Necesidades de apoyo de las familias de personas con discapacidad intelectual de Catalunya

A partir de los modelos teóricos de calidad de vida familiar, en el presente estudio se han explorado las necesidades y propuestas de mejora que manifiestan tener las familias con un familiar con discapacidad intelectual de Cataluña, con objeto de poder tomar, posteriormente, las decisiones oportunas en cuanto a la provisión de apoyos. Un total de 46 personas (32 familiares de personas con discapacidad intelectual y 14 personas con discapacidad intelectual) han participado en este estudio mediante grupos de discusión y entrevistas individuales. El análisis de los datos se ha llevado a cabo a partir de la técnica de análisis del contenido. Las necesidades y propuestas de mejora se presentan agrupadas según 13 dimensiones de calidad de vida familiar. A pesar del innegable progreso en las últimas décadas en Cataluña,se cree que los servicios existentes no acaban de dar una respuesta adecuada a determinadas necesidades de las familias. A partir de dichas necesidades, se formulan propuestas de mejora con el fin de promover la calidad de vida de lasfamilias y de las personas con DI

Las escalas de calidad de vida familiar (cdvf-e). Apoyo y orientación para la intervención

The aim of this paper is to present cDVF-E scales for families with children of 0-18 years, on one hand, and over 18 years, on the other, that researchers from five spanish universities have recently validated and standardized to the spanish population. To this end, first, the importance of the construct of quality of family life and its implications for research and practice should be emphasized. Afterwards, we introduce the first international initiatives measuring the quality of family life developed in the first decade of this century. Then the features, dimensions and psychometric properties of the scales are synthetically presented. Finally, the authors encourage practitioners and organizations to use these tools in the context of family-centered model and provides, as a conclusions, some consideration

Spanish Family Quality of Life Scales: Under and over 18 year old

Background Researchers, professionals, and families have shown increasing concern with the family quality of life (FQoL) of people with intellectual disability (ID) and their families. The goals of this research were (a) to explore how Spanish families understand FQoL by developing 2 different measurement tools for families with a member with ID under and over 18 years old, and (b) to provide 2 diagnostic instruments that will be useful for designing action plans. Method The study comprised 4 stages: (a) focus groups, (b) expert assessment, (c) pilot study, and (d) normalisation and standardisation. The data were collected in 5 regions in Spain, and 1,205 families with a member with ID took part in the normalisation and standardisation of the scales. Results Both FQoL scales were consistent and have valid psychometric characteristics. Conclusions The scales have a diagnostic purpose for use in designing action plans aimed at producing significant changes in families'lives

Famílies botàniques de plantes medicinals

Facultat de Farmàcia, Universitat de Barcelona. Ensenyament: Grau de Farmàcia, Assignatura: Botànica Farmacèutica, Curs: 2013-2014, Coordinadors: Joan Simon, Cèsar Blanché i Maria Bosch.Els materials que aquí es presenten són els recull de 175 treballs d’una família botànica d’interès medicinal realitzats de manera individual. Els treballs han estat realitzat per la totalitat dels estudiants dels grups M-2 i M-3 de l’assignatura Botànica Farmacèutica durant els mesos d’abril i maig del curs 2013-14. Tots els treballs s’han dut a terme a través de la plataforma de GoogleDocs i han estat tutoritzats pel professor de l’assignatura i revisats i finalment co-avaluats entre els propis estudiants. L’objectiu principal de l’activitat ha estat fomentar l’aprenentatge autònom i col·laboratiu en Botànica farmacèutica

Impact of Supports and Partnership on Family Quality of Life

Background: In recent decades, Family Quality of Life (FQOL) has emerged as a decisive construct, both to improve the living conditions of the families of people with disabilities and to assess the results on the services and supports that they receive. The aim of this research is to determine the perception of the families regarding their support needs, the quality of their partnerships with professionals, and their FQOL and then identify to what extent the supports of early childhood intervention centers have a positive impact on the families' FQOL while exploring whether the family-professional partnership has become a fundamental intervening factor of FQOL. Method: The participants were 202 families with children aged 0-6 with intellectual and developmental disabilities. We used the structural equation model to analyze the influence that the adequacy of the supports and the partnerships exerted on FQOL. Results: The results indicate that the families have language and speech support needs for their children and information needs for themselves, and that they are mostly satisfied with their partnerships with the professionals and their FQOL. Our results also indicate that their degree of satisfaction with the support was a good predictor of FQOL and their ratings of partnership quality was a key factor interceding on this effect. Conclusions: This study provides professionals and public institutions with guidance when designing plans to improve early childhood intervention centers so the quality of life of these families and the progress of children with disabilities living in Spain become progressively stronger

Las escalas de calidad de vida familiar (cdvf-e). Apoyo y orientación para la intervención

The aim of this paper is to present cDVF-E scales for families with children of 0-18 years, on one hand, and over 18 years, on the other, that researchers from five spanish universities have recently validated and standardized to the spanish population. To this end, first, the importance of the construct of quality of family life and its implications for research and practice should be emphasized. Afterwards, we introduce the first international initiatives measuring the quality of family life developed in the first decade of this century. Then the features, dimensions and psychometric properties of the scales are synthetically presented. Finally, the authors encourage practitioners and organizations to use these tools in the context of family-centered model and provides, as a conclusions, some consideration

L'Escala d'Intensitat de Suports (EIS): un instrument per promoure el benestar de les persones arnb discapacitat intel·lectual

L'Escala d'irtensitat de Suports (EIS) és un instrument que té per finalitat avaluar les necessitats de suport, determinar-ne intensitat, supervisar-ne el progrés i avaluar els de les persores amb discapacitat intelectual. Aquesta escala intenta donar resposta als problemes de definció i mesura deis suports que deriven de 'La definició de 1992". L'objectiu de l'article és fer una presentació i descripció l'EIS, les seves característiques principals i la proposta d'adaptació i validació a la població catalana amb discapacitat intel·lectual. En els comentaris finals, es valora positivament el fet de disposar en català d'instrumen d'aquestes característiques, tant per a les mateixes persones arnb discapacitat com per als serveis i institucions dedicats a la seva atenció i, en definitiva, per a la millora de la qualitat de vid

Spanish Family Quality of Life Scales: Under and over 18 year old

Background Researchers, professionals, and families have shown increasing concern with the family quality of life (FQoL) of people with intellectual disability (ID) and their families. The goals of this research were (a) to explore how Spanish families understand FQoL by developing 2 different measurement tools for families with a member with ID under and over 18 years old, and (b) to provide 2 diagnostic instruments that will be useful for designing action plans. Method The study comprised 4 stages: (a) focus groups, (b) expert assessment, (c) pilot study, and (d) normalisation and standardisation. The data were collected in 5 regions in Spain, and 1,205 families with a member with ID took part in the normalisation and standardisation of the scales. Results Both FQoL scales were consistent and have valid psychometric characteristics. Conclusions The scales have a diagnostic purpose for use in designing action plans aimed at producing significant changes in families'lives

Spanish Family Quality of Life Scales: Under and over 18 year old

Background Researchers, professionals, and families have shown increasing concern with the family quality of life (FQoL) of people with intellectual disability (ID) and their families. The goals of this research were (a) to explore how Spanish families understand FQoL by developing 2 different measurement tools for families with a member with ID under and over 18 years old, and (b) to provide 2 diagnostic instruments that will be useful for designing action plans. Method The study comprised 4 stages: (a) focus groups, (b) expert assessment, (c) pilot study, and (d) normalisation and standardisation. The data were collected in 5 regions in Spain, and 1,205 families with a member with ID took part in the normalisation and standardisation of the scales. Results Both FQoL scales were consistent and have valid psychometric characteristics. Conclusions The scales have a diagnostic purpose for use in designing action plans aimed at producing significant changes in families'lives

Aprenem anglès jugant amb contes

Resumen tomado de la publicación. El fichero incluye una presentación del trabajo en pdf, la presentación en power point de cada uno los cuentos y un programa de instalación del Adobe Reader 7.0. El trabajo fué desarrollado en los Seminarios de Lengua Inglesa del CEP de Palma durante el curso 2004-2005Se presentan seis cuentos, en formato electrónico y en lengua inglesa. A partir de un personaje central, se pueden imaginar todas las situaciones cotidianas posibles. Así, cada uno de ellos, explica situaciones reales a través de fotografías, efectos de sonido y frases hechas. Se adjuntan las guías didácticas de cada uno de los cuentos, con propuestas a realizar en el aula así como su posible evaluación. Los títulos de los cuentos son los siguientes: 'Kermit's free time activities', 'Kermit's daily routines', 'Kermit's birthday', 'Sam goes to school', 'Halloween with Sam and Sue' y 'The pink princess'.BalearesUniversitat de les Illes Balears. Redined Balears; Edifici Guillem Cifre de Colonya. Ctra. de Valldemossa, Km 7,5; 07122 Palma de Mallorca; +34971172792; +34971173190; [email protected]