Proceedings of the 3rd Biennial Conference of the Society for Implementation Research Collaboration (SIRC) 2015: advancing efficient methodologies through community partnerships and team science

It is well documented that the majority of adults, children and families in need of evidence-based behavioral health interventionsi do not receive them [1, 2] and that few robust empirically supported methods for implementing evidence-based practices (EBPs) exist. The Society for Implementation Research Collaboration (SIRC) represents a burgeoning effort to advance the innovation and rigor of implementation research and is uniquely focused on bringing together researchers and stakeholders committed to evaluating the implementation of complex evidence-based behavioral health interventions. Through its diverse activities and membership, SIRC aims to foster the promise of implementation research to better serve the behavioral health needs of the population by identifying rigorous, relevant, and efficient strategies that successfully transfer scientific evidence to clinical knowledge for use in real world settings [3]. SIRC began as a National Institute of Mental Health (NIMH)-funded conference series in 2010 (previously titled the “Seattle Implementation Research Conference”; $150,000 USD for 3 conferences in 2011, 2013, and 2015) with the recognition that there were multiple researchers and stakeholdersi working in parallel on innovative implementation science projects in behavioral health, but that formal channels for communicating and collaborating with one another were relatively unavailable. There was a significant need for a forum within which implementation researchers and stakeholders could learn from one another, refine approaches to science and practice, and develop an implementation research agenda using common measures, methods, and research principles to improve both the frequency and quality with which behavioral health treatment implementation is evaluated. SIRC’s membership growth is a testament to this identified need with more than 1000 members from 2011 to the present.ii SIRC’s primary objectives are to: (1) foster communication and collaboration across diverse groups, including implementation researchers, intermediariesi, as well as community stakeholders (SIRC uses the term “EBP champions” for these groups) – and to do so across multiple career levels (e.g., students, early career faculty, established investigators); and (2) enhance and disseminate rigorous measures and methodologies for implementing EBPs and evaluating EBP implementation efforts. These objectives are well aligned with Glasgow and colleagues’ [4] five core tenets deemed critical for advancing implementation science: collaboration, efficiency and speed, rigor and relevance, improved capacity, and cumulative knowledge. SIRC advances these objectives and tenets through in-person conferences, which bring together multidisciplinary implementation researchers and those implementing evidence-based behavioral health interventions in the community to share their work and create professional connections and collaborations

BOHA

The BIRTH Oral History Archive (BOHA) is a public humanities project designed to collect first-hand stories of childbirth and pregnancy loss, capturing how birth stories are remembered and integrated into comprehensive life narratives. Participant Narrators engage in a multi-step interview process allowing narrators to construct the shape of their story, define the scope of the narrative timeline, and identify key events independently, thus acknowledging and prioritizing their authoritative knowledge. The medicalization of birth resulted in the marginalization of the embodied experience, leaving many birthing people without narrative authority over their own birth experience. The recollective process facilitates identity construction and allows individuals to continually integrate and evaluate the meaning of significant life events such as childbirth. Building on Annette Kuhn’s concept of “memory work,” the BOHA project and interview process prioritizes the (re)constructive meaning-making inherent in the act of retelling, allowing narrators to regain narrative authority. As a public humanities project, BOHA further positions participants within a meaningful continuum, reflecting the perpetual contemporary through community-driven priorities and values. Through their Archive birth stories Participant Narrators articulate key power dynamics throughout their pregnancy and birth experiences, and the ways these experiences and acts of revisitation have influenced their sense of self and their position within broader life continuums as well as the socio-cultural 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The BIRTH Oral History Archive: A Public Humanities Project

The BIRTH Oral History Archive (BOHA) is a public humanities project designed to collect first-hand stories of childbirth and pregnancy loss, capturing how birth stories are remembered and integrated into comprehensive life narratives. Participant Narrators engage in a multi-step interview process allowing narrators to construct the shape of their story, define the scope of the narrative timeline, and identify key events independently, thus acknowledging and prioritizing their authoritative knowledge. The medicalization of birth resulted in the marginalization of the embodied experience, leaving many birthing people without narrative authority over their own birth experience. The recollective process facilitates identity construction and allows individuals to continually integrate and evaluate the meaning of significant life events such as childbirth. Building on Annette Kuhn’s concept of “memory work,” the BOHA project and interview process prioritizes the (re)constructive meaning-making inherent in the act of retelling, allowing narrators to regain narrative authority. As a public humanities project, BOHA further positions participants within a meaningful continuum, reflecting the perpetual contemporary through community-driven priorities and values. Through their Archive birth stories Participant Narrators articulate key power dynamics throughout their pregnancy and birth experiences, and the ways these experiences and acts of revisitation have influenced their sense of self and their position within broader life continuums as well as the socio-cultural landscape.Master of Arts (MA)Liberal StudiesUniversity of Michigan-Flinthttp://deepblue.lib.umich.edu/bitstream/2027.42/192021/1/Wilson-Powers2023.pdfDescription of Wilson-Powers2023.pdf : thesi

Cancer Clinical Trials Recruitment and Retention Strategies for Black and African Americans with Breast, Lung, Prostate, Colorectal, or Multiple Myeloma Cancer: A Scoping Review Protocol

This project is funded by Genentech, Inc, 2020 Health Equity Innovations Fundhttp://deepblue.lib.umich.edu/bitstream/2027.42/167875/1/PAACT Scoping Review Protocol final.docxSEL

A Scoping Review of Strategies to Increase Black Enrollment and Retention in Cancer Clinical Trials

To address health disparities faced by Black patients with cancer, it is critical that researchers conducting cancer clinical trials (CCTs) equitably recruit and retain Black participants, develop strategies toward this aim, and document associated outcomes. This narrative scoping literature review, as part of a larger study, aimed to identify, describe, and categorize strategies and interventions intended to improve the recruitment and retention of Black participants with breast, lung, prostate, colorectal, or multiple myeloma cancer into CCTs. We conducted comprehensive searches in PubMed, Embase, Cochrane Library, PsycInfo, CINAHL, Scopus, and Web of Science with three main concepts: Black persons, neoplasms, and clinical trial recruitment. The search resulted in 1,506 articles, of which 15 met inclusion criteria. Five main categories of recruitment and retention strategies and interventions were identified based on their specific population focus and type of approach: (1) participant identification, (2) provider awareness/resources, (3) focused research staff interventions, (4) patient and community-focused awareness strategies, and (5) participant-directed resources. Thirteen studies had recruitment acceptance rates of over 30%. Eight studies with acceptance rates of ≥ 50% reported implementing ≥ 5 strategies, with an average use of seven strategies across multiple categories. Five studies with acceptance rates ≥ 50% implemented strategies in ≥ 3 categories. Four studies reported retention rates ≥ 74%. Three studies with reported retention rates ≥ 74% used strategies in ≥ 3 categories, and all included strategies aimed at meeting participant needs beyond the study. Our results show that many efforts that aim to increase the recruitment and retention of Black participants into CCTs have great potential, but the most promising strategies use a multiprong approach

A Participatory, Mixed Methods Approach to Define and Measure Partnership Synergy in Long-standing Equity-focused CBPR Partnerships.

Understanding what contributes to success of community-based participatory research (CBPR) partnerships is essential to ensuring their effectiveness in addressing health disparities and health inequities. Synergy, the concept of accomplishing more together than separately, is central to partnership effectiveness. However, synergy specific to long-standing, equity-focused CBPR partnerships has not been closely examined. To address this, we defined and developed measures of partnership synergy as one dimension of a participatory mixed methods study, Measurement Approaches to Partnership Success (MAPS), to develop a validated instrument to measure success in long-standing CBPR partnerships. Framed by a conceptual model and scoping literature review, we conducted in-depth interviews with a national panel of academic and community experts in CBPR and equity to develop partnership synergy measures. Items were refined through an iterative process, including a three-stage Delphi process, comparison with existing measures, cognitive interviews, and pilot testing. Seven questionnaire items were developed to measure synergy arising from equitable partnerships bringing together diverse partners across power differences to promote equity. Defining and measuring synergy in the context of long-standing partnership success is central to understanding the role of synergy in collaborative approaches to research and action and can strengthen CBPR partnerships to promote healthy communities and advance health equity

A Participatory, Mixed Methods Approach to Define and Measure Partnership Synergy in Long- standing Equity- focused CBPR Partnerships

Understanding what contributes to success of community- based participatory research (CBPR) partnerships is essential to ensuring their effectiveness in addressing health disparities and health inequities. Synergy, the concept of accomplishing more together than separately, is central to partnership effectiveness. However, synergy specific to long- standing, equity- focused CBPR partnerships has not been closely examined. To address this, we defined and developed measures of partnership synergy as one dimension of a participatory mixed methods study, Measurement Approaches to Partnership Success (MAPS), to develop a validated instrument to measure success in long- standing CBPR partnerships. Framed by a conceptual model and scoping literature review, we conducted in- depth interviews with a national panel of academic and community experts in CBPR and equity to develop partnership synergy measures. Items were refined through an iterative process, including a three- stage Delphi process, comparison with existing measures, cognitive interviews, and pilot testing. Seven questionnaire items were developed to measure synergy arising from equitable partnerships bringing together diverse partners across power differences to promote equity. Defining and measuring synergy in the context of long- standing partnership success is central to understanding the role of synergy in collaborative approaches to research and action and can strengthen CBPR partnerships to promote healthy communities and advance health equity.HighlightsSynergy- accomplishing more together than alone- is central to effective collaborative partnerships.Measures of synergy specific to long- standing equity- focused CBPR partnerships are lacking.We developed a 7- item measure integrating knowledge from community- academic CBPR and equity experts.Evaluating synergy can strengthen CBPR partnership effectiveness to address health inequities.Fostering synergy will enhance CBPR partnership success to promote community health and equity.Peer Reviewedhttp://deepblue.lib.umich.edu/bitstream/2027.42/163783/1/ajcp12447_am.pdfhttp://deepblue.lib.umich.edu/bitstream/2027.42/163783/2/ajcp12447.pd

A Participatory, Mixed Methods Approach to Define and Measure Partnership Synergy in Long-standing Equity-focused CBPR Partnerships.

Understanding what contributes to success of community-based participatory research (CBPR) partnerships is essential to ensuring their effectiveness in addressing health disparities and health inequities. Synergy, the concept of accomplishing more together than separately, is central to partnership effectiveness. However, synergy specific to long-standing, equity-focused CBPR partnerships has not been closely examined. To address this, we defined and developed measures of partnership synergy as one dimension of a participatory mixed methods study, Measurement Approaches to Partnership Success (MAPS), to develop a validated instrument to measure success in long-standing CBPR partnerships. Framed by a conceptual model and scoping literature review, we conducted in-depth interviews with a national panel of academic and community experts in CBPR and equity to develop partnership synergy measures. Items were refined through an iterative process, including a three-stage Delphi process, comparison with existing measures, cognitive interviews, and pilot testing. Seven questionnaire items were developed to measure synergy arising from equitable partnerships bringing together diverse partners across power differences to promote equity. Defining and measuring synergy in the context of long-standing partnership success is central to understanding the role of synergy in collaborative approaches to research and action and can strengthen CBPR partnerships to promote healthy communities and advance health equity

A Participatory, Mixed Methods Approach to Define and Measure Partnership Synergy in Long‐standing Equity‐focused CBPR Partnerships

Understanding what contributes to success of community-based participatory research (CBPR) partnerships is essential to ensuring their effectiveness in addressing health disparities and health inequities. Synergy, the concept of accomplishing more together than separately, is central to partnership effectiveness. However, synergy specific to long-standing, equity-focused CBPR partnerships has not been closely examined. To address this, we defined and developed measures of partnership synergy as one dimension of a participatory mixed methods study, Measurement Approaches to Partnership Success (MAPS), to develop a validated instrument to measure success in long-standing CBPR partnerships. Framed by a conceptual model and scoping literature review, we conducted in-depth interviews with a national panel of academic and community experts in CBPR and equity to develop partnership synergy measures. Items were refined through an iterative process, including a three-stage Delphi process, comparison with existing measures, cognitive interviews, and pilot testing. Seven questionnaire items were developed to measure synergy arising from equitable partnerships bringing together diverse partners across power differences to promote equity. Defining and measuring synergy in the context of long-standing partnership success is central to understanding the role of synergy in collaborative approaches to research and action and can strengthen CBPR partnerships to promote healthy communities and advance health equity