Alcuni abstract di articoli che trattano argomenti relativi all'eHealth

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Adoption of Free Open Source Geographic Information System Solution for Health Sector in Zanzibar Tanzania

\ud The study aims at developing in-depth understanding on how Open Source Geographic Information System technology is used to provide solutions for data visualization in the health sector of Zanzibar, Tanzania. The study focuses on implementing the health visualization solutions for the purpose of bridging the gap during the transition period from proprietary software to the Free Open-Source Software using Key Indicator Data System. The developed tool facilitates data integration between the two District Health Information Software versions and hence served as a gateway solution during the transition process. Implementation challenges that include outdated spatial data and the reluctance of the key users in coping with the new Geographical Information System technologies were also identified. Participatory action research and interviews were used in understanding the requirements for the new tool to facilitate the smooth system development for better health service delivery.\u

A participatory approach for digital documentation of Egyptian Bedouins intangible cultural heritage

The Bedouins of Egypt hold a unique intangible cultural heritage (ICH), with distinct cultural values and social practices that are rapidly changing as a consequence of having settled after having been nomadic for centuries. We present our attempt to develop a bottom-up approach to document Bedouin ICH. Grounded in participatory design practices, the project purpose was two-fold: engaging Egyptian Engineering undergraduates with culturally-distant technology users and introducing digital self-documentation of ICH to the Bedouin community. We report the design of a didactic model that deployed the students as research partners to co-design four prototypes of ICH documentation mobile applications with the community. The prototypes reflected an advanced understanding for the values to the Bedouins brought by digital documentation practices. Drawing from our experience, three recommendations were elicited for similar ICH projects. Namely, focusing on the community benefits; promoting motivation ownership, and authenticity; and pursuing a shared identity between designers and community members. These guidelines hold a strong value as they have been tested against local challenges that could have been detrimental to the project

Webinars as a Knowledge Sharing Platform for eHealth in South and Southeast Asia

Setting up fully functional national eHealth systems is a challenge. Developing eHealth capacities in Asia can be achieved through distance learning such as webinars. The Asia eHealth Information Network (AeHIN) is a community of about 900 professionals in South and Southeast Asia, convened as a peer group dedicated to strengthening local health systems through the use of information and communications technology. It organised the AeHIN Hour held twice monthly as a venue for knowledge sharing. This paper will describe and analyse the context, inputs, processes and products of the AeHIN Hour webinars implemented over 47 months. Data is analysed through review of literature and AeHIN Hour technical reports. Analysis revealed that the AeHIN Hour provides individuals with a platform to learn and establish connections with other experts and like-minded individuals who could assist them in their current health system strengthening efforts. AeHIN paves the way for countries to recognise challenges and issues they face which are important for substantiating existing technical assistance. Shared interests among stakeholders sustain the activity. Management of the AeHIN Hour should be strengthened in order to maximise its value in building capacities among country-level actors who would shape the course of health systems strengthening

Visions and Challenges in Managing and Preserving Data to Measure Quality of Life

Health-related data analysis plays an important role in self-knowledge, disease prevention, diagnosis, and quality of life assessment. With the advent of data-driven solutions, a myriad of apps and Internet of Things (IoT) devices (wearables, home-medical sensors, etc) facilitates data collection and provide cloud storage with a central administration. More recently, blockchain and other distributed ledgers became available as alternative storage options based on decentralised organisation systems. We bring attention to the human data bleeding problem and argue that neither centralised nor decentralised system organisations are a magic bullet for data-driven innovation if individual, community and societal values are ignored. The motivation for this position paper is to elaborate on strategies to protect privacy as well as to encourage data sharing and support open data without requiring a complex access protocol for researchers. Our main contribution is to outline the design of a self-regulated Open Health Archive (OHA) system with focus on quality of life (QoL) data.Comment: DSS 2018: Data-Driven Self-Regulating System

Distributed Development to Enable User Participation: Multilevel design in the HISP network

Through the study of a long term, globally targeted effort to design health information systems in the Global South, we explore challenges to distributed participation within and across countries, and describe efforts at addressing these. Networked action research projects can enable pooling of resources, skills, best practices and tools, and cross-country collaboration does not have to preclude local ownership, as illustrated by the case material in this article. We highlight specifically the need for circulation of people, artefacts, and standards, to both support local practices and foster the capacity of all stakeholders to take active part in the design and implementation of information systems. The deep effects of global technological change call for a multilevel approach bridging local implementations with global research and participatory design efforts and co-evolution of standardised tools

Where can teens find health information? A survey of web portals designed for teen health information seekers

The Web is an important source for health information for most teens with access to the Web (Gray et al, 2005a; Kaiser, 2001). While teens are likely to turn to the Web for health information, research has indicated that their skills in locating, evaluating and using health information are weak (Hansen et al, 2003; Skinner et al, 2003, Gray et al, 2005b). This behaviour suggests that the targeted approach to finding health information that is offered by web portals would be useful to teens. A web portal is the entry point for information on the Web. It is the front end, and often the filter, that users must pass through in order to link to actual content. Unlike general search engines such as Google, content that is linked to a portal has usually been pre-selected and even created by the organization that hosts the portal, assuring some level of quality control. The underlying architecture of the portal is structured and thus offers an organized approach to exploring a specific health topic. This paper reports on an environmental scan of the Web, the purpose of which was to identify and describe portals to general health information, in English and French, designed specifically for teens. It answers two key questions. First of all, what portals exist? And secondly, what are their characteristics? The portals were analyzed through the lens of four attributes: Usability, interactivity, reliability and findability. Usability is a term that incorporates concepts of navigation, layout and design, clarity of concept and purpose, underlying architecture, in-site assistance and, for web content with text, readability. Interactivity relates to the type of interactions and level of engagement required by the user to access health information on a portal. Interaction can come in the form of a game, a quiz, a creative experience, or a communication tool such as an instant messaging board, a forum or blog. Reliability reflects the traditional values of accuracy, currency, credibility and bias, and in the web-based world, durabililty. Findability is simply the ease with which a portal can be discovered by a searcher using the search engine that is most commonly associated with the Web by young people - Google - and using terms related to teen health. Findability is an important consideration since the majority of teens begin their search for health information using search engines (CIBER, 2008; Hansen et al, 2003). The content linked to by the portals was not evaluated, nor was the portals’ efficacy as a health intervention. Teens looking for health information on the Web in English have a wide range of choices available but French-language portals are much rarer and harder to find. A majority of the portals found and reviewed originated from hospitals, associations specializing in a particular disease, and governmental agencies, suggesting that portals for teens on health related topics are generally reliable. However, only a handful of the portals reviewed were easy to find, suggesting that valuable resources for teens remain buried in the Web

Making sense of assets: Community asset mapping and related approaches for cultivating capacities

This working paper critically reviews some main aspects from asset based approaches highlights key strengths and weaknesses for future research/development. Drawing on a large body of reports and relevant literature we draw on different theoretical traditions and critiques, as well as practices and processes embedded within a broad range of approaches including, widely acknowledged frameworks such Asset Based Community Development (ABCD), Appreciative Inquiry (AI), Sustainable Livelihood Approaches (SLA) and Community Capitals Framework (CCF). Although these are presented as distinct approaches, there is a sense of evolution through them and many of them overlap (in terms of both theories and methodologies). We also include emerging frameworks, including geographical, socio-spatial, visual and creative approaches, stemming from a number of projects within AHRC’s Connected Communities programme and additional collaborations

Inside a Digital Experiment: Co-producing Telecare Services for Older People

The problem of the user remains central to information systems research and practice, more so given the importance now given to user-led innovation. Telecare is a much-vaunted example of e-enabled health and social care which, over the past decade or more has received considerable policy attention and investment in Europe and beyond. However, it appears that the technological opportunities offered have not been taken-up in everyday practice and that the engagement of users—service providers and end users—has been identified as a major barrier. This article presents the experience of a European level project that sought to use a form of co-production to engage users in the development of a telecare system for older people. The outcome was a platform with infrastructural properties and a service-orientated architecture better able to support subsequent innovation in use