Chronic health and Lifestyle Problems for People Diagnosed with Autism in a Student-led Clinic

Purpose People with autism spectrum disorder (ASD) are at greater risk of developing chronic health and risky lifestyle problems. This is exaggerated further for people living in rural settings and from cultural backgrounds traditionally underserved by healthcare services. The purpose of this paper is to describe an evaluation of health and behavioural lifestyle outcomes of people diagnosed with ASD in a student-led clinic in rural/regional Australia. Design/methodology/approach Routine clinical outcomes and lifestyle measures were routinely collected at a primary acre student-led Clinic in rural/regional Australia. Participants were all attending the clinic who provided consent for their routine date to be reported. Participants ranged in age from new born to 100 years and were representative of the local community. Findings The results indicate there is an increased risk for people with ASD developing chronic conditions compared to those without a diagnosis. This also resulted in higher body mass index and blood sugar levels linked to diabetes and hypertension. Mental health problems were common in people diagnosed with ASD especially anxiety disorders. Smoking was problematic for people with ASD but mainly in non-Aboriginal and Torres Strait Islanders. Alcohol use was not an increase risk in ASD. Originality/value Little is reported on the health and lifestyle experiences of people with ASD in rural/regional settings, especially from Aboriginal and Torres Strait Islander communities. This paper gives an initial insight to the presentation of chronic conditions and harmful lifestyle choices. Possible insights into adapting or modifying care for people with ASD in rural/regional Australia are given. </jats:sec

A Primary Qualitative Study Exploring Adult BAME Individuals' Experiences Regarding Physical Activity from the North-East of England During the COVID-19 Pandemic:n/a

Researchers have found that people from BAME communities have worse health outcomes from many health interventions and face health disparities. BAME individuals experience health inequities and lower health intervention results. The experiences of adult Teesside-based BAME Individuals' regarding physical activity (PA) during the COVID-19 pandemic were mapped onto the capability, opportunity, and motivation model of behaviour (COM-B). Twelve adult BAME participants were interviewed using semi-structured interviews that lasted 40 to 60 minutes and captured participant perceptions of how their PA and perceptions related to living a healthy PA lifestyle during the pandemic between April and August 2022 via Microsoft Teams. Using thematic analysis, 10 themes were generated, but only three themes were discussed. These include knowledge and awareness of the PA lifestyle, participants' perceptions of the opportunities to improve the PA lifestyle choice of adult BAME, and the change in perceptions of PA due to COVID-19 lockdown. While literature has explored the COM-B model, there have been generalised findings that are not specific to adult BAME individuals' lived PA experiences. The COVID-19 pandemic presents an opportunity to understand the shift in adult BAME perceptions and experiences during the coronavirus pandemic, therefore calling for the urgent need to modify both models in order to combat the high mortality rates of adult BAME individuals related to sedentary lifestyle diseases. This indicates that there is a critical requirement for the COMB model in order to implement policies. Nevertheless, limited PA studies have used lifestyle behaviour models to enhance behavioural modification

Ethical consideration for neurodevelopmental disorder pathway service evaluation and research

The Disabilities Act of 1990 and the Developmental Disabilities Assistance and Bill of Rights Act of 2000 of United States in act to prevent social exclusion of people with intellectual and developmental disabilities (IDDs) and to cut back on unneeded expenditures to society. However, despite the protective legislation, the rights of adults with neurodevelopmental disorders have not yet been fully realised. There are several obstacles to overcome the neurological development related health care services, including health care usage, educational and career pathways, family and social lives, self-fulfilment, and quality of life. There are significant gaps in the transition process that affect the health care systems. Lack of transition and transfer planning, neurodevelopmental disorder health care pathway services have lack of experience, education, and expertise which result the inadequate growth of the health care quality and create communication gap in between service providers and service users. The aim of this short communication is to mention and clarify the ethical concerns of neurodevelopmental service evaluation