8 research outputs found

    The impact of learning communities on first-generation minority student persistence at Rowan University

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    The primary purpose of this study was to analyze Rowan University\u27s Flying First and ASCEND learning communities in regard to first-generation minority student persistence. The study took place at Rowan University, Glassboro, NJ in the spring 2020 semester. The purpose for this qualitative study is to explore the impact that the Flying First and ASCEND/RISE learning communities have on first-generation minority student persistence using an outcomes assessment. Researchers have conducted a plethora of research on learning communities, marginalized first-generation students, and persistence/retention rates. However, there has been little research done on the topic of all three themes and how they contribute to first-generation minority student experiences and success on college campuses. According to the research, first-generation students often do not return to their institution after the first year, indicating that they are less likely to persist through to graduation, learning communities have had a significant effect in aiding students in their persistence due to the accessibility to resources, faculty/staff, and engagement opportunities (Gilbert-Thomas, 2018). As a result of the study, the data suggests that students who are members of either learning community feel as though they have adequate resources, faculty/staff interaction, and an increased sense of belonging which aids in their overall well-being and persistence

    The formation of the advisory group on risk evaluation education for dementia

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    BackgroundWhen and how to communicate effectively the results of genetic and biomarker based prediction, detection, and quantification of the brain substrates of dementia involve important ethical and legal issues critical for precision medicine. The urgency of the issue has increased as People Living with Dementia (PLwD) and with Risk for Dementia (PwRD) can access direct to consumer genetic testing, amyloid targeting drugs, and clinical amyloid PET scans. To address the need for effective dissemination and consultation, an advisory group was convened that welcomes all interested members.MethodMembers attend two meetings monthly via phone/computer/WebEx. One meeting is a targeted working group that focuses on the following: 1. Symptomatic (PLwD), 2. Asymptomatic (PwRD), 3. Research, 4. Ethics/Healthcare Law, 5. Trainee/Mentorship. These discussion groups hear from and present to stakeholders (PLwD/PwRD/caregivers, professional organizations, companies) to solicit feedback on the efficacy of their efforts. Members also attend a monthly - all hands- meeting where they receive updates from other groups and hear presentations on emerging research and resources.ResultThe advisory group is composed of 104 members who represent advocacy/stakeholders (21%, e.g. professional organization representatives, (PLwD/PwRD/caregivers, FDA), academia (78%, e.g. university, funders, foundations), and healthcare law (1%). Professions include geneticists, genetic counsellors, researchers, clinicians, ethicists, and lawyers. Motivations for joining include improving communication in research and clinical contexts, mitigating potential negative impacts (e.g.emotional distress or discrimination), and protecting rights to know. Topics have included DTC genomics, the impact of APOE disclosure, genetics and personalized medicine, ecological momentary assessment of response to disclosure, and ethical issues in national and international research registries (EPAD). Activities included a survey on disclosure practices in NIA funded ADCs and collaborations with ADEAR. Stakeholders varied in concerns ranging from a need to protect patients from disclosure to a need to protect the right of access.ConclusionMembership is increasing and is engaging diverse specialties and stakeholders who provide education and consultation around communication and use of genetic and biomarkers related to dementia. The group structure and inclusion of members from multiple organizations supports open and free collaboration. Future efforts will be developing structured education for stakeholders and publications.Peer Reviewedhttp://deepblue.lib.umich.edu/bitstream/2027.42/163965/1/alz045562.pd
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