Sickle Cell Anemia, Representations and Care: Experience of a Brother of a Sick Child in Cameroon

In Africa, families often with more than one child consult with both modern and traditional African medicine to treat their child with sickle cell anemia. This research aimed to understand how a child experiences both the medical and traditional care of his sister. We collected data from an interview and family drawing of a young boy growing up with an affected sister in Cameroon. Results showed this child persisted to feel as though his sister had fallen victim to a sorcerer and that he was at risk of the same fate even after the two of them received traditional treatment. He also felt neglected about his suffering because of his sister’s disease by hospital professionals that were caring for her. It is therefore necessary to establish a support system for affected children and their family by providing a safe space in hospitals where they can express and contain their experiences with the disease

La problématique de l'entre-deux et situation de polyhandicap : clinique du doute et du risque

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L'enfant, le handicap, le travail de pensée et le savoir

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Fratrie et polyhandicap. La personne poly handicapée

[No abstract

La riqueza del vínculo fraterno

El artículo analiza las vivencias de los hermanos de una persona con discapacidad, enmarcadas en el ámbito de la hermandad o fraternidad. A partir de anécdotas y reflexiones vividas, aborda con realismo y valentía cuestiones de enorme trascendencia para el futuro de sus vidas. Ofrece una serie de soluciones valiosas para todos: padres, hermanos, la propia persona con discapacidad

De la tragédie à l'épopée

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Parler du handicap aux enfants et entre enfants

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L'évaluation cognitive chez les personnes polyhandicapées

[No abstract

Intégration scolaire : point de vue subjectif des membres de la famille

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Naitre, grandir, vieillir avec un handicap

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