Unraveling ethics : illuminating the moral dilemmas of research ethics

This essay offers a critical, reflective analysis of some of the sticky moral questions that can entangle feminist researchers as they work to transform a research proposal into an application for ethics committee approval

The paradox of virtue : (re)thinking deviance, anorexia and schooling

In this paper we posit a radical retheorization of anorexia as a form of deviance. We examine how the disciplinary practices and moral technologies typical of contemporary secondary schooling signify and enter into the articulation of three &lsquo;virtue discourses&rsquo; (discipline, achievement and healthism), and tease out how these &lsquo;virtue discourses&rsquo; play into the formation of the &lsquo;anorexic&rsquo; subject. Informed by Foucauldian theory, our analysis draws on our life history interview study with teenage girls diagnosed with anorexia nervosa and their parents. We argue that anorexia can be understood not as a form of deviance but as a &lsquo;paradox of virtue&rsquo; involving zealous compliance with and taking up of socially and culturally sanctioned &lsquo;virtue discourses&rsquo; that are immanent in schooling and wider society.<br /

Disability Transitions Across the Life Course: Preliminary Data from Australia

The aim of this working paper is to present preliminary analyses of longitudinal data from Australia that addresses various aspects of the dynamic nature of disability over time. Disability research is dominated by cross-sectional studies that have examined the prevalence and correlates of disability at a particular point in time. As a result, little is known about the duration of disability or the factors that may be associated with disability offset. This reliance on cross-sectional data has served to reinforce the notion that disability once acquired is a relatively permanent state. In recent years, the increasing availability of longitudinal data (especially from well-constructed population-based surveys) has opened up new opportunities for disability research. These have included the possibility of investigating the dynamic nature of disability over time. The data presented in this working paper are based on analysis of ten years of data collected by the study of Household Income and Labour Dynamics in Australia (HILDA). Our analyses focused on the most recent consecutive five year period in which the study participants provided information on their disability status.Centre for Disability Research and Polic

LEFT BEHIND: 2013 MONITORING THE SOCIAL INCLUSION OF YOUNG AUSTRALIANS WITH SELF-REPORTED LONG TERM HEALTH CONDITIONS, IMPAIRMENTS OR DISABILITIES 2001 - 2011

Disabled Australian adolescents and young adults are more likely to experience social exclusion than their non-disabled peers. The gap between the two actually widened between 2001 and 2011. Social exclusion in adolescence leads to poor outcomes, such as lower educational achievement and unemployment, in adulthood. It affects not only the health and wellbeing of the individual; it also impacts on their family and the wider community. The inability of people with disabilities to participate socially and economically is a loss to the whole of society. This report maps the extent of social inclusion or exclusion of young disabled Australians, aged between 15 and 29, over the years 2001 to 2011. It found that although the social inclusion of young disabled Australians increased on a number of key indicators, the gap between disabled and non-disabled young Australians actually increased over the 11 year period. On 13 key indicators of social inclusion including employment, living in a jobless household, having support from family or friends in times of crisis and feeling safe, young disabled Australians are now more disadvantaged compared to their non-disabled peers than they were in 2001.Centre for Disability Research and Polic

LEFT BEHIND: MONITORING THE SOCIAL INCLUSION OF YOUNG AUSTRALIANS WITH SELF- REPORTED LONG TERM HEALTH CONDITIONS, IMPAIRMENTS OR DISABILITIES 2001 - 2009

Adolescents and young adults with disabilities are at heightened risk of social exclusion. Exclusion leads to poor outcomes in adulthood which in turn affects individuals’ health and wellbeing and that of their families and society through loss of productive engagement in their communities. Australia’s Social Inclusion Indicators Framework provides indices in domains of participation, resources and multiple and entrenched disadvantage to monitor and report on social inclusion. The Household Income and Labour Dynamics in Australia survey provides data over time on households in Australia. Using these tools we report here on the extent of social inclusion/exclusion of young disabled Australians over the past decade. Relative to their non-disabled peers, young disabled Australians are significantly less likely to do well on participation indicators.Centre for Disability Research and Polic

The Well-being of Children with Disabilities in the Asia Pacific Region: Analysis of UNICEF MICS 3 Survey Data from Bangladesh, Lao PDR, Mongolia and Thailand

In this report we have used data from the third round of UNICEF’s Multiple Indicator Cluster Surveys (MICS) conducted 2005-8 to describe the relative well-being of disabled and non-disabled children in four South Asian/Pacific countries: Bangladesh, Lao PDR, Mongolia and Thailand. Indicators of well-being were extracted to address issues such as the child’s right to education, health and a standard of living adequate for the child's physical, mental, spiritual, moral and social development. Our main findings were: In all four countries children with disabilities were markedly more disadvantaged than their non-disabled peers on the majority of the indicators available. In all four countries children with disabilities were markedly more disadvantaged than their non-disabled peers on indicators relating to the child’s right to education, health and an adequate standard of living. In all four countries there were notable differences between disabled children regarding the extent of disadvantage they faced. In both Bangladesh and Lao PDR, for example, children with sensory impairments fared particularly poorly. In Thailand, by contrast, children with cognitive delay fared particularly poorly. These data are important on three counts. First, they demonstrate the viability of using simple items in population surveys to identify and characterize the well-being of disabled children. Second, they add to the limited evidence base on the well-being of children with disabilities in low and middle income countries. Third, they illustrate the importance of disaggregating disability information by type of impairment. UNICEF is working to establish a rigorous and systematic process for collecting data about children with disabilities, preferably as part of all ongoing data collections about children and young people locally, at national level and globally. This is critical to ensuring disabled children are not invisible in attempts to monitor global progress in improving the lives of children. The MICS module despite some limitations was an excellent first step in collecting data on children with disabilities as: (1) MICS is one of the main vehicles for monitoring progress toward achievement of the Millennium Development Goals;4 and (2) there is a growing consensus that achieving the Millennium Development Goals and reducing global inequalities in health and well-being will not be possible unless attention is paid to the specific situation of children with disabilities and other vulnerable groups.Centre for Disability Research and Polic

An evaluation of safeguarding training across Hertfordshire and West Essex ICS: The SafeTE study : An evaluation study commissioned by Hertfordshire Safeguarding Adult Board and Safeguarding Children Partnership, Hertfordshire and West Essex Integrated Care System [ICS]

© 2024 The Author(s). This an open access work distributed under the terms of the Creative Commons Attribution Licence (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited

Recovery Assessment Scale - Domains and Stages (RAS-DS) Manual - Version 2

Manual to guide administration of the Recovery Assessment Scale - Domains and Stages (RAS-DS). The RAS-DS has 38 items or statements for the consumer to rate. It is a Likert scale with 4 rating categories for consumers to select from: “untrue”; “a bit true”; “mostly true” and “completely true”. The items have been divided into 4 recovery domains: Doing Things I Value (functional recovery); Looking Forward (personal recovery); Mastering My Illness (clinical recovery) and Connecting and Belonging (social recovery)

Nursing and eHealth: are we preparing our future nurses as automatons or informaticians?

The Education Working Group of IMIA NI present this thought provoking panel where the changing and challenging role of nursing will be explored within the information intensive eHealth arena. The session will be of interest to any nurse as the discussion will be driven by the objective of trying to understand how best to prepare nurses to be actively engaged in information and communication technology (ICT) developments that enhance care assessment, delivery, evaluation and audit. As a balance, the discussion will consider the increasing emergence of ‘nursing by numbers’ where risk assessment tools are used in an automatic way leaving little room for individual evidenced based care