Information Organization and Access in Digital Humanities: TaDiRAH Revised, Formalized and FAIR

Classifying and categorizing the activities that comprise the digital humanities (DH) has been a longstanding area of interest for many practitioners in this field, fueled by ongoing attempts to define the field both within the academic and public sphere. Several European initiatives are currently shaping advanced research infrastructures that would benefit from an implementation of a suiting taxonomy. Therefore, new humanities and information science collaborations have been formed to provide a service that meets their needs. This working paper presents the transformation of the Taxonomy of Digital Research Activities in the Humanities (TaDiRAH) in order to make it machine-readable and become a formalized taxonomy. This includes the methodology and realization containing a complete revision of the original version, decisions in modelling, the implementation as well as organization of ongoing and future tasks. TaDiRAH addresses a wide range of humanities disciplines and integrates application areas from philologies as well as epigraphy, and musicology to name just a few. For this reason, the decision in favor of SKOS was made purely pragmatically in terms of technology, concept and domains. New language versions can now be easily integrated and low-threshold term extensions can be carried out via Wikidata. The new TaDiRAH not only represents a knowledge organization system ( KOS ) which has recently been released as version 2.0. According to the FAIR principles this new version improves the Findability, Accessibility, Interoperability, and Reuse of research data and digital assets in the digital humanities

Sharing with More Caring: Coordinating and Improving the Ethical Governance of Data and Biomaterials Obtained from Children.

Research on complex health conditions such as neurodevelopmental disorders increasingly relies on large-scale research and clinical studies that would benefit from data sharing initiatives. Organizations that share data stand to maximize the efficiency of invested research dollars, expedite research findings, minimize the burden on the patient community, and increase citation rates of publications associated with the data.This study examined ethics and governance information on websites of databases involving neurodevelopmental disorders to determine the availability of information on key factors crucial for comprehension of, and trust and participation in such initiatives.We identified relevant databases identified using online keyword searches. Two researchers reviewed each of the websites and identified thematic content using principles from grounded theory. The content for each organization was interrogated using the gap analysis method.Sixteen websites from data sharing organizations met our inclusion criteria. Information about types of data and tissues stored, data access requirements and procedures, and protections for confidentiality were significantly addressed by data sharing organizations. However, special considerations for minors (absent from 63%), controls to check if data and tissues are being submitted (absent from 81%), disaster recovery plans (absent from 81%), and discussions of incidental findings (absent from 88%) emerged as major gaps in thematic website content. When present, content pertaining to special considerations for youth, along with other ethics guidelines and requirements, were scattered throughout the websites or available only from associated documents accessed through live links.The complexities of sharing data acquired from children and adolescents will only increase with advances in genomic and neuro science. Our findings suggest that there is a need to improve the consistency, depth and accessibility of governance and policies on which these collaborations can lean specifically for vulnerable young populations

Hopes and Fears for Professional Movement in the Stem Cell Community

We examine here how the issue of professional migration in stem cell research has been explored in news media, government documents, and the peer-reviewed literature. The results shed light on how patterns of and forces that motivate these movements are depicted and highlight issues of significance to the stem cell community

Examples of data sharing policies.

<p>Examples of data sharing policies.</p

Procedural ethics themes and examples.

<p>Procedural ethics themes and examples.</p