28 research outputs found
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Cultural epidemiology: An introduction and overview
Although the value of interdisciplinary collaboration between epidemiology and anthropology is both widely acknowledged and hotly contested, effective international health policy and multicultural health programmes require it. The EMIC framework for cultural studies of illness was developed in response to such needs, and a cultural epidemiology emerged from that framework as an interdisciplinary field of research on locally valid representations of illness and their distributions in cultural context. These representations are specified by variables, descriptions, and narrative accounts of illness experience, its meaning, and associated illness behaviour. Specialized interactive qualitative and quantitative research methods provide a descriptive account, facilitate comparisons, and clarify the cultural basis of risk, course, and outcomes of practical significance for clinical practice and public health. This paper discusses the theoretical underpinnings of cultural epidemiology and an operational formulation for examining patterns of distress, perceived causes, and help-seeking. Five additional papers in this special issue of Anthropology and Medicine indicate how the EMIC has been used and has engendered an ethnographically grounded cultural epidemiology. Although this overview and these papers are concerned exclusively with mental health, a complementary stream of active research on leprosy, tuberculosis, epilepsy, and other tropical infectious, neurological, and medical disorders is ongoing. Next steps for cultural epidemiology in mental health research are discussed, including (1) further clinic-based studies of psychiatric disorders, (2) studies of deliberate self-harm in clinic and community settings, (3) complementary cultural components of psychiatric epidemiological surveys, (4) baseline assessments to guide community programmes, and (5) contributions to intervention studies
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Contextualizing mental health: gendered experiences in a Mumbai slum
Urban mental health programmes in developing countries remain in their infancy. To serve low-income communities, research needs to consider the impact of common life experience in slums, including poverty, bad living conditions, unemployment, and crowding. Our study in the Malavani slum of Mumbai examines afflictions of the city affecting the emotional well-being and mental health of women and men with respect to gender. This is a topic for which mental health studies have been lacking, and for which psychiatric assumptions based on middle-class clinical experience may be most tenuous. This study employs ethnographic methods to show how environmental and social contexts interact in shaping local experience with reference to common mental health problems. Focusing on the social and environmental context of the mental health of communities, rather than psychiatric disorders affecting individuals, findings are broadly applicable and sorely needed to guide the development of locally appropriate community mental health programmes. Identified afflictions affecting mental health include not only access to health care, but also sanitation, addictions, criminality, domestic violence, and the so-called bar-girl culture. Although effective clinical interventions are required for mental health services to treat psychiatric disorders, they cannot directly affect the conditions of urban slums that impair mental health
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Explaining Suicide in an Urban Slum of Mumbai, India
Background: Health demographic mortality studies use verbal autopsies to identify suicide as a cause of death. Psychological autopsies focus almost exclusively on associated high-risk psychiatric disorders. New approaches considering contextual factors are needed for preventing suicide and promoting mental health. Aims: This study examined explanations of suicide reported by surviving family members or close friends with reference to social, cultural, and environmental conditions as well as the challenges of life in the Malavani slum of Mumbai. Methods: An EMIC (Explanatory Model Interview Catalog) interview based on a cultural epidemiological framework considered underlying problems, perceived causes, and sociocultural contexts. It was administered to survivors of 76 people who had died by suicide (56.6% women). Results: Accounts of underlying problems typically referred to various aspects of tension (73.7%). Perceived causes often identified multiple factors. The sociocultural contexts of suicide included the victimization of women, the personal and social impact of problem drinking, marital problems, physical health problems, mental tension, possession and sorcery. Women were particularly vulnerable to the impact of problem drinking by a spouse or father. Conclusions: This study demonstrates the value of an approach to sociocultural autopsy examining local contexts and explanations of suicide. Findings highlight needs for both mental health services and culturally sensitive social interventions
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The impact of a depression awareness campaign on mental health literacy and mental morbidity among gay men
BACKGROUND:
High prevalences of depression and suicidality have been found among gay men. This paper assesses the possible impact of Blues-out, a depression awareness campaign based on the European Alliance Against Depression targeting the gay/lesbian community in Geneva, Switzerland.
METHODS:
In 2007 and 2011, pre- and post-intervention surveys were conducted among two distinct samples of gay men in Geneva, recruited by probability-based time-space sampling. Effect sizes and net percent changes are reported for mental health literacy and mental health outcomes in 2007 and 2011 as well as among men aware and unaware of Blues-out in 2011.
RESULTS:
43% of the respondents correctly recognized depression in 2011 with no change vis-Ă -vis 2007. Despite small effect sizes, significant net decreases (from -18% to -28%) were seen in lifetime suicide plans, 12-month suicidal ideation, lifetime depression, and 4-week psychological distress between 2007 and 2011. These decreases were not accompanied by changes in any of the numerous items on attitudes/knowledge, found only when comparing men aware and unaware of Blues-out in 2011. More men aware of Blues-out found specialists and psychological therapies helpful than their counterparts and correctly identified depression and gay men's greater risk for depression.
LIMITATIONS:
Community-level assessment with no control.
CONCLUSIONS:
Although improvement in depression recognition and decrease in suicide attempts could not be replicated unequivocally in this adapted intervention among gay men, there are indications that this evidence-based depression awareness campaign may have lessened suicidality and mental morbidity and improved mental health literacy and help-seeking
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Psychiatric stigma across cultures: Local validation in Bangalore and London
Public responses to depression have a powerful effect on patients’ personal experience of illness, the course and outcome of the illness, and their ability to obtain gainful employment. Mental illness-related stigma reduction has become a priority, and to be effective, it requires innovative and effective public mental health interventions informed by a clear understanding of what stigma means. Based on Goffman’s formulation as spoiled identity, local concepts of stigma were validated and compared in clinical cultural epidemiological studies of depression in Bangalore, India, and London, England, using the EMIC, an instrument for studying illness-related experience, its meaning, and related behaviour. Similar indicators were validated in both centres, and the internal consistency was examined to identify those that contributed to a locally coherent concept and scale for stigma. Qualitative meaning of specific features of stigma at each site was clarified from patients’ prose narrative accounts. Concerns about marriage figured prominently as a feature of illness experience in both centres, but it was consistent with other indicators of stigma only in Bangalore, not in London. Although stigma is a significant issue across societies, particular manifestations may vary, and the cultural validity of indicators should be examined locally. Analysis of cultural context in the narrative accounts of illness indicates the variation and complexity in the relationship between aspects of
illness experience and stigma. This report describes an approach following from the application of cultural epidemiological methods for identifying and measuring locally valid features of stigma in a scale for cultural study, cross-cultural comparisons, and for baseline and follow-up assessment to monitor stigma reduction programmes
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Socio-cultural determinants of timely and delayed treatment of Buruli ulcer: Implications for disease control
Introduction: Public health programmes recommend timely medical treatment for Buruli ulcer (BU) infection to
prevent pre-ulcer conditions from progressing to ulcers, to minimise surgery, disabilities and the socio-economic
impact of BU. Clarifying the role of socio-cultural determinants of timely medical treatment may assist in guiding
public health programmes to improve treatment outcomes. This study clarified the role of socio-cultural
determinants and health system factors affecting timely medical treatment for BU in an endemic area in Ghana.
Methods: A semi-structured explanatory model interview based on the explanatory model interview catalogue
(EMIC) was administered to 178 BU-affected persons. Based on research evidence, respondents were classified as
timely treatment (use of medical treatment 3 months from awareness of disease) and delayed treatment (medical
treatment 3 months after onset of disease and failure to use medical treatment). The outcome variable, timely
treatment was analysed with cultural epidemiological variables for categories of distress, perceived causes of BU,
outside-help and reasons for medical treatment in logistic regression models. The median time for the onset of
symptoms to treatment was computed in days. Qualitative phenomenological analysis of respondents’ narratives
clarified the meaning, context and dynamic features of the relationship of explanatory variables with timely medical
treatment.
Results: The median time for initiating treatment was 25 days for pre-ulcers, and 204 days for ulcers. Income loss
and use of herbalists showed significantly negative associations with timely treatment. Respondents’ use of
herbalists was often motivated by the desire for quick recovery in order to continue with work and because
herbalists were relatives and easily accessible. However, drinking unclean water was significantly associated with
timely treatment and access to health services encouraged timely treatment (OR 8.5, p = 0.012). Findings show that
health system factors of access are responsible for non-compliance to treatment regimes.
Conclusions: Findings highlight the importance of an integrated approach to BU control and management
considering the social and economic features that influence delayed treatment and factors that encourage timely
medical treatment. This approach should consider periodic screening for early case-detection, collaboration with
private practitioners and traditional healers, use of mobile services to improve access, adherence and treatment
outcomes
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Community awareness, use and preference for pandemic influenza vaccines in Pune, India
Vaccination is a cornerstone of influenza prevention, but limited vaccine uptake was a problem worldwide during the 2009–2010 pandemic. Community acceptance of a vaccine is a critical determinant of its effectiveness, but studies have been confined to high-income countries. We conducted a cross-sectional, mixed-method study in urban and rural Pune, India in 2012–2013. Semi-structured explanatory model interviews were administered to community residents (n=436) to study awareness, experience and preference between available vaccines for pandemic influenza. Focus group discussions and in-depth interviews complemented the survey. Awareness of pandemic influenza vaccines was low (25%). Some respondents did not consider vaccines relevant for adults, but nearly all (94.7%), when asked, believed that a vaccine would prevent swine flu. Reported vaccine uptake however was 8.3%. Main themes identified as reasons for uptake were having heard of a death from swine flu, health care provider recommendation or affiliation with the health system, influence of peers and information from media. Reasons for non-use were low perceived personal risk, problems with access and cost, inadequate information and a perceived lack of a government mandate endorsing influenza vaccines. A majority indicated a preference for injectable over nasal vaccines, especially in remote rural areas. Hesitancy from a lack of confidence in pandemic influenza vaccines appears to have been less of an issue than access, complacency and other sociocultural considerations. Recent influenza outbreaks in 2015 highlight a need to reconsider policy for routine influenza vaccination while paying attention to sociocultural factors and community preferences for effective vaccine action