Readability of cancer clinical trial websites

Clinical trials are critically important for the development of new cancer treatments. According to recent estimates, however, clinical trial enrollment is only about 8%. Lack of patient understanding or awareness of clinical trials is one reason for the low rate of participation. The purpose of this observational study was to evaluate the readability of cancer clinical trial websites designed to educate the general public and patients about clinical trials. Nearly 90% of Americans use Google to search for health-related information. We conducted a Google Chrome Incognito search in 2018 using the keywords "cancer clinical trial" and "cancer clinical trials." Content of the 100 cancer clinical trial websites was analyzed using an online readability panel consisting of Flesch-Kincaid Grade Level, Flesch Reading Ease, Gunning-Fog Index, Coleman-Liau Index, and Simple Measure of Gobbledygook scales. Reading level difficulty was assessed and compared between commercial versus non-commercial URL extensions. Content readability was found to be "difficult" (10.7 grade level). No significant difference in readability, overall, and between commercial and non-commercial URL extensions was found using 4/5 measures of readability; 90.9% of commercial versus 49.4% of non-commercial websites were written at a >10th grade (P = .013) using Gunning-Fog Index. Written cancer clinical trials content on the Internet is written at a reading level beyond the literacy capabilities of the average American reader. Improving readability to accommodate readers with basic literacy skills will provide an opportunity for greater comprehension that could potentially result in higher rates of clinical trial enrollment

EXPLORING HEALTH WEBSITE USERS BY WEB MINING

Indiana University-Purdue University Indianapolis (IUPUI)With the continuous growth of health information on the Internet, providing user-orientated health service online has become a great challenge to health providers. Understanding the information needs of the users is the first step to providing tailored health service. The purpose of this study is to examine the navigation behavior of different user groups by extracting their search terms and to make some suggestions to reconstruct a website for more customized Web service. This study analyzed five months’ of daily access weblog files from one local health provider’s website, discovered the most popular general topics and health related topics, and compared the information search strategies for both patient/consumer and doctor groups. Our findings show that users are not searching health information as much as was thought. The top two health topics which patients are concerned about are children’s health and occupational health. Another topic that both user groups are interested in is medical records. Also, patients and doctors have different search strategies when looking for information on this website. Patients get back to the previous page more often, while doctors usually go to the final page directly and then leave the page without coming back. As a result, some suggestions to redesign and improve the website are discussed; a more intuitive portal and more customized links for both user groups are suggested

The Role of Tasks in the Internet Health Information Searching of Chinese Graduate Students

The purpose of the study was to examine the relationships between types of health information tasks and the Internet information search processes of Chinese graduate students at the University of North Texas. the participants' Internet information search processes were examined by looking at the source used to start the search, language selection, use of online translation tools, and time spent. in a computer classroom, 45 Chinese graduate students searched the Internet and completed three health information search tasks: factual task, interpretative task, and exploratory task. Data of the Chinese graduate students’ health information search processes were gathered from Web browser history files, answer sheets, and questionnaires. Parametric and non-parametric statistical analyses were conducted to test the relationships between the types of tasks and variables identified in the search process. Results showed that task types only had a statistically significant impact on the time spent. for the three tasks, the majority of Chinese graduate students used search engines as major sources for the search starting point, utilized English as the primary language, and did not use online translation tools. the participants also reported difficulties in locating relevant answers and recommended ways to be assisted in the future when searching the Internet for health information. the study provided an understanding of Chinese graduate students' health information seeking behavior with an aim to enrich health information user studies. the results of this study contribute to the areas of academic library services, multilingual health information system design, and task-based health information searching

Exploring User Navigation during Online Health Information Seeking

Understanding online user behavior is essential for designing user-friendly consumer health Web sites. Transaction log analysis (TLA) provides a way to extract aggregate data about online behavior. This paper describes prevalent user navigation trends using TLA methods at ClinicalTrials.gov. Preliminary results suggest that users typically access low-level pages directly from Web-based search engines and consumer health sites/portals. A pilot user study is presented to illustrate a complementary research method that might be integrated with TLA to provide a multidimensional view of online health information-seeking behavior. Implications of the observed navigation behavior on the design of consumer health Web sites from TLA and users studies are discussed