8 research outputs found
Decision aids for randomised controlled trials : a qualitative exploration of stakeholders' views
Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions. Funding: This work was supported by personal fellowship award (to KG) from the Chief Scientist Office of the Scottish Governments Health and Social Care Directorates, grant number [PDF/09/01]. The Health Services Research Unit is supported by a core grant from the Chief Scientist Office of the Scottish Government Health and Social Care Directorates.Peer reviewedPublisher PD
Strengthening the ethical assessment of placebo-controlled surgical trials : three proposals
Peer reviewedPublisher PD
Determining information for inclusion in a decision-support intervention for clinical trial participation : A modified Delphi approach
Peer reviewedPostprin
āThe more you know, the more you realise it is really challenging to doā: tensions and uncertainties in person-centred support for people with long-term conditions
ACKNOWLEDGEMENTS We thank the health professionals who participated in this research and shared their experiences and insights. We thank Louise Cotterell and Bev Smith (Health Services Research Unit, University of Aberdeen) for administrative and clerical support, Darshan Patel and colleagues at the Health Foundation for wonderfully facilitative research management, and NJC Secretarial for transcribing services. This study was funded by the Health Foundation (grant reference 7209). Health Foundation staff took part in one of the knowledge exchange discussions at the end of the project, but played no role in the analysis or writing of this manuscript, for which the authors take full responsibility.Peer reviewedPublisher PD
Mental-physical multimorbidity treatment adherence challenges in Brazilian primary care : A qualitative study with patients and their healthcare providers
Acknowledgments We are greatful to all RDS-13 staff and patients without whom this study would not be possible. We would also like to thank Jennifer Jubileu, Sofia Madeira and Marcia Santos for conducting part of the interviews, and Professors Maria LĆŗcia Zanetti, Kelly Graziani Giacchero Vedana, and Pedro Fredemir Palha for their ongoing methodological advice Funding: The work of MR was funded by the Coordination of Superior Level Staff Improvement - Brazil (CAPES), through the Science without Borders Programme for Young Talent Attraction, Brazil (fellowship number: CSF-PAJT-88887.090476/2014-00). The work of CAO was funded by the CAPES (Finance Code 001).Peer reviewedPublisher PD
Decisions about treatment: interpretations of two measures of control by women having a hysterectomy
A number of authors have developed sets of role descriptions that have been used to classify patients' roles in decisions about their health care as either active, collaborative or passive. We explored the validity of two such measures. Twenty women who had recently had a hysterectomy described their experiences of treatment decision-making in their own words and picked role descriptions from the Control Preferences Scale (Degner, Sloan, J. Clin. Epidemiol. 45 (1992) 941) and Patient Preferences for Control measure (Bradley et al., Fam. Med. 28 (1996) 496), both phrased in the past tense to assess roles played. The women explained why they had picked particular role descriptions. We compared the women's selections from the two measures and considered the relationship between their narrative descriptions and the role descriptors they picked. Several women found it hard to find an appropriate role description among those they were offered. Some picked apparently conflicting statements from the two measures. The role classifications that would be made on the basis of the women's chosen role descriptions did not always seem appropriate when compared with their narrative descriptions of how treatment decisions were reached. Women gave a range of explanations for choosing the role descriptors that they did, and some women who picked different role descriptions gave similar explanations for doing so. These findings suggest that there are problems with the validity of some currently used measures of patients' participation in health care decision-making. Researchers need to pay more attention to the key features of participation in decision-making and develop measures that can distinguish between these.Decision-making Patient participation Control measures Hysterectomy