Phase 1 pilot study of e-mail support for people with long term conditions using the Internet.

BACKGROUND: Use of the Internet for people with Long Term Conditions (LTCs) can have a positive effect on knowledge, social support, behavioural and clinical outcomes, yet there is concern that a 'digital divide' prevents some patients from benefitting. While some patients do not have access to the Internet, others that do may still lack expertise or the confidence to make full use of it. The aim of this pilot study was to develop an intervention and test methods for a definitive randomised controlled trial (RCT) of anonymous personal online email support for patients in this latter group. METHODS: Recruitment success was evaluated by the number and appropriateness of participants recruited. A personalised e-health support intervention was developed. The provisional primary outcome was the extent to which the Internet affected the participants' confidence in dealing with their LTC. Primary outcome, seven process measures and two secondary outcomes measures were evaluated for completeness of data and sensitivity to detect changes. RESULTS: Thirty nine participants were recruited, 29 after personally receiving a leaflet, seven via email advertising, and three via leaflets left in waiting areas. Most participants (61%) were aged over 60. The majority (21/38) rated themselves as experienced Internet users although only 5/38 had used discussion forums for their LTC. Piloting the intervention identified support needed as: (i) technical help with some websites, (ii) advice about issues such as anonymity, (iii) help in judging information quality, (iv) identification of relevant information (via 'Information Prescriptions'), (v) motivational support to try new sites. Attrition was fairly high: 20/39 completed follow up questionnaires. Three process measures showed ceiling effects and two had too many missing values to be useable. CONCLUSION: E-health support is a promising way of addressing the problems faced by older generation e-health seekers. Face-to-face leaflet distribution recruited sufficient numbers but additional locations other than hospital should be tried to recruit Internet novices with LTCs. An RCT is feasible and necessary to evaluate the potential benefits of anonymous email support. Our methods could be used by other researchers studying Internet use by people with LTCs

MAZI Deliverable Report D2.5: – Design, progress and evaluation of the Deptford CreekNet pilot (version 2)

In this deliverable, the second in a series of three, we report on progress in the Creeknet pilot. We describe progress towards tasks identified in the Description of Work (DoW) for Task 2.2, focusing on activities in Year 2 (2017: months 13-24) and look forward to Year 3. The Creeknet pilot consists of four phases. This year, our focus has been on consolidating initial contacts made in Year 1 (Phase 1), and continuing community engagement activities alongside carrying out an initial deployment of the MAZI toolkit with a number of engaged community groups and individuals (Phase 2). In the second half of the year, as the toolkit was developed and an integrated set of tool established these groups and others were invited to engage in further trials, and feedback was gathered to further inform onward development (Phase 3). We have continued with our efforts to build upon existing relationships in Deptford Creek and further afield to help us explore the different ways in which DIY networking in the broadest sense and the use of the MAZI toolkit in particular might help address local challenges. We have reassessed some of our foci through seeking out new opportunities for engagement and trialling the MAZI toolkit. A major activity was planning and running the two day MAZI London Cross-fertilisation symposium. This created the opportunity for Creeknet participants to share their experiences and engage with the other MAZI pilots, bringing together existing community contacts in Deptford Creek, and MAZI partners, and attracted new contributors. Through our activities, working with the emerging MAZI toolkit that evolved through several iterations during the year, we have better understood local circumstances and the complexity involved in the conceptualisation of ‘DIY networking’ - it cannot be assumed to be a single notion. We have identified that both social and technological concerns can restrict its uptake, and consider routes to overcoming these challenges. We provide analysis of work carried out so far, and look towards the future activities

Surveying Persons with Disabilities: A Source Guide (Version 1)

As a collaborator with the Cornell Rehabilitation Research and Training Center on Disability Demographics and Statistics, Mathematica Policy Research, Inc. has been working on a project that identifies the strengths and limitations in existing disability data collection in both content and data collection methodology. The intended outcomes of this project include expanding and synthesizing knowledge of best practices and the extent existing data use those practices, informing the development of data enhancement options, and contributing to a more informed use of existing data. In an effort to provide the public with an up-to-date and easily accessible source of research on the methodological issues associated with surveying persons with disabilities, MPR has prepared a Source Guide of material related to this topic. The Source Guide contains 150 abstracts, summaries, and references, followed by a Subject Index, which cross references the sources from the Reference List under various subjects. The Source Guide is viewed as a “living document,” and will be periodically updated

A Review of the Open Educational Resources (OER) Movement: Achievements, Challenges, and New Opportunities

Examines the state of the foundation's efforts to improve educational opportunities worldwide through universal access to and use of high-quality academic content

Applying Online: Technological Innovation for Income Support Programs in Four States

A study examining the development, implementation, and best practices for online applications for public benefits programs in California, Georgia, Pennsylvania, and Washington based on interviews with state agencies and community-based organizations

Issues Related to the Emergence of the Information Superhighway and California Societal Changes, IISTPS Report 96-4

The Norman Y. Mineta International Institute for Surface Transportation Policy Studies (IISTPS) at San José State University (SJSU) conducted this project to review the continuing development of the Internet and the Information Superhighway. Emphasis was placed on an examination of the impact on commuting and working patterns in California, and an analysis of how public transportation agencies, including Caltrans, might take advantage of the new communications technologies. The document reviews the technology underlying the current Internet “structure” and examines anticipated developments. It is important to note that much of the research for this limited-scope project was conducted during 1995, and the topic is so rapidly evolving that some information is almost automatically “dated.” The report also examines how transportation agencies are basically similar in structure and function to other business entities, and how they can continue to utilize the emerging technologies to improve internal and external communications. As part of a detailed discussion of specific transportation agency functions, it is noted that the concept of a “Roundtable Forum,” growing out of developments in Concurrent Engineering, can provide an opportunity for representatives from multiple jurisdictions to utilize the Internet for more coordinated decision-making. The report also included an extensive analysis of demographic trends in California in recent years, such as commute and recreational activities, and identifies how the emerging technologies may impact future changes

Important Lessons Derived from X.500 Case Studies

X.500 is a new and complex electronic directory technology, whose basic specification was first published as an international standard in 1988, with an enhanced revision in 1993. The technology is still unproven in many organisations. This paper presents case studies of 15 pioneering pilot and operational X.500 based directory services. The paper provides valuable insights into how organisations are coming to understand this new technology, are using X.500 for both traditional and novel directory based services, and consequently are deriving benefits from it. Important lessons that have been learnt by these X.500 pioneers are presented here, so that future organisations can benefit from their experiences. Factors critical to the success of implementing X.500 in an organisation are derived from the studies