3 research outputs found
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Attitudes, knowledge and beliefs about dementia: focus group discussions with Pakistani adults in Karachi and Lahore
Pakistan is a lower middle-income country, which to date has had very little research and policy making to address the challenge of dementia. This study aims to explore the perceptions of dementia in a group of Pakistani adults. A series of Focus Group Discussions were completed during 2017 with men and women in two metropolitan centres in Pakistan (Lahore and Karachi) (n=40). Two vignettes, depicting someone with mild dementia and someone with severe dementia, were used to facilitate discussions. An induction led thematic analysis was completed. Five themes were identified, reflecting (i) dementia awareness, (ii) responsibility, (iii) barriers to healthcare, (iv) identified support needs, and (v) religion. Most participants had little awareness and knowledge about dementia, commonly understood to be a disease of forgetting or just normal aging. Thus, there is an urgent need of a nation-wide campaign to raise dementia awareness in Pakistan, though this needs to be accompanied by improved, accessible health and social care services
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Excel calculator for the DEMQOL, DEMQOL-Proxy and DEMQOL-CH patient reported output measure.
This is an excel calculator for the DEMQOL, DEMQOL-Proxy and DEMQOL-CH to allow interested parties to use the instruments without the need for specialist software (e.g. SPSS). Open the calculator for instructions on how to use it.DEMQOL is a patient reported outcome measure (PROM) which is designed to enable the assessment health-related quality of life of people with dementia.It was developed according to best quality psychometric principles by a multidisciplinary team including BSMS, KCL, the London School of Hygiene and Tropical Medicine, the London School of Economics and Nottingham and Sheffield Universities. DEMQOL is designed to work across dementia subtypes and care arrangements and can be used at all stages of dementia. The measure consists of two questionnaires.1) DEMQOL is a 28 item interviewer-administered questionnaire answered by the person with dementia.2) DEMQOL-Proxy is a 31 item interviewer-administered questionnaire answered by a caregiver.In the majority of studies, DEMQOL and DEMQOL-Proxy are used together. Since its original development, the DEMQOL-CH has been adapted from the DEMQOL-Proxy for use within care homes to be completed by care home staff without interview. The DEMQOL-CH has the same items as the DEMQOL-Proxy, but the questionnaire formating has been adapted.See below link for more information about the calculator.</div
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Factors associated with dementia attitudes in an adolescent cohort: structural equation modelling
Dementia-related stigma is a key barrier to people living well with dementia, leading to social isolation and poor well-being. Adolescents represent an under-researched group that will become future carers and healthcare workers for the estimated 83.2 million people who will be living with dementia by 2030. Understanding the factors involved in dementia attitude formation in adolescents is useful for the development of evidence-based anti-stigma initiatives. This study aims to identify predictors of dementia attitudes in adolescents. This is a cross-sectional study using secondary data analysis. 470 participants aged 12β15 years old from secondary schools in the Southeast of England, United Kingdom completed validated questionnaires relating to dementia attitudes (KIDS and Brief A-ADS) as well as demographic information. Multiple regressions were employed as well as a path analysis via a structural equation model to test for direct and mediatory effects. Multiple regression models revealed that being female, having higher levels of contact with dementia, and higher levels of empathy are positively associated with dementia attitudes in adolescents (p<0.05). Within the accepted structural equation model, empathy was a key mediator between contact and dementia attitudes. This study highlights the pivotal role that contact with dementia can have in influencing dementia attitudes in adolescents with empathy serving as a mediator between contact and dementia attitudes. Interventions that use contact should consider how to stimulate empathetic responses to ultimately shape dementia attitudes.</p