Autism Spectrum Disorder: Parenting Stress, Family Functioning and Health-Related Quality of Life

The prevalence of Autism Spectrum Disorder (ASD) is 1 in 110 persons in the U.S. Both parents of children with ASD are under stress that may impact their health-related quality of life (HRQL) (physical and mental health). The purpose of the current study was to explore the relationship of parenting stress, support from family functioning and the HRQL (physical and mental health) of both parents. Female (n = 64) and male (n = 64) parents of children with ASD completed Web-based surveys examining parenting stress, family functioning, and physical and mental health. Results of a Wilcoxon signed-ranks test showed that female parent discrepant (D) scores between “what is” and “should be” family functioning were significantly larger than male parents, p = .002. Results of stepwise linear regression for the male-female partners showed that (1) higher female caregiving stress was related to lower female physical health (p \u3c .001), (2) a higher discrepancy score in family functioning predicted lower mental health (p \u3c .001), accounting for 31% of the variance for females and (3) male parent personal and family life stress (p \u3c .001) and family functioning discrepant (D) score (p \u3c .001) predicted poor mental health, with the discrepancy score accounting for 35% of the variance. These findings suggest that there may be differences in mothers\u27 and fathers\u27 perceptions and expectations about family functioning and this difference needs to be explored and applied when working with families of children with ASD. (PsycINFO Database Record (c) 2012 APA, all rights reserved

Career Cartography: From Stories to Science and Scholarship

PurposeTo present four case scenarios reflecting the process of research career development using career cartography.Organizing ConstructsCareer cartography is a novel approach that enables nurses, from all clinical and academic settings, to actively engage in a process that maximizes their clinical, teaching, research, and policy contributions that can improve patient outcomes and the health of the public.MethodsFour earlyâ career nurse researchers applied the career cartography framework to describe their iterative process of research career development. They report the development process of each of the components of career cartography, including destination statement, career map, and policy statement.ConclusionsDespite diverse research interests and career mapping approaches, common experiences emerged from the four nurse researchers. Common lessons learned throughout the career cartography process include: (a) have a supportive mentorship team, (b) start early and reflect regularly, (c) be brief and to the point, (d) keep it simple and avoid jargon, (e) be open to change, (f) make time, and (g) focus on the overall career destination.Clinical RelevanceThese four case scenarios support the need for nurse researchers to develop their individual career cartography. Regardless of their background, career cartography can help nurse researchers articulate their meaningful contributions to science, policy, and health of the public.Peer Reviewedhttps://deepblue.lib.umich.edu/bitstream/2027.42/136693/1/jnu12289.pdfhttps://deepblue.lib.umich.edu/bitstream/2027.42/136693/2/jnu12289_am.pd

Building Family Interventions for Scalability and Impact

Family nursing researchers are charged with addressing the conceptual and methodological underpinnings of family research when developing family-focused interventions. Step-by-step guidance is needed that integrates current science of intervention development with family science and helps researchers progress from foundational work to experimental work with policy integration. The purpose of this manuscript is to provide pragmatic, evidence-based guidance for advancing family intervention research from foundational work through efficacy testing. Guidance regarding the development of family interventions is presented using the first three of Sidani’s five-stage method: (a) foundational work to understand the problem targeted for change; (b) intervention development and assessment of acceptability and feasibility; and (c) efficacy testing. Each stage of family intervention development is described in terms of process, design considerations, and policy and practice implications. Examples are included to emphasize the family lens. This manuscript provides guidance to family scientists for intervention development and implementation to advance family nursing science and inform policy

Contraceptive Practices Before Conception and After the Birth of a Child With a Chronic Health Problem

Sexual and marital relations as well as family functioning may be altered by the birth of a child with a chronic health problem. After the birth of a child with a health problem, mothers have varied responses from an urgent desire to have another baby to a firm desire to avoid pregnancy. Mothers of healthy infants and mothers of infants who had been placed on apnea monitors for at least 5 months were surveyed on their contraceptive practices, family functioning, their marital satisfaction and sexual satisfaction, as well as their desire to have or not have another child. Surveys were conducted at 6 months and 12 months after delivery. The type of contraception used varied significantly between the two groups of mothers. There was an increase in the use of oral contraception after birth for the women whose infants were on apnea monitors. Frequency in the use of contraception varied between the two groups, with the mothers of healthy infants reporting more consistent use prior to the pregnancy, which was also more frequently planned than in the apnea group. Correlation matrices demonstrated a significant relationship between type of contraception and marital satisfaction, employment, and spousal support. The findings reinforce the need for health professionals to assist families in identifying how the birth of a child with chronic health problems has affected the family. Contraception counseling as well as marital counseling may be needed for some families