1,351 research outputs found
The caregiving experiences of fathers and mothers of children with rare diseases in Italy: Challenges and social support perceptions
Family caregiving is a growing phenomenon with the increased prevalence of chronic illness and shorter hospitalizations. Rare diseases pose significant challenges not only to patients living with these kinds of pathologies but also to those who care for these patients. The caregiving role has specific characteristics. The present work aims to increase knowledge of the challenges that are common or specific to fathers and mothers of children diagnosed with a rare disease. Moreover, the paper analyses the kinds of social support they experience according to gender. A descriptive study was conducted using grounded theory methodology. A semi-structured interview with open-ended questions was conducted with 15 parents of children with a rare disease. The interview was organized into three main areas: personal experiences in caring for a child with a rare disease, family changes and perceived social support. The transcriptions were analyzed using NVivo 11 software. From data analysis, themes emerged regarding the challenges shared by fathers and mothers, but some aspects also emerged that were gender-specific. The analyses of differences between mothers' and fathers' narratives showed that there is a specific experience of the impact that caregiving has on parents' relationships with their jobs and on their worries. Self-help group is the main source of social support for all respondents. We discuss these findings in relation to possible appropriate specific interventions and support for family caregiving
A methodology for the sustainability assessment of agri-food systems: an application to the Slow Food Presidia project.
How could self-determination theory be useful for facing health innovation challenges?
This paper offers a presentation of the characteristics of self-determination theory (SDT) in the health context as well as attempts to identify how this theory could be useful for facing health innovation challenges. Health innovation is based on scientific advances that have more complex relationships with health. This paper encourages the use of the SDT approach to face health innovation, both for physiological and pathological processes. In particular, the focus is on the changes and lifestyle choices related to physiological pregnancy and birth and to oncological genetic tests in the Italian context. The health innovation paradigm focuses on patients taking responsibility for making important health-related choices, and we think that SDT can offer new stimuli in light of the changes implemented from innovations in the field of health. The aim is that this manuscript will stimulate researchers to test the potential of this theory in the field of changing health-related processes. Practitioners are called upon to revise their orientation toward patients and, according to SDT, they should support autonomy rather than control the promotion of health-related change
The Fully Frustrated Hypercubic Model is Glassy and Aging at Large
We discuss the behavior of the fully frustrated hypercubic cell in the
infinite dimensional mean-field limit. In the Ising case the system undergoes a
glass transition, well described by the random orthogonal model. Under the
glass temperature aging effects show clearly. In the case there is no sign
of a phase transition, and the system is always a paramagnet.Comment: Figures added in uufiles format, and epsf include
An indicator-based framework to evaluate sustainability of farming systems: review of applications in Tuscany
Replica Field Theory for Deterministic Models (II): A Non-Random Spin Glass with Glassy Behavior
We introduce and study a model which admits a complex landscape without
containing quenched disorder. Continuing our previous investigation we
introduce a disordered model which allows us to reconstruct all the main
features of the original phase diagram, including a low spin glass phase
and a complex dynamical behavior.Comment: 35 pages with uu figures, Roma 102
Tecnologias para produção de citros na propriedade de base familiar.
bitstream/item/78773/1/Documento-343.pd
Dynamical Behaviour of Low Autocorrelation Models
We have investigated the nature of the dynamical behaviour in low
autocorrelation binary sequences. These models do have a glass transition
of a purely dynamical nature. Above the glass transition the dynamics is not
fully ergodic and relaxation times diverge like a power law with close to . Approaching the glass transition
the relaxation slows down in agreement with the first order nature of the
dynamical transition. Below the glass transition the system exhibits aging
phenomena like in disordered spin glasses. We propose the aging phenomena as a
precise method to determine the glass transition and its first order nature.Comment: 19 pages + 14 figures, LateX, figures uuencoded at the end of the
fil
Single cell cloning and recombinant monoclonal antibodies generation from RA synovial B cells reveal frequent targeting of citrullinated histones of NETs
This work was funded by research grants from Arthritis Research UK
(grant 20089 to MB; grant 20858 to ECo; Arthritis Research UK Experimental
Arthritis Treatment Centre - grant 20022 to CP) and the William Harvey Research
Foundation (WHRF grant 2011–2013 to MB); Elisa Corsiero was recipient of
short-term travel fellowships from EMBO (ASTF 318-2010 and ASTF 102-2013
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