The cystic fibrosis Frequent Flyer Programme: A pilot 12 month quality improvement initiative focused on intensive outpatient physiotherapy, exercise and dietetic support

Ledger, SJ ORCiD: 0000-0001-7364-8535Children with moderate to severe CF require frequent hospital admissions for intensive prophylactic IV antibiotic treatment or as a response to acute events. During admissions, physiotherapy treatment includes 2 daily intensive airway clearance sessions and an exercise session. Nutritional status is also reviewed. Between admissions children are reviewed at bi-monthly outpatient appointments. An alternative model of care that provides comprehensive outpatient physiotherapy and dietetic management may be more effective. The Frequent Flyer Programme was undertaken as a quality improvement initiative within the CF Unit, in addition to the specialist services already provided

The Frequent Flyer Programme: Results of a 12-month quality improvement initiative focused on intensive outpatient physiotherapy and dietetic support

Ledger, SJ ORCiD: 0000-0001-7364-8535Our current model of CF care is based on intensive inpatient intervention. An alternative model providing comprehensive outpatient physiotherapy and dietetic management to children with moderate-to-severe CF may be more effective

5-year milestone reached in collaborative partnership between CF Unit and UK fitness provider

Ledger, SJ ORCiD: 0000-0001-7364-8535Exercise is recommended for all children with CF, howeveradherence and levels of participation in unsupervised exerciseprogrammes are variable. This collaboration, which started in 2011, aimsto improve levels of participation by providing free gym membershipto all children with CF receiving care from GOSH and one parent/carer.Complimentary Personal Training (PT) sessions are available for thoseaged 5–17 years. Swimming is encouraged for babies and pre-schoolers

Interim results for INSPIRE-CF: A 24-month RCT evaluating effects of weekly supervised exercise in children with CF

Ledger, SJ ORCiD: 0000-0001-7364-8535Objectives: Long term effects of exercise on FEV1, LCI, VO2Peak, 10m-MSWT and CFQ-R. Methods: Children aged 10±3 (mean±SD, range 6-15) yrs with average FEV1 of 86.6±15.3%pred were randomised by minimisation into control (n=34) or intervention groups (n=37). Both received specialist CF care. The intervention group also received weekly supervised exercise for 24-months