Designing video games for older adults and caregivers

Providing care for older adults is a challenging task, particularly when close family members are involved: instead of spending quality time with the other person, caregiving relationships often focus on daily needs of the older adult, leaving little room for persons to communicate outside the caregiving context. In this paper, we examine the design of interactive technologies to support caregiving relationships through play. We present an exploratory study where ten caregiving dyads played cooperative motion-based video games, and follow up with two case studies to analyze how video game play affects older adults and family caregivers. Our results show that playing games generally represents an enjoyable activity for older adults and caregivers that can be integrated into the caregiving context. Based on our findings, we highlight design opportunities, and outline core challenges that need to be addressed to design accessible games that provide positive shared experiences for a wide range of caregiving dyads

Seeing the wood for the trees. Carer related research and knowledge: A scoping review

This NIHR-SSCR funded scoping review provides a comprehensive mapping of what is known about carers and caring, and aims to help inform policy, practice and research in relation to carers. The review was undertaken by searching 10 electronic bibliographic databases, supplemented by additional web searches to identify academic research, grey literature and wider knowledge. The analysis adopts a selective thematic approach covering: carer variables - the characteristics of different types of carer and different caring situations; types of care - the nature of needs of the cared for person and the features of the care situation; the impact of caring – resilience and coping, employment and health; and carer support and needs assessment. The final section highlights key messages identified from the review. It found that caring involves all sections and age groups of the population, with people are likely to experience one or more periods of caregiving over their lifetime. The uniqueness of each caring relationship is also highlighted. In relation to types of carers, knowledge about ‘hard to reach’ groups, such as BAME and LGBT carers, remains sparse. Older carers are also relatively invisible in policy and research terms. It found that much of the knowledge about carers identified in the review relates to their characteristics, their lived experience and the nature of their caregiving, with relatively less being known about the effectiveness of interventions to support them. The report concludes by offering suggestions for policy and practice. An appendix provides a bibliography of the 3,434 items identified in review, classified into 17 types of reference

The Assessment of Senior-Level Nursing Students’ Knowledge Regarding Informal Caregiver Role Strain and the Presence of Role Strain in Informal Caregivers of Dementia Patients

The goal of this study was to assess senior-level nursing students’ knowledge of informal caregivers of dementia patients, their confidence in their ability to work with informal caregivers, and how well they believe their nursing program prepared them to assist informal caregivers. Seventeen (n = 17) Bachelor of Science (BSN) nursing students participated in the study. A twenty-four-question survey was emailed to both junior- and senior-level students in the five-semester BSN program at the University of Southern Mississippi (USM). Responses from students of different levels were collected to determine if an accurate understanding of informal caregivers of dementia patients was more prevalent in senior-level students when compared to junior-level students. The survey included a total of four question sets. The first question set required students to select the semester of the BSN program in which they were enrolled at the time of taking the survey. After selecting their semester within the program, students were asked five questions regarding their attitude towards caregivers, five multiple-choice questions assessing the accuracy of their knowledge of caregivers, eight questions focusing on their beliefs on nurses’ role when working with caregivers, and five questions determining how well they felt their BSN program had prepared them to support caregivers. The majority of study participants believed they were well-prepared to collaborate with informal caregivers in clinical practice. However, the students’ responses to the multiple-choice questions assessing the accuracy of their knowledge indicate that further education on informal caregivers of dementia patients may be required

Rethinking Visiting Friends and Relatives Mobilities

The increasing number of people leading more mobile lives, with spatially dispersed families, raises questions over how they maintain their family life and friendships, and how this is shaped and shapes different forms of migration, and different patterns of Visiting Friends and Relatives (VFR). This paper develops an explanatory framework for conceptualizing and analyzing VFR mobilities, seeking to draw together threads from migration, mobilities and tourism studies. In unpacking the notion of VFR, this paper understands VFR mobilities as being constituted of diverse practices, and discusses five of the most important of these: social relationships, the provision of care, affirmations of identities and roots, maintenance of territorial rights, and leisure tourism. While these five types of practices are considered sequentially in this paper, they are in practice often blurred and overlapping. The interweaving of these practices changes over time, as does the meaning and content of individual practices, reflecting changes in the duration of migration, life cycle stage, individual goals and values, and the broader sets of relationships with and social obligations to different kin and friends

Radical Support: Understanding Doula Work as Resistance to Routinized Violence

Continuous support during labor has been demonstrated to have positive effects on maternal and infant health, as well as improving birth experiences. The benefits of doula support are particularly important for improving the maternal and infant health outcomes for Black pregnant individuals and others facing health inequities. The role of doulas in addressing the Black maternal health crisis motivates this study of the underlying mechanisms through which doulas support clients and operate within hospital settings to create positive outcomes. An online survey was used to understand the perspectives of doulas on the Black maternal health crisis and the strategies they use to support clients. Another survey was distributed to maternal care providers to assess their opinion on doula work as well as on the Black maternal health crisis. Interviews with doulas and a midwife were conducted, along with participant-observation in a doula training course. This thesis analyzes support as a radical underpinning of doula practice and distinguishes supportive practices from care. Specifically, this thesis unpacks how doulas operationalize and mediate the presence of their client (particularly BIPOC/low-income clients), providers, and themselves within hospital spaces in order to support their client. By interrogating the knowledge systems employed by doulas in different contexts, this thesis explores the importance of both alternative and biomedical knowledge systems in operationalizing doula support. Ultimately, this thesis critically engages with legislative efforts to address the Black maternal health crisis through doula work by analyzing the consequences of institutionalization on these radical underpinnings of doula practice

Crossing the digital divide : family caregivers' acceptance of technology

The purpose of this pilot project was to collect data on how electronic technology might be used to assist family members who are caring for a relative with dementia at home. In Phase 1, we conducted five focus groups with 26 caregivers of relatives with dementia to document the specific challenges faced by caregivers and assess their access to, and familiarity with, electronic technology. In Phase 2, a technology-based solution B the Xanboo Smart House Management System B was identified. The System allows monitoring of a residence through placement and control of video cameras and other enabled devices, including sensors that detect motion, the presence of water, or noise. Sensors may be set to provide a caregiver or other interested party with immediate notification by e-mail, pager, or text messaging cell phone. In Phase 3, a household was outfitted with The System and two focus groups comprised of 8 caregivers to relatives with dementia were conducted to evaluate its utility. The report concludes with an annotated bibliography on technology and aging, with special focus on caring for a relative with dementia. Key Findings: Caregivers and the relatives for whom they provide care are in an evolving struggle to maintain continuity of roles, relationships, and lifestyles. Challenges include the safety of the individual with dementia and keeping geographically distant family members aware of their relative s condition. Caregivers used a range of technologies in their day-to-day lives, including low- tech solutions to challenges in caregiving. Caregivers felt strongly that technological solutions were neither appropriate nor useful across all situations, and were cognizant of the inherent trade-off between safety on the one hand and dignity, respect, privacy, and desires for independence and autonomy on the other hand. Caregivers do not aspire to become technology whizzes ; rather, they are interested in easily obtained, affordable, easy to use, solutions to some of the challenges they face. An affordable, easy to use, off the shelf, monitoring system (The System) was identified. Caregivers attitudes regarding The System were generally quite positive. When prompted to identify barriers to using The System, caregivers identified the need for a computer and Internet access, and cost. Conclusions: The results from this pilot project suggest that there are affordable technologies that can assist family members in their efforts to care for relatives with dementia at home, and that these caregivers were amenable to the use of these technologies. Future efforts should evaluate the installation, use, and impact of The System in the homes of family caregivers to relatives with dementia

The experiences, needs and outcomes for carers of people with dementia: Literature Review

This literature review was conducted as part of my role at the Association of Dementia Studies, University of Worcester.RSAS is developing new and innovative ways of supporting carers, people living with dementia and their families. The charity aims to enhance the health and well-being of carers through providing services that increase their knowledge and understanding of dementia, further enhances their caring skills and provides supportive and therapeutic services to them. This literature review provides an up-to-date review concerning the evidence in relation to the following questions: 1 What is the experience of caregiving for a person living with dementia, and in what context does caregiving take place? 2 What implications does caregiving have for the person/family member involved in caregiving and the person with dementia? 3 What is currently known about the factors that protect or increase the risk of poor outcomes in caregiving? 4 What evidence is there for interventions to support family caregiving and reduce the risk of poor outcomes and how is this delivered in relation to: a Information and Education b Multi-component, psycho-educational interventions c Psychological Interventions d Peer support and other social interventions e Assistive technology and new media 5 What form of service provision is required to support family caregivers? This will include consideration of such issues as: a How might a service be delivered? b What factors will influence delivery including location, design, accessibility and flexibility? 6 Who will the service be for and how can family caregivers be supported to engage with the service

Caring through a screen: caring for kin under lockdown

COVID-19 and UK-wide lockdown measures in spring 2020 confined people to their homes, with implications for exchanging care. In a small-scale qualitative study, I examined the impact on individuals’ everyday caring practices with adult kin beyond the home. In this article, drawing on empirical evidence from my study, I argue that lockdown restrictions on in-person interactions and the increased reliance on ICTs shaped interactions and how relationships were experienced. The shift in practices highlighted the significance of the physicality and embodiment of everyday practices of care and perceptions of relationships. I argue that ‘caring through a screen’ under lockdown had impacts on subjective and relational wellbeing. I use the concept of developing co-presence across distance through ICTs to analyse shifts in family caring practices in the unique context of a national lockdown. I show how experiences of the disruption of the physicality of everyday micro-acts of care have shaped perceptions of family relationships

State of the World's Fathers: 2015

Fathers' involvement in their children's lives has been linked to higher cognitive development and school achievement, better mental health for boys and girls, and lower rates of delinquency in sons. Studies in multiple countries have shown that fathers' interaction is important for the development of empathy and social skills in sons and daughters.The SOWF report states that to achieve full gender equality and maximum wellbeing for children, we must move beyond rigid, limiting definitions of fatherhood and motherhood. This is not just a question of encouraging men to be nurturing and caring but rather an issue of social and economic justice. The report states that changes are needed in policies, in systems and institutions, among service providers, within programming and within data collection and analysis efforts. A lack of supportive policies such as paternity leave for new fathers helps cause an imbalance between mothers and fathers. This causes women to miss out on opportunities for work and income, children to miss out on having an involved father, and men to miss out on the positive benefits of involved fatherhood