2,249 research outputs found
Co-designing smart home technology with people with dementia or Parkinson's disease
Involving users is crucial to designing technology successfully, especially for vulnerable users in health and social care, yet detailed descriptions and critical reflections on the co-design process, techniques and methods are rare. This paper introduces the PERCEPT (PERrsona-CEntred Participatory Technology) approach for the co-design process and we analyse and discuss the lessons learned for each step in this process. We applied PERCEPT in a project to develop a smart home toolset that will allow a person living with early stage dementia or Parkinson's to plan, monitor and self-manage his or her life and well-being more effectively. We present a set of personas which were co-created with people and applied throughout the project in the co-design process. The approach presented in this paper will enable researchers and designers to better engage with target user groups in co-design and point to considerations to be made at each step for vulnerable users
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Evaluation of BeYou plus an mHealth application to support self-management strategies for people living with HIV
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Co-Created Personas: Engaging and Empowering Users with Diverse Needs Within the Design Process
Personas are powerful tools for designing technology and envisioning its usage. They are widely used to imagine archetypal users around whom to orient design work. We have been exploring co-created personas as a technique to use in co-design with users who have diverse needs. Our vision was that this would broaden the demographic and liberate co-designers of their personal relationship with a health condition. This paper reports three studies where we investigated using co-created personas with people who had Parkinson’s disease, dementia or aphasia. Observational data of co-design sessions were collected and analysed. Findings revealed that the co-created personas encouraged users with diverse needs to engage with co-designing. Importantly, they also aforded additional benefts including empowering users within a more accessible design process. Refecting on the outcomes from the diferent user groups, we conclude with a discussion of the potential for co-created personas to be applied more broadly
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Investigating the Intelligibility of a Computer Vision System for Blind Users
Computer vision systems to help blind usersare becoming increasingly common yet often these systems are not intelligible. Our work investigates the intelligibility of a wearable computer vision system to help blind users locate and identify people in their vicinity. Providing a continuous stream of information, this system allows us to explore intelligibility through interaction and instructions, going beyond studies of intelligibility that focus on explaining a decision a computer vision system might make. In a study with 13 blind users, we explored whether varying instructions (either basic or enhanced) about how the system worked would change blind users’ experience of the system. We found offering a more detailed set of instructions did not affect how successful users were using the system nor their perceived workload. We did, however, find evidence of significant differences in what they knew about the system, and they employed different, and potentially more effective, use strategies. Our findings have important implications for researchers and designers of computer vision systemsfor blind users, as well more general implications for understanding what it means to make interactive computer vision systems intelligible
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The use of online forums by people living with HIV for help in understanding personal health information
Purpose: Effective self-management of the human immunodeficiency virus/acquired immune deficiency virus (HIV/AIDS) requires constant vigilance over personal health information. Little is known about the contribution of online communities to this endeavour. This paper reports a study to investigate how people living with HIV/AIDS use an online community to try to understand their personal health information by analysing how health information is shared and asked about, and how the community responds to questions.
Methods: A webscraper was used to gather all messages in the 200 most recently active threads in an online forum for people living with HIV/AIDS, resulting in a total of 2455 messages. These were filtered for all instances of individuals sharing their personal health information and asking the community for help in understanding it. Thematic analysis was used to determine the types of questions asked, the personal health information shared and the information that was asked about. Messages from the community aiming to address the questions were analysed using a framework of social support.
Results: Approximately 10% of the 2455 messages were found to be involved in this activity: 60 messages contained questions, and 192 messages responded to address the questions. The most frequent type of question was about causation. While users shared a wide variety of information about their health, they most commonly asked about reactions, lab results, and other conditions. Nearly all the messages from the community that aimed to answer the questions provided informational support, which is a type of social support, and the community shared their own personal experiences in these responses.
Conclusions: This study demonstrates that online forums are used by people living with HIV to ask specific questions as a means of understanding their personal health information. The analysis provides a better understanding of the questions that people living with HIV have about their health information, and the types of support they receive from the community. The results provide a basis for further research into community support and self-management and will enable improved tools to support self-management
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Designing for Reflection on Shared HIV Health Information
People living with chronic conditions are increasingly turning to digital technologies to track their health, coupled with reaching out to their peers to make sense of fluctuations in their health. However, there is a lack of appropriate technologies to support reflecting on shared personal health information. This paper reports on a study investigating how technology could be designed to support people living with HIV in reflecting on shared personal health information. Participants used two design provocations to reflect on changes in their health. Results showed that the design provocations encouraged reflection, with higher levels of reflection appearing to require greater use of peer information. We contribute a new understanding of how reflection on shared health information takes place and consider the next generation of digital technologies for people living with HIV
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"It feels like I'm managing myself": HIV+ people tracking their personal health information
Nearly 37 million people live with HIV globally and recent advances in medicine have transformed HIV to a chronic disease, if managed. Previous research in Personal Health Informatics has investigated how people self-manage other chronic conditions, such as diabetes, by tracking and reflecting on their health information but there is little knowledge of how people do so for complex and socially stigmatized diseases like HIV. A better understanding of their specialized needs could lead to the development of more appropriate tools to self-manage their condition. Our paper introduces an iterative process model of Personal Health Informatics. We then describe the results of an empirical study involving HIV+ adults aimed at understanding their issues, concerns and actions in each of the stages of this process model. We provide implications for the design of personal informatics tools and open research directions that can lead to better self-management for people living with HIV
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ExSS 2018: Workshop on explainable smart systems
Smart systems that apply complex reasoning to make decisions and plan behavior are often difficult for users to understand. While research to make systems more explainable and therefore more intelligible and transparent is gaining pace, there are numerous issues and problems regarding these systems that demand further attention. The goal of this workshop is to bring academia and industry together to address these issues. The workshop includes a keynote, poster panels, and group activities, towards developing concrete approaches to handling challenges related to the design, development, and evaluation of explainable smart systems
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Explaining how to play real-time strategy games
Real-time strategy games share many aspects with real situations in domains such as battle planning, air traffic control, and emergency response team management which makes them appealing test-beds for Artificial Intelligence (AI) and machine learning. End-user annotations could help to provide supplemental information for learning algorithms, especially when training data is sparse. This paper presents a formative study to uncover how experienced users explain game play in real-time strategy games. We report the results of our analysis of explanations and discuss their characteristics that could support the design of systems for use by experienced real-time strategy game users in specifying or annotating strategy-oriented behavior
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Expeditions through image jungles The commercial use of image libraries in an online environment
Purpose: Searching for appropriate images as part of a work task is a non-trivial problem. Journalists and copywriters need to find images that are not only visually appropriate to accompany the documents they are creating, but are acceptably priced and licensed.
Methodology: A work based study methodology and grounded theory are used to collect qualitative data from a variety of creative professionals including journalists.
Findings: We report the findings of a study to investigate image search, retrieval and use by creative professionals who routinely use images as part of their work in an online environment. We describe the commercial constraints that have an impact on the image users’ behaviour that are not reported in other more academic and lab based studies of image use (Westman, 2009).
Practical implications: We show that the commercial image retrieval systems are based on document retrieval systems, and that this is not the most appropriate approach in the Journalism domain.
Originality/value: We describe the properties of an ‘information expedition’; the image seeking behaviour exhibited by journalists in an online environment, and contend that it is significantly different to existing image seeking models which represent other user types
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