68 research outputs found

    Normative climates of parenthood across Europe : judging voluntary childlessness and working parents

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    Erworben im Rahmen der Schweizer Nationallizenzen (http://www.nationallizenzen.ch)Past research on gender role attitudes has often focused on individual- rather than country-level explanations. Drawing on European Social Survey data from 21 countries, we examine the effect of societal normative climates (i.e., shared perceptions of others’ attitudes) on personal attitudes towards two non-traditional gender roles: Voluntary childlessness and working full-time while children are young. To detect potential gender differences, we analyse disapproval of men and women separately. Findings reveal that there are strong differences in normative climates across countries, and that people generally perceive more disapproval of women than of men for both behaviours. Most importantly, in countries where a higher share of respondents perceives disapproval of these behaviours, respondents themselves disapprove more strongly – even if they do not believe that others disapprove, and even after controlling for other relevant individual- and country-level characteristics. What is more, the independent effect of normative climate explains most of the differences between countries. This robust finding demonstrates the power of country-level normative climates in explaining individuals’ attitudes and between-country differences in attitudes toward gender roles

    Personalized Genomic Medicine and the Rhetoric of Empowerment

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    Advocates of “personalized” genomic medicine maintain that it is revolutionary not just in what it can reveal to us, but in how it will enable us to take control of our health. But we should not assume that patient empowerment always yields positive outcomes. To assess the social impact of personalized medicine, we must anticipate how the virtue might go awry in practice

    “Let’s pull these technologies out of the ivory tower”: The politics, ethos, and ironies of participant-driven genomic research

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    This paper investigates how groups of ‘citizen scientists’ in non-traditional settings and primarily online networks claim to be challenging conventional genomic research processes and norms. Although these groups are highly diverse, they all distinguish their efforts from traditional university- or industry-based genomic research as being ‘participant-driven’ in one way or another. Participant-driven genomic research (PDGR) groups often work from ‘labs’ that consist of servers and computing devices as much as wet lab apparatus, relying on information-processing software for data-driven, discovery-based analysis rather than hypothesis-driven experimentation. We interviewed individuals from a variety of efforts across the expanding ecosystem of PDGR, including academic groups, start-ups, activists, hobbyists, and hackers, in order to compare and contrast how they relate their stated objectives, practices, and political and moral stances to institutions of expert scientific knowledge production. Results reveal that these groups, despite their diversity, share commitments to promoting alternative modes of housing, conducting, and funding genomic research and, ultimately, sharing knowledge. In doing so, PDGR discourses challenge existing approaches to research governance as well, especially the regulation, ethics, and oversight of human genomic information management. Interestingly, the reaction of the traditional genomics research community to this revolutionary challenge has not been negative: in fact, the community seems to be embracing the ethos espoused by PDGR, at the highest levels of science policy. As conventional genomic research assimilates the ethos of PDGR, the movement’s ‘democratizing’ views on research governance are likely to become normalized as well, creating new tensions for science policy and research ethics

    Overcoming Vulnerability in the Life Course - Reflections on a Research Program

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    This chapter reflects on the twelve-year Swiss research program, “Overcoming vulnerability: Life course perspectives” (LIVES). The authors are longstanding members of its scientific advisory committee. They highlight the program’s major accomplishments, identify key ingredients of the program’s success as well as some of its challenges, and raise promising avenues for future scholarship. Their insights will be of particular interest to those who wish to launch similar large-scale collaborative enterprises. LIVES has been a landmark project in advancing the conceptualization, measurement, and analysis of vulnerability over the life course. The foundation it has provided will direct the next era of scholarship toward even greater specificity: in understanding the conditions under which vulnerability matters, for whom, when, and how. In a process-oriented life-course perspective, vulnerability is not viewed as a persistent or permanent condition but rather as a dormant condition of the social actor, activated in particular situations and contexts

    Integrating genomics into clinical oncology: Ethical and social challenges from proponents of personalized medicine

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    The use of molecular tools to individualize health care, predict appropriate therapies and prevent adverse health outcomes has gained significant traction in the field of oncology, under the banner of “personalized medicine.” Enthusiasm for personalized medicine in oncology has been fueled by success stories of targeted treatments for a variety of cancers based on their molecular profiles. Though these are clear indications of optimism for personalized medicine, little is known about the ethical and social implications of personalized approaches in clinical oncology. The objective of this study is to assess how a range of stakeholders engaged in promoting, monitoring, and providing personalized medicine understand the challenges of integrating genomic testing and targeted therapies into clinical oncology. The study involved the analysis of in-depth interviews with 117 basic scientists, clinician-researchers, clinicians in private practice, health professional educators, representatives of funding agencies, medical journal editors, entrepreneurs, and insurers whose experiences and perspectives on personalized medicine span a wide variety of institutional and professional settings. Despite considerable enthusiasm for this shift, promoters, monitors and providers of personalized medicine identified four domains which will still provoke heightened ethical and social concerns: (1) informed consent for cancer genomic testing, (2) privacy, confidentiality, and disclosure of genomic test results, (3) access to genomic testing and targeted therapies in oncology, and (4) the costs of scaling up pharmacogenomic testing and targeted cancer therapies. These specific concerns are not unique to oncology, or even genomics. However, those most invested in the success of personalized medicine view oncologists’ responses to these challenges as precedent-setting because oncology is farther along the path of clinical integration of genomic technologies than other fields of medicine. This study illustrates that the rapid emergence of personalized medicine approaches in clinical oncology provides a crucial lens for identifying and managing potential frictions and pitfalls that emerge as health care paradigms shift in these directions

    After the revolution? Ethical and social challenges in ‘personalized genomic medicine’

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    Personalized genomic medicine (PGM) is a goal that currently unites a wide array of biomedical initiatives, and is promoted as a ‘new paradigm for healthcare’ by its champions. Its promissory virtues include individualized diagnosis and risk prediction, more effective prevention and health promotion, and patient empowerment. Beyond overcoming scientific and technological hurdles to realizing PGM, proponents may interpret and rank these promises differently, which carries ethical and social implications for the realization of PGM as an approach to healthcare. We examine competing visions of PGM’s virtues and the directions in which they could take the field, in order to anticipate policy choices that may lie ahead for researchers, healthcare providers and the public

    Men's Appraisals of Their Military Experiences in World War II: A 40-Year Perspective

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    Using data on veterans from the longitudinal Harvard Study of Adult Development (N=241), we focused on subjective aspects of military service. We examined how veterans of World War II appraised specific dimensions of military service directly after the war and over 40 years later, as well as the role of military service in their life course. In addition to examining change in appraisals, we examined how postwar appraisals of service mediated the effects of objective aspects of service, and how postwar psychological adjustment and health mediated the effects of postwar appraisals, on later-life appraisals. Men’s appraisals at both time points were generally, but not highly, positive, and revealed remarkable consistency over four decades. Postwar appraisals strongly predicted later-life appraisals and mediated the effects of objective service variables. The effects of postwar appraisals were not carried forward through psychological adjustment or midlife health. Better adjustment, however, was negatively related to later-life appraisals. Results reinforce the idea that how men perceive their military experiences may be more important in predicting outcomes than the experiences themselves. Results are discussed in light of the sample characteristics, the historical context of World War II, and the complexities of appraisal and retrospection
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