A consensus statement on how to conduct inclusive health research

The active involvement of people with intellectual disabilities in research, or inclusive research, is relatively common. However, inclusive health research is less common, even though it is expected to lead to appropriate healthcare and increased quality of life. Inclusive health research can build upon lessons learned from inclusive research.A total of 17 experts on inclusive (health) research without intellectual disabilities and 40 experts with intellectual disabilities collaborated in this consensus statement. The consensus statement was developed in three consecutive rounds: (1) an initial feedback round; (2) a roundtable discussion at the 2016 International Association for the Scientific Study of Intellectual and Developmental Disabilities World Congress; and (3) a final feedback round.This consensus statement provides researchers with guidelines, agreed upon by experts in the field, regarding attributes, potential outcomes, reporting and publishing, and future research directions, for designing and conducting inclusive health research.Consensus was reached on how to design and conduct inclusive health research. However, this statement should be continuously adapted to incorporate recent knowledge. The focus of this consensus statement is largely on inclusive health research, but the principles can also be applied to other areas

The Impact of Emotional Abuse on Psychological Distress among Child Protective Services-Involved Adolescents with Borderline-to-Mild Intellectual Disability

DOI 10.1080/19361521.2011.574677Childhood maltreatment is a robust contributing factor to mental health problems in adolescents. The current study examines the impact of childhood emotional abuse on adolescent psychological distress in 48 youths with borderline-to-mild intellectual disability (ID), as compared to 117 peers with average intellectual functioning. Both emotional abuse and intellectual functioning predicted the severity of youth psychological distress. Childhood emotional abuse has an impact on adolescent distress, and maltreated child welfare-involved youth with lower IQ levels may be more vulnerable to distress than youth with average IQ. This raises a question regarding the detection of subtle manifestations of ID and the need to attend to mental health within this sub-population receiving child welfare services.Ontario Mental Health Foundatio