5 research outputs found

    Negotiating identities: Inuit tuberculosis evacuees in the 1940s-1950s

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    Au milieu des annĂ©es 1940, le gouvernement canadien rĂ©alisa un examen de dĂ©pistage auprĂšs des Inuit et autres populations autochtones qui habitaient au nord du Canada et Ă©vacua ceux qui prĂ©sentaient des symptĂŽmes de la tuberculose vers les hĂŽpitaux du sud. Les sĂ©jours Ă  l’hĂŽpital durĂšrent souvent des annĂ©es et alors que certains patients furent retournĂ©s plus tard Ă  leurs communautĂ©s respectives, plusieurs ne regagnĂšrent jamais celles-ci parce qu’ils dĂ©cidĂšrent de rester dans le sud et d’autres, parce qu’ils ne survĂ©curent pas Ă  leur maladie. La prĂ©sente Ă©tude analyse comment l’hospitalisation dans le sud affecta l’identitĂ© des patients inuit et examine notamment la nĂ©gociation de l’identitĂ© comme forme de rĂ©silience. Cette recherche a Ă©tĂ© menĂ©e par le biais d’entrevues auprĂšs d’anciens Ă©vacuĂ©s inuit sur leur expĂ©rience de vie et aborde les Ă©vĂ©nements entourant les dĂ©parts, les dĂ©placements, les sĂ©jours dans un nouvel environnement et la vie aprĂšs un sĂ©jour Ă  l’hĂŽpital.In the mid 1940s the Canadian government implemented a medical mass-survey of Inuit and other Indigenous peoples living in northern Canada, and evacuated those suspected of having tuberculosis to hospitals in the south. Hospital stays often lasted for years at a time and while some patients were eventually returned to their home communities, many never returned, some because they chose to stay in the south and others because they did not survive their illness. The current study is interested in how hospitalisation in the south affected the identity of Inuit patients, and in particular examines the negotiation of identity as a form of resilience. This investigation is conducted through life history interviews with Inuit former evacuees in which we explore their experiences of departure, travel, and sojourn in an unfamiliar environment, as well as their lives after the hospital stay

    Suicide Among Aboriginal People in Canada

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    This report looks at the complex issues that surround Aboriginal suicide in Canad

    Applying patient and public involvement in preclinical research: a co‐created scoping review

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    Background: Patient and Public Involvement (PPI) in research aims to improve the quality, relevance and appropriateness of research. PPI has an established role in clinical research where there is evidence of benefit, and where policymakers and funders place continued emphasis on its inclusion. However, for preclinical research, PPI has not yet achieved the same level of integration. As more researchers, including our team, aim to include PPI in preclinical research, the development of an evidence-based approach is important. Therefore, this scoping review aimed to identify and map studies where PPI has been used in preclinical research and develop principles that can be applied in other projects. Methods: A scoping review was conducted to search the literature in Medline (PubMed), EMBASE, CINAHL, PsycInfo and Web of Science Core Collection to identify applied examples of preclinical PPI. Two independent reviewers conducted study selection and data extraction separately. Data were extracted relating to PPI in terms of (i) rationale and aims, (ii) approach used, (iii) benefits and challenges, (iv) impact and evaluation and (v) learning opportunities for preclinical PPI. Findings were reviewed collaboratively by PPI contributors and the research team to identify principles that could be applied to other projects. Results: Nine studies were included in the final review with the majority of included studies reporting PPI to improve the relevance of their research, using approaches such as PPI advisory panels and workshops. Researchers report several benefits and challenges, although evidence of formal evaluation is limited. Conclusion: Although currently there are few examples of preclinical research studies reporting empirical PPI activity, their findings may support those aiming to use PPI in preclinical research. Through collaborative analysis of the scoping review findings, several principles were developed that may be useful for other preclinical researchers. Patient or public contribution: This study was conducted as part of a broader project aiming to develop an evidence base for preclinical PPI that draws on a 5-year preclinical research programme focused on the development of advanced biomaterials for spinal cord repair as a case study. A PPI Advisory Panel comprising seriously injured rugby players, clinicians, preclinical researchers and PPI facilitators collaborated as co-authors on the conceptualization, execution and writing of this review, including refining the findings into the set of principles reported here.</p
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