Researching belonging with people with learning disabilities:Self-building active community lives in the context of personalisation

We wanted to understand more about how people with learning disabilities are building active community lives to help belonging. We spoke to 39 people from 29 different support organisations, 7 local authority representatives and 43 people with learning disabilities. They said belonging was about having the time to connect with other people in “everyday” places, being part of a supportive network and having the right choice and information. Belonging is like a cake. It needs the right ingredients. These ingredients include the right combination of people, places and times. Because of cuts to funding, many people with learning disabilities lack the right support, choice and information to access their communities. This is not belonging. ​. Abstract: Background This journal article draws on findings from a research project that examined how people with learning disabilities and their allies were seeking to build a sense of belonging. We wanted to focus on the concept of “belonging” in the context of personalisation and reduced government social care funding. Specifically, we sought to understand how people with learning disabilities and their supporters were coming together to “self-build” networks of support including friendship clubs and self-advocacy groups to enable a greater sense of belonging in their local communities. Methods Qualitative interviews were conducted with seven local authority representatives across four case study areas in the UK, as well as 39 staff across 29 organisations providing a range of day and evening support and activities. We also talked to 43 people with learning disabilities across the four areas about their experiences. Findings Our findings demonstrate how belonging involves a complex configuration of actors, places, times, relationships and institutional roles (much like the ingredients in a cake). The ways in which belonging intersects with agency and choice was also identified as an important and novel finding of our study. Conclusion While belonging is often presented to people as a desirable and realisable outcome of social inclusion policies, cuts in funding and a lack of appropriate support frustrate people's desires to meaningfully belong with other people in their local community. This demonstrates the importance of supporting social environments that meet people's needs for social connectedness and belonging

Energy dissipation in the inner surf zone: new insights from LiDAR-based roller geometry measurements

The spatial and temporal variation of energy dissipation rates in breaking waves controls the mean circulation of the surf zone. As this circulation plays an important role in the morphodynamics of beaches, it is vital to develop better understanding of the energy dissipation processes in breaking and broken waves. In this paper, we present the first direct field measurements of roller geometry extracted from a LiDAR data set of broken waves to obtain new insights into wave energy dissipation in the inner surf zone. We use a roller model to show that most existing roller area formulations in the literature lead to considerable overestimation of the wave energy dissipation, which is found to be close to, but smaller than, the energy dissipation in a hydraulic jump of the same height. The role of the roller density is also investigated, and we propose that it should be incorporated into modified roller area formulations until better knowledge of the roller area and its link with the mean roller density is acquired. Finally, using previously published results from deepwater wave breaking studies, we propose a scaling law for energy dissipation in the inner surf zone, which achieves satisfactory results at both the time‐averaged and wave‐by‐wave scales

Surgical-PEARL protocol:a multicentre prospective cohort study exploring aetiology, management and outcomes for patients with congenital anomalies potentially requiring surgical intervention

INTRODUCTION: Congenital anomalies affect over 2% of pregnancies. Surgical advances have reduced mortality and improved survival for patients with congenital anomalies potentially requiring surgical (CAPRS) intervention. However, our understanding of aetiology, diagnostic methods, optimal management, outcomes and prognostication is limited. Existing birth cohorts have low numbers of individual heterogenous CAPRS. The Surgical Paediatric congEnital Anomalies Registry with Long term follow-up (Surgical-PEARL) study aims to establish a multicentre prospective fetal, child and biological parent cohort of CAPRS. METHODS AND ANALYSIS: From 2022 to 2027, Surgical-PEARL aims to recruit 2500 patients with CAPRS alongside their biological mothers and fathers from up to 15 UK centres. Recruitment will be antenatal or postnatal dependent on diagnosis timing and presentation to a recruitment site. Routine clinical data including antenatal scans and records, neonatal intensive care unit (NICU) records, diagnostic and surgical data and hospital episode statistics will be collected. A detailed biobank of samples will include: parents’ blood and urine samples; amniotic fluid if available; children’s blood and urine samples on admission to NICU, perioperatively or if the child has care withdrawn or is transferred for extracorporeal membrane oxygenation; stool samples; and surplus surgical tissue. Parents will complete questionnaires including sociodemographic and health data. Follow-up outcome and questionnaire data will be collected for 5 years. Once established we will explore the potential of comparing findings in Surgical-PEARL to general population cohorts born in the same years and centres. ETHICS AND DISSEMINATION: Ethical and health research authority approvals have been granted (IRAS Project ID: 302251; REC reference number 22/SS/0004). Surgical-PEARL is adopted onto the National Institute for Health Research Clinical Research Network portfolio. Findings will be disseminated widely through peer-reviewed publication, conference presentations and through patient organisations and newsletters. TRIAL REGISTRATION NUMBER: ISRCTN12557586

Variability of depth-limited waves in coral reef surf zones

Wave breaking and transformation on coral reef flats is an important process protecting tropical coastlines and regulating the energy regimes of coral reefs. However, the high hydraulic roughness, shallow water, and steep bathymetries of coral reefs may confound common surf zone assumptions, such as a depth-limited and saturated surf zone with a constant wave height to water depth ratio (γ). Here, we examine wave transformation across a coral reef flat, during three separate swell events, on both a time-averaged and a wave-by-wave basis. We use the relationship between significant wave height and water depth (γ) to examine the change in surf saturation across the reef flat and compare the measured wave height decay to results of modelled wave energy dissipation in the surf zone. Our results show that γ was not cross-reef constant and varied according to location on the reef flat and local water depth. On average, γ was greatest at the outer reef flat, near the reef crest, and progressively reduced towards the inner reef flat, near the reef lagoon. This was most pronounced in shallow water with large γ values (γ > 0.85) at the outer reef flat and small γ values (γ < 0.1) at the inner reef flat. This indicates that there is an increase in wave energy dissipation in shallow water, most likely due to increased breaker and bed frictional dissipation. The measured wave energy dissipation across the entire reef flat could, on average, be modelled accurately; however, this required location specific calibration of the free parameters, the wave friction factor (f) and γ, and further suggests that there is no value for either parameter that is universally applicable to coral reef flats. Despite model calibration inaccuracies were still observed, primarily at the outer reef flat. These inaccuracies reflected the observed cross-reef variation of γ on the reef flat and potentially the limitations of random wave breaker dissipation models in complex surf zones. Our results have implications for the use of wave energy dissipation models in predicting breaker dissipation and subsequent benthic community change on coral reef flats, and suggest that careful consideration of the free parameters in such models (such as f and γ) is required

Assessment of runup predictions by empirical models on non-truncated beaches on the south-east Australian coast

This paper assesses the accuracy of 11 existing runup models against field data collected under moderate wave conditions from 11 non-truncated beaches in New South Wales and Queensland, Australia. Beach types spanned the full range of intermediate beach types from low tide terrace to longshore bar and trough. Model predictions for both the 2% runup exceedance (R-2%) and maximum runup (R-max) were highly variable between models, with predictions shown to vary by a factor of 1.5 for the same incident wave conditions. No single model provided the best predictions on all beaches in the dataset. Overall, model root mean square errors are of the order of 25% of the R-2% value. Models for R-2% derived from field data were shown to be more accurate for predicting runup in the field than those developed from laboratory data, which overestimate the field data significantly. The most accurate existing models for predicting R-2% were those developed by Holman [12] and Vousdoukas et al. [40], with mean RMSE errors of 0.30 m or 25%. A new model-of-models for R-2% was developed from a best fit to the predictions from six existing field and one large scale laboratory R-2% data derived models. It uses the Hunt [17] scaling parameter tan beta root H0L0 and incorporates a setup parameterisation. This model is shown to be as accurate as the Holman and Vousdoukas et al. models across all tidal stages. It also yielded the smallest maximum error across the dataset. The most accurate predictions for R-max were given by Hunt [17] but this tended to under predict the observed maximum runup obtained for 15-min records. Mase's [22] model has larger errors but yielded more conservative estimates. Greater observed values of R-max are expected with increased record length, leading to greater differences in predicted values. Given the large variation in predictions across all models, however, it is clear that predictions by uncalibrated runup models on a given beach may be prone to significant error and this should be considered when using such models for coastal management purposes. It should be noted that in extreme events, which are lacking in the dataset, runup may be truncated by beach scarps, cliffs, and dunes, or may overtop, and as a result, the probability density functions will have different tail shapes. The uncertainty already present in current models is likely to increase in such conditions