Perceptions of tuberculosis patients about their physical, mental and social well-being: a field report from south India

Tuberculosis (TB) often leaves its impact physically, socially and mentally on patients. The goal of current tuberculosis services is microbiological cure of tuberculosis. Understanding patients' perceptions about TB will enable better design of a client-oriented comprehensive programme for tuberculosis. We interviewed patients registered for treatment during July-December 2000 in government health facilities of two tuberculosis units of south India. Data on perceptions of their illness before the onset of illness and during the treatment period were collected, using a modified SF36 questionnaire. Health status was measured for the following: physical functioning, social role limitations due to physical and emotional problems (stigma), mental health, energy vitality, pain and general health perceptions. Of 980 patients registered, 610 (206 females) cured or treatment completed patients were interviewed at two time points. The reaction of patients to the disclosure of the diagnosis was worry (50%) and suicidal thoughts (9%). 'Good health status' was perceived initially in less than 7% of patients, and compared to the status at the onset of illness, there was significant improvement after treatment (more than 78% trend chi square pTuberculosis Health status SF36 questionnaire Stigma India