Pediatric Epilepsy - Health Disparities

Scoping Revie

[Lightning Talk] Learning Lounge Sandbox: Designing Resources, Services and Curriculum to Advance Health Literacy Needs

The Dell Medical School, which opened in 2016, made a commitment to improve the health outcomes of the community it serves and to reach beyond traditional health care models in delivering care. The Design Institute for Health, a Dell Medical School entity, created the Learning Lounge in the Dell Medical School Health Transformation Building to enable a wide array of new learning opportunities for the population served at UT Health Austin (Dell Medical School’s outpatient clinics) and the greater community. The Design Institute for Health and the Dell Medical School Library collaborated on a research project to plan and implement services, and to create and collate information resources to the visitors of the Learning Lounge. Patients of providers at UT Health Austin were referred to the Learning Lounge via an "information prescription" form. This presentation will highlight the four-phase plan to create and pilot this program: Understand/Frame, Strategize, Create, and Launch; the resources and website created; the results of the IRB-approved survey and ethnographic notes; major successes and challenges; and next steps.UT Librarie

Nontraumatic Pediatric Cardiac Arrest SR

Population: Pediatric nontraumatic cardiopulmonary arrest Intervention: CPR - compressions and ventilation and the skills/techniques used to accomplish CPR, such as devices, technologies, communication methods, coaching, preplanning, role assignment or choreography Outcomes: adherence to guidelines and surviva

Digital Phenotyping and Patient-Generated Health Data for Outcome Measurement in Surgical Care: A Scoping Review

Digital phenotyping—the moment-by-moment quantification of human phenotypes in situ using data related to activity, behavior, and communications, from personal digital devices, such as smart phones and wearables—has been gaining interest. Personalized health information captured within free-living settings using such technologies may better enable the application of patient-generated health data (PGHD) to provide patient-centered care. The primary objective of this scoping review is to characterize the application of digital phenotyping and digitally captured active and passive PGHD for outcome measurement in surgical care. Secondarily, we synthesize the body of evidence to define specific areas for further work. We performed a systematic search of four bibliographic databases using terms related to “digital phenotyping and PGHD,” “outcome measurement,” and “surgical care” with no date limits. We registered the study (Open Science Framework), followed strict inclusion/exclusion criteria, performed screening, extraction, and synthesis of results in line with the PRISMA Extension for Scoping Reviews. A total of 224 studies were included. Published studies have accelerated in the last 5 years, originating in 29 countries (mostly from the USA, n = 74, 33%), featuring original prospective work (n = 149, 66%). Studies spanned 14 specialties, most commonly orthopedic surgery (n = 129, 58%), and had a postoperative focus (n = 210, 94%). Most of the work involved research-grade wearables (n = 130, 58%), prioritizing the capture of activity (n = 165, 74%) and biometric data (n = 100, 45%), with a view to providing a tracking/monitoring function (n = 115, 51%) for the management of surgical patients. Opportunities exist for further work across surgical specialties involving smartphones, communications data, comparison with patient-reported outcome measures (PROMs), applications focusing on prediction of outcomes, monitoring, risk profiling, shared decision making, and surgical optimization. The rapidly evolving state of the art in digital phenotyping and capture of PGHD offers exciting prospects for outcome measurement in surgical care pending further work and consideration related to clinical care, technology, and implementation