Online Personal Data Processing and EU Data Protection Reform. CEPS Task Force Report, April 2013

This report sheds light on the fundamental questions and underlying tensions between current policy objectives, compliance strategies and global trends in online personal data processing, assessing the existing and future framework in terms of effective regulation and public policy. Based on the discussions among the members of the CEPS Digital Forum and independent research carried out by the rapporteurs, policy conclusions are derived with the aim of making EU data protection policy more fit for purpose in today’s online technological context. This report constructively engages with the EU data protection framework, but does not provide a textual analysis of the EU data protection reform proposal as such

Privacy and Accountability in Black-Box Medicine

Black-box medicine—the use of big data and sophisticated machine learning techniques for health-care applications—could be the future of personalized medicine. Black-box medicine promises to make it easier to diagnose rare diseases and conditions, identify the most promising treatments, and allocate scarce resources among different patients. But to succeed, it must overcome two separate, but related, problems: patient privacy and algorithmic accountability. Privacy is a problem because researchers need access to huge amounts of patient health information to generate useful medical predictions. And accountability is a problem because black-box algorithms must be verified by outsiders to ensure they are accurate and unbiased, but this means giving outsiders access to this health information. This article examines the tension between the twin goals of privacy and accountability and develops a framework for balancing that tension. It proposes three pillars for an effective system of privacy-preserving accountability: substantive limitations on the collection, use, and disclosure of patient information; independent gatekeepers regulating information sharing between those developing and verifying black-box algorithms; and information-security requirements to prevent unintentional disclosures of patient information. The article examines and draws on a similar debate in the field of clinical trials, where disclosing information from past trials can lead to new treatments but also threatens patient privacy

Taxonomy of Technological IT Outsourcing Risks: Support for Risk Identification and Quantification

The past decade has seen an increasing interest in IT outsourcing as it promises companies many economic benefits. In recent years, IT paradigms, such as Software-as-a-Service or Cloud Computing using third-party services, are increasingly adopted. Current studies show that IT security and data privacy are the dominant factors affecting the perceived risk of IT outsourcing. Therefore, we explicitly focus on determining the technological risks related to IT security and quality of service characteristics associated with IT outsourcing. We conducted an extensive literature review, and thoroughly document the process in order to reach high validity and reliability. 149 papers have been evaluated based on a review of the whole content and out of the finally relevant 68 papers, we extracted 757 risk items. Using a successive refinement approach, which involved reduction of similar items and iterative re-grouping, we establish a taxonomy with nine risk categories for the final 70 technological risk items. Moreover, we describe how the taxonomy can be used to support the first two phases of the IT risk management process: risk identification and quantification. Therefore, for each item, we give parameters relevant for using them in an existing mathematical risk quantification model

Systematizing Decentralization and Privacy: Lessons from 15 Years of Research and Deployments

Decentralized systems are a subset of distributed systems where multiple authorities control different components and no authority is fully trusted by all. This implies that any component in a decentralized system is potentially adversarial. We revise fifteen years of research on decentralization and privacy, and provide an overview of key systems, as well as key insights for designers of future systems. We show that decentralized designs can enhance privacy, integrity, and availability but also require careful trade-offs in terms of system complexity, properties provided, and degree of decentralization. These trade-offs need to be understood and navigated by designers. We argue that a combination of insights from cryptography, distributed systems, and mechanism design, aligned with the development of adequate incentives, are necessary to build scalable and successful privacy-preserving decentralized systems