1 research outputs found
Design and Development of an Information System to Manage Clinical Data about Usher Syndrome Based on Conceptual Modeling
[EN] The inefficient management of clinical data in
many research environments is a problem which slows down
the service provided to patients. The benefits of an Information
System created following the conceptual modeling rules have
been proved in multiple environments with data management
difficulties. The main hurdle to overcome is the large gap
between the language and concepts employed by
informaticians and the ones used by biologists. The work
described in this paper shows how these technologies can also
be applied to the clinical domain, after a long period of mutual
approaching in order to understand each other. The research
clinical data of an expert research group on Usher syndrome
have been studied, analyzed and redesigned using conceptual
modeling, helping this group to offer a better service.It is important to highlight that this work has been done under the framework of the Cátedra Tecnologías para la Salud of the Universitat Politècnica de València financed by INDRA Systems.Burriel Coll, V.; Pastor Cubillo, MÁ.; Celma Giménez, M.; Casamayor Rodenas, JC.; Mota Herranz, L. (2013). Design and Development of an Information System to Manage Clinical Data about Usher Syndrome Based on Conceptual Modeling. IARIA XPS Press. http://hdl.handle.net/10251/75237