22 research outputs found

    Trust in governance networks: Its impacts on outcomes

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    __Abstract__ Governance networks are characterized by complex interaction and decision making, and much uncertainty. Surprisingly, there is very little research on the impact of trust in achieving results in governance networks. This article asks two questions: (a) Does trust influence the outcomes of environmental projects? and (b) Does active network management improve the level of trust in networks? The study is based on a Web-based survey of respondents involved in environmental projects. The results indicate that trust does matter for perceived outcomes and that network management strategies enhance the level of trust

    Tuberöse Sklerose: eine interdisziplinäre Diagnose [Tuberous sclerosis: an interdisciplinary diagnosis]

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    Tuberous sclerosis is a relatively rare disease, but it often takes a progressive and severe course. We wish to demonstrate the typical changes in a patient with tuberous sclerosis and their relevance for the ophthalmologist. Ophthalmologic evaluation including funduscopy, 30 degree perimetry and fundus photography and clinical course of a 40-year-old man are described. We observed an elevated, multinodular, opaque hamartoma resembling mulberries, approximately (1/3)-(1/2) PD large, at the temporal superior arc with corresponding visual field defects. An ophthalmologist should always think of a tuberous sclerosis as a differential diagnosis when confronted with a retinal hamartoma. Other characteristic ophthalmological findings include facial and eyelid angiofibromas, coloboma of the iris, lens and choroid, strabismus, poliosis of the eyelashes, papilloedema and sector iris depigmentation. Clinical diagnosis of tuberous sclerosis is in most cases relatively easy; however, an interdisciplinary cooperation is needed

    Behandelte Frühgeborenenretinopathie in Deutschland

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    Retinopathy of prematurity (ROP) is one of the main reasons for childhood blindness. The number of infants requiring treatment, however, is low for individual centers. The Retina.net ROP registry has been founded to allow a joint analysis of treatment patterns and courses post treatment. This paper reports treatment patterns over 5 years. All infants born between January 2011 and December 2015 who were entered into the treatment registry by one of the 12 participating centers were analyzed. The data of 150 infants (292 eyes) were analyzed and ROP 3+ in zone II was the most prevalent treatment indication. Gestational age and birth weight remained stable over the years. The treatment patterns, however, changed with anti-VEGF treatment (bevacizumab or ranibizumab) accounting for only 10% of treated eyes in 2011 but for 56% and 30% in 2014 and 2015, respectively. Almost all eyes with AP-ROP or zone I disease received anti-VEGF treatment. Zone II disease was predominantly treated with laser photocoagulation. Recurrences were more common and appeared later in the anti-VEGF group compared to the laser group (23%/interval 60 days vs. 17%/interval 23 days). Perioperative complications were evenly distributed across treatment groups. The data in this analysis represent about 10-15% of treated infants in Germany. The results provide evidence for an increasing use of anti-VEGF agents for ROP. The data reflect a selection bias for anti-VEGF treatment in eyes with a more aggressive disease. This needs to be considered when interpreting data such as disease recurrence rates. The risk for late recurrences after anti-VEGF treatment is of particular clinical significance

    Grupo de convivência com pessoas com doença pulmonar obstrutiva crônica: sentimentos e expectativas

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    Trata-se de uma pesquisa qualitativa realizada com pessoas com doença pulmonar obstrutiva crônica em uma clínica de físioterapia da universidade do Vale do Itajaí/SC. Teve como objetivo identificar sentimentos dessas pessoas relacionados ao seu problema de saúde. Para tanto, foi realizado um grupo de convivência com onze pacientes e um famíliar.A partir da análise de dados emergiram três categorias distintas: a tristesa e o sofrimento ocasionados pela doença; as limitações e incapacidades físicas no cotidiano e o desejo de melhora em relação ao quadro clínico estabelecido pela doença.Observamos, portanto que o grupo de convivência é um espaço importante para as pessoas com doenças crônicas, com sentido de provocar mudanças de comportamento, adquirindo novos hábitos saudáveis de vida, também servindo como mola propulsora para que estas pessoas possam expressar sentimentos, contribuindo para melhorar suas qualidade de vida.It is a qualitative research conducted with people with chronic obstructive pulmonary disease in a physiotherapy clinic of the University of Vale do Itajai / SC. Aimed to identify the feelings of these people related to your health problem. Thus, it was performed live with a group of eleven patients and a famíliar.A from the data analysis revealed three distinct categories: the sadness and suffering caused by disease, physical limitations and disabilities in daily life and the desire for improvement in relation to the frame established by clinical doença.Observamos, so that the group interaction is an important space for people with chronic diseases, with a sense of cause changes in behavior, learning new healthy habits of life, also serving as the catalyst for these people to express feelings, helping to improve their quality of life.Se trata de una investigación cualitativa realizada con las personas con enfermedad pulmonar obstructiva crónica en una clínica de fisioterapia de la Universidad de Vale do Itajai / SC. Tuvo como objetivo identificar los sentimientos de estas personas relacionadas con su problema de salud. Por lo tanto, fue interpretada en vivo con un grupo de once pacientes y un famíliar.A del análisis de datos reveló tres categorías distintas: la tristeza y el sufrimiento causados ​​por la enfermedad, las limitaciones físicas y las discapacidades en la vida cotidiana y el deseo de mejora en relación con el marco establecido por doença.Observamos clínica, de modo que la interacción del grupo es un espacio importante para las personas con enfermedades crónicas, con un sentido de provocar cambios en el comportamiento, el aprendizaje de nuevos hábitos de vida saludable, también actúa como catalizador de estas personas para expresar sentimientos, ayudando a mejorar su calidad de vida
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