131 research outputs found
The :-) and :-( of teaching on the web
I taught on the Web because of a beautiful Web site. One day while surfing, I came across the Cimarron County Historical Museum of Kansas site, which ran a permanent exhibition about the dust bowl. Through evocative photographs and diary extracts, the museum discussed how massive dust storms had pounded the Midwest in the 1930s
Remotely hosted services and 'cloud computing'
Emerging technologies for learning report - Article exploring potential of cloud computing to address educational issue
Estimating the Size and Structure of the Underground Commercial Sex Economy in Eight Major U.S. Cities
The underground commercial sex economy (UCSE) generates millions of dollars annually, yet investigation and data collection remain under resourced. Our study aimed to unveil the scale of the UCSE in eight major US cities. Across cities, the UCSE's worth was estimated between 290 million in 2007, but decreased since 2003 in all but two cities. Interviews with pimps, traffickers, sex workers, child pornographers, and law enforcement revealed the dynamics central to the underground commercial sex trade -- and shaped the policy suggestions to combat it
Computer science and technology : historiography VIII (9)
Moebius adaptations, Myst and Meme
Experiences and concerns of patients with recurrent attacks of acute hepatic porphyria: A qualitative study
Background: The acute hepatic porphyrias (AHPs) are rare inborn errors of heme biosynthesis, characterized clinically by life-threatening acute neurovisceral attacks. Patients with recurrent attacks have a decreased quality of life (QoL); however, no interactive assessment of these patients' views has been reported. We conducted guided discussions regarding specific topics, to explore patients' disease experience and its impact on their lives. / Methods: Sixteen AHP patients experiencing acute attacks were recruited to moderator-led online focus groups. Five groups (3–4 patients each) were conducted and thematic analyses to identify, examine, and categorize patterns in the data was performed. / Results: All patients identified prodromal symptoms that began days prior to acute severe pain; the most common included confusion (“brain fog"), irritability, and fatigue. Patients avoided hospitalization due to prior poor experiences with physician knowledge of AHPs or their treatment. All patients used complementary and alternative medicine treatments to avoid hospitalization or manage chronic pain and 81% reported varying degrees of effectiveness. All patients indicated their disease impacted personal relationships due to feelings of isolation and difficulty adjusting to the disease's limitations. / Conclusion: Patients with recurrent attacks recognize prodromal warning symptoms, attempt to avoid hospitalization, turn to alternative treatments, and have markedly impaired QoL. Counseling and individualized support is crucial for AHP patients with recurrent attacks
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