A customisable pipeline for continuously harvesting socially-minded Twitter users

On social media platforms and Twitter in particular, specific classes of users such as influencers have been given satisfactory operational definitions in terms of network and content metrics. Others, for instance online activists, are not less important but their characterisation still requires experimenting. We make the hypothesis that such interesting users can be found within temporally and spatially localised contexts, i.e., small but topical fragments of the network containing interactions about social events or campaigns with a significant footprint on Twitter. To explore this hypothesis, we have designed a continuous user profile discovery pipeline that produces an ever-growing dataset of user profiles by harvesting and analysing contexts from the Twitter stream. The profiles dataset includes key network and content-based users metrics, enabling experimentation with user-defined score functions that characterise specific classes of online users. The paper describes the design and implementation of the pipeline and its empirical evaluation on a case study consisting of healthcare-related campaigns in the UK, showing how it supports the operational definitions of online activism, by comparing three experimental ranking functions. The code is publicly available.Comment: Procs. ICWE 2019, June 2019, Kore

Culture and disaster risk management - stakeholder attitudes during Stakeholder Assembly in Lisbon, Portugal

This report provides a summary of the topics discussed and the results of the third CARISMAND Stakeholder Assembly conducted in Lisbon, Portugal on 27-28 February 2018. In order to promote cross-sectional knowledge transfer and gather a variety of attitudes and perceptions, as in the first and second CARISMAND Stakeholder Assemblies held in Romania and Italy in the previous years, the audience consisted of a wide range of practitioners who are typically involved in disaster management, e.g., civil protection, the emergency services, paramedics, nurses, environmental protection, Red Cross, firefighters, military, and the police. Further, these practitioners were from several regions in Portugal, including the island of Madeira. The 40 participants were recruited via invitations sent to various Portuguese organisations and institutions, and via direct contacts of the Civil Protection Department in Lisbon which is one of the partners in the CARISMAND consortium. The event consisted of a mix of presentations and discussion groups to combine dissemination with information gathering (for the detailed schedule/programme see Appendix 1). Furthermore, this third Stakeholder Assembly was organised and specifically designed to discuss and collect feedback on a comprehensive set of recommendations for disaster practitioners, which will form one of the core elements of the CARISMAND Work Package 9 ‘Toolkit’. These recommendations, which have all been formulated on the basis of Work Packages 2-10 results, were structured in four, main “sets”: 1. Approaches to ethnicity in disaster management; 2. Culturally aware disaster-related training activities; 3. Cultural factors in disaster communication, with the sub-sets: a. Cultural values and emotions; (cross-)cultural symbols; “physical” aides and methods; b. Involvement of cultural leaders; involvement of specific groups; usage of social media and mobile phone apps; and 4. Improving trust, improving disaster management. In an initial general assembly, the event started with presentations of the CARISMAND project and its main goals and concepts, including the concept of culture adopted by CARISMAND, and the planned CARISMAND Toolkit architecture and functionalities. These were followed by a detailed presentation of the first of the above mentioned sets of recommendations for practitioners. Then, participants of the Stakeholder Assembly were split into small groups in separate breakout rooms, where they discussed and provided feedback to the presented recommendations. Over the course of the 2-day event, this procedure was followed for all four sets of recommendations. To follow the cyclical design of CARISMAND events, and wherever meaningful and possible, the respective Toolkit recommendations for practitioners provided also the basis for a respective “shadow” recommendation for citizens which will be discussed accordingly in the last round of CARISMAND Citizen Summits (Citizen Summit 5 in Lisbon, and Citizen Summit 6 in Utrecht) in 2018. The location of the Third Stakeholder Assembly was selected to make use of the extensive local professional network of the Civil Protection Department in Lisbon, but also due to Portugal being a traditional “melting pot” where, over more than a millennium, people from different cultural backgrounds and local/ethnical origins (in particular Africa, South America, and Europe) have lived both alongside and together. All documents related to the Working Groups, i.e. discussion guidelines and consent forms, were translated into Portuguese. Accordingly, all presentations, as well as the group discussions were held in Portuguese, aiming to avoid any language/education-related access restrictions, and allowing participating practitioners to respond intuitively and discuss freely in their native language. For this purpose, simultaneous interpreters and professional local moderators were contracted via a local market research agency (EquaçãoLógica), which also provided the basic data analysis of all Working Group discussions and an independent qualitative evaluation of all recommendations presented in the event. The results of this analysis and evaluation will demonstrate that most recommendations were seen by the participating practitioners to be relevant and useful. In particular, those recommendations related to the use of cultural symbols and the potential of mobile phone apps and/or social media were perceived as stimulating and thought-provoking. Some recommendations were felt to be less relevant in the specific Portuguese context, but accepted as useful in other locations; a very small number was perceived to be better addressed to policy makers rather than practitioners. These and all other suggestions for improvement of the presented CARISMAND Toolkit recommendations for practitioners have been taken up and will be outlined in the final chapter of this report.The project was co-funded by the European Commission within the Horizon2020 Programme (2014-2020).peer-reviewe

Credibility of Health Information and Digital Media: New Perspectives and Implications for Youth

Part of the Volume on Digital Media, Youth, and Credibility. This chapter considers the role of Web technologies on the availability and consumption of health information. It argues that young people are largely unfamiliar with trusted health sources online, making credibility particularly germane when considering this type of information. The author suggests that networked digital media allow for humans and technologies act as "apomediaries" that can be used to steer consumers to high quality health information, thereby empowering health information seekers of all ages

User interface design for mobile-based sexual health interventions for young people: Design recommendations from a qualitative study on an online Chlamydia clinical care pathway

Background: The increasing pervasiveness of mobile technologies has given potential to transform healthcare by facilitating clinical management using software applications. These technologies may provide valuable tools in sexual health care and potentially overcome existing practical and cultural barriers to routine testing for sexually transmitted infections. In order to inform the design of a mobile health application for STIs that supports self-testing and self-management by linking diagnosis with online care pathways, we aimed to identify the dimensions and range of preferences for user interface design features among young people. Methods: Nine focus group discussions were conducted (n=49) with two age-stratified samples (16 to 18 and 19 to 24 year olds) of young people from Further Education colleges and Higher Education establishments. Discussions explored young people's views with regard to: the software interface; the presentation of information; and the ordering of interaction steps. Discussions were audio recorded and transcribed verbatim. Interview transcripts were analysed using thematic analysis. Results: Four over-arching themes emerged: privacy and security; credibility; user journey support; and the task-technology-context fit. From these themes, 20 user interface design recommendations for mobile health applications are proposed. For participants, although privacy was a major concern, security was not perceived as a major potential barrier as participants were generally unaware of potential security threats and inherently trusted new technology. Customisation also emerged as a key design preference to increase attractiveness and acceptability. Conclusions: Considerable effort should be focused on designing healthcare applications from the patient's perspective to maximise acceptability. The design recommendations proposed in this paper provide a valuable point of reference for the health design community to inform development of mobile-based health interventions for the diagnosis and treatment of a number of other conditions for this target group, while stimulating conversation across multidisciplinary communities