In a New Land:Mobile Phones, Amplified Pressures and Reduced Capabilities

Framed within the theoretical lens of positive and negative security, this paper presents a study of newcomers to Sweden and the roles of mobile phones in the establishment of a new life. Using creative engagement methods through a series of workshops, two researchers engaged 70 adult participants enrolled into further education colleges in Sweden. Group narratives about mobile phone use were captured in creative outputs, researcher observations and notes and were analysed using thematic analysis. Key findings show that the mobile phone offers security for individuals and a safe space for newcomers to establish a new life in a new land as well as capitalising on other spaces of safety, such as maintaining old ties. This usage produces a series of threats and vulnerabilities beyond traditional technological security thinking related to mobile phone use. The paper concludes with recommendations for policies and support strategies for those working with newcomers

A systematic review of psychosocial needs assessment tools for dermatological caregivers of children

Even though skin disease is one of the leading causes of global disease burden, identifying and implementing appropriate dermatology assessment tools remains a challenge with key gaps in the care coordination evidence-base. Existing international policy and guidance recommend that informal dermatological caregivers of children should have access to regular and appropriate assessment of their psychosocial needs. Healthcare professionals need to be able to access relevant, high quality, accessible and up to date information on available, validated and useful needs assessment tools in order to triage, identify and support the unmet psychosocial needs of these caregivers. This comprehensive systematic review aims to assess the availability and usefulness of skin disorder psychosocial needs assessment tools validated for use among dermatological family caregivers. Electronic databases including EMBASE, PsycINFO, MEDLINE (in Ovid SP), Cochrane and CINAHL EBSCO were searched (2000-2019). To enhance the sensitivity, forward searches were conducted in U Search, Web of Science and several trial registers. Title, abstract and full screening, and data abstraction were done in duplicate. 185 full-text articles were examined from a total of 8796 records and 11 assessment tools were included in this review. In contrast to the high number of dermatology and disease-specific needs assessment tools identified, limited evidence supports the quality of their methodological and measurement properties. The tools generally quantified patient outcome measures or were generic quality of life (QoL) tools, which are not recommended by Cochrane Skin Centre of Evidence Based Dermatology. Although many of the reviewed tools quantify similar constructs, none directly measured caregivers’ need in terms of both problems and supports, but instead utilized measures of other constructs as a proxy for caregivers’ need. No dermatology-specific or disease-specific caregiver psychosocial needs assessment e-tool exists. Recommendations for the use of disease-specific caregiver assessment tools for healthcare settings must be made with caution because of their limitations in terms of methodology and practical usefulness. With an ever-increasing emphasis on e-health and existing demand on limited and valuable healthcare resources, dermatological caregiver needs assessment tools need to be reconsidered within the construct of ‘prevention is better than cure’ whereby needs are directly assessed on two levels; problems and interventions. This review highlights the need to develop an accessible integrated solution-focused model of dermatological caregiver assessment which provides healthcare professionals with an opportunity to triage and/or identify unmet care needs and facilitates dermatological caregivers to both self-report their needs and choose their own solutions

Systematic review of psychosocial needs assessment tools for caregivers of paediatric patients with dermatological conditions

OBJECTIVE: To identify validated dermatology-specific and disease-specific psychosocial needs assessment tools for caregivers of paediatric patients with dermatological conditions. A secondary objective was to assess the adequacy of their measurement properties. DESIGN: Systematic review. DATA SOURCES: EMBASE, PsycINFO, MEDLINE (in Ovid SP), Cochrane, Cumulative Index to Nursing and Allied Health EBSCO, U Search and Web of Science were searched (2000–5 October 2021). Grey literature, bibliographies, online databases of QoL tools and several trial registers were searched (2000–5 Oct 2021). ELIGIBILITY CRITERIA: Eligible studies involved adult caregivers caring for a child (no age limit) with any form of any skin condition. Predetermined exclusion criteria, as per protocol, were applied to the search results. DATA ABSTRACTION AND SYNTHESIS: Title, abstract, full-text screening and data abstraction (standardised forms) were done independently in duplicate. Both’s predefined methodological criteria assessed risk of bias. Narrative synthesis was used to present the findings. RESULTS: 187 full-text articles were examined from a total of 8979 records. Most tools were generic QoL tools, relevant to spouse/partner or based on their child’s perception of the disease or assessed patients’ quality of life. Following quality appraisal, 26 articles were identified, and 11 tools (1 dermatology-specific and 10 disease-specific) were included. Information outcome domains were provided for each tool (study specific, questionnaire specific, adequacy of measurement properties and risk of bias). No literature was found pertaining to the use of these tools within healthcare settings and/or as e-tools. DISCUSSION: With limited evidence supporting the quality of their methodological and measurement properties, this review will inform future dermatological Core Outcome Set development and improve evidence-based clinical decisions. Increasing demand on limited healthcare resources justifies the codevelopment of an accessible solution-focused psychosocial needs assessment e-tool to promote caregiver health outcomes. PROSPERO REGISTRATION NUMBER: PROSPERO (CRD42019159956)