Bands of the World - Brownsville High School Band snippet

Brief history of the Brownsville High School Band.https://scholarworks.utrgv.edu/renetorrespub/1010/thumbnail.jp

Approaches to Carrier Testing and Results Disclosure in Translational Genomics Research

Background: Clinical genome and exome sequencing (CGES) is primarily used to address specific clinical concerns by detecting risk of future disease, clarifying diagnosis, or directing treatment. Additionally, CGES makes possible the disclosure of autosomal recessive and X-linked carrier results as additional secondary findings, and research about the impact of carrier results disclosure in this context is needed. Methods: Representatives from 11 projects in the clinical sequencing exploratory research (CSER) consortium collected data from their projects using a structured survey. The survey focused on project characteristics, which variants were offered and/or disclosed to participants as carrier results, methods for carrier results disclosure, and project?specific outcomes. We recorded quantitative responses and report descriptive statistics with the aim of describing the variability in approaches to disclosing carrier results in translational genomics research projects. Results: The proportion of participants with carrier results was related to the number of genes included, ranging from 3% (three genes) to 92% (4,600 genes). Between one and seven results were disclosed to those participants who received any positive result. Most projects offered participants choices about whether to receive some or all of the carrier results. There were a range of approaches to communicate results, and many projects used separate approaches for disclosing positive and negative results. Conclusion: Future translational genomics research projects will need to make decisions regarding whether and how to disclose carrier results. The CSER consortium experience identifies approaches that balance potential participant interest while limiting impact on project resources

A First Look Into Users’ Perceptions of Facial Recognition in the Physical World

Facial recognition (FR) technology is being adopted in both private and public spheres for a wide range of reasons, from ensuring physical safety to providing personalized shopping experiences. It is not clear yet, though, how users perceive this emerging technology in terms of usefulness, risks, and comfort. We begin to address these questions in this paper. In particular, we conducted a vignette-based study with 314 participants on Amazon Mechanical Turk to investigate their perceptions of facial recognition in the physical world, based on thirty-five scenarios across eight different contexts of FR use. We found that users do not have a binary answer towards FR adoption. Rather, their perceptions are grounded in the specific contexts in which FR will be applied. The participants considered a broad range of factors, including control over facial data, the utility of FR, the trustworthiness of organizations using FR, and the location and surroundings of FR use to place the corresponding privacy risks in context. They weighed the privacy risks with the usability, security, and economic gain of FR use as they reported their perceptions. Participants also noted the reasons and rationals behind their perceptions of facial recognition, which let us conduct an in-depth analysis of their perceived benefits, concerns, and comfort with using this technology in various scenarios. Through this first systematic look into users’ perceptions of facial recognition in the physical world, we shed light on the tension between FR adoption and users’ concerns. Taken together, our findings have broad implications that advance the Privacy and Security community’s understanding of FR through the lens of users, where we presented guidelines for future research in these directions