAvailable from British Library Document Supply Centre- DSC:02/42334 / BLDSC - British Library Document Supply CentreGBUnited Kingdo

Journey to independence What self-advocates tell us about direct payments

'A joint research project from Swindon People First and the Norah Fry Research Centre' - Cover. Includes bibliographical referencesSIGLEAvailable from British Library Document Supply Centre- DSC:02/41423 / BLDSC - British Library Document Supply CentreGBUnited Kingdo

Ethical approaches to physical interventions Responding to challenging behaviour in people with intellectual disabilities

Includes bibliographical referencesAvailable from British Library Document Supply Centre- DSC:m03/22009 / BLDSC - British Library Document Supply CentreSIGLEGBUnited Kingdo

Conversations in autism From insight to good practice

Includes bibliographical referencesAvailable from British Library Document Supply Centre- DSC:m03/29430 / BLDSC - British Library Document Supply CentreSIGLEGBUnited Kingdo