The Design of Pseudo-Participation

Participation is key to building an equitable, realistic and democratic future. Yet a lack of agency in decision making and agenda-setting is a growing phenomenon in the design of digital public services. We call this pseudo-participation by and in design. The configuration of digital artifacts and/or processes can provide an illusion of participation but lack supportive processes and affordances to allow meaningful participation to happen. This exploratory paper examines the realm of pseudo-participation in the design of public digital services through two concepts: 1) pseudo-participation by design, digital interfaces, and tools that provide the illusion of participation to the people, 2) pseudo-participation in design, processes in which those affected by the design decisions are marginalized and not given any agency. We contribute to the re-imagination of participatory design in modern societies where the role of politics has become ubiquitous and is yet to be critically scrutinized by designers.Peer reviewe

Large-Scale Production of LGR5-Positive Bipotential Human Liver Stem Cells

Background and Aims: The gap between patients on transplant waiting lists and available donor organs is steadily increasing. H

Improvement of Rheumatic Valvular Heart Disease in Patients Undergoing Prolonged Antibiotic Prophylaxis

Secondary prophylaxis of rheumatic heart diseases is efficient in reducing disease recurrence, heart damage, and cardiac impairment. We aimed to monitor the clinical evolution of a large Brazilian cohort of rheumatic patients under prolonged secondary prophylaxis. From 1986 to 2018, a cohort of 593 patients with rheumatic fever was followed every 6 months by the Reference Center for the Control and Prevention of Rheumatic Fever and Rheumatic Cardiopathy (CPCFR), Paraná, Brazil. In this cohort, 243 (41%) patients did not present cardiac damage (group I), while 350 (59%) were diagnosed with rheumatic heart disease (RHD) (group II) using the latest case definition. Among group II, 233 and 15 patients had impairment of the mitral and aortic valves, respectively, while 102 patients had impairment of both valves. Lesions on the mitral and aortic valves presented a regression in 69.9 and 48.7% of the patients, respectively. Active patient recruitment in the reference center and early detection of oropharyngeal GAS were important factors for optimal adherence to the prophylactic treatment. Patients with disease progression were associated with noncompliance to secondary prophylaxis. No patients undergoing regular prophylaxis presented progression of the rheumatic cardiac disease. Eighteen valvular surgeries were performed, and four (0.7%) patients died. This study confirmed that tailored and active efforts invested in rheumatic heart disease secondary prevention allowed for significant clinical improvement

Ethics consultation unit in nephrology (UCEN): Review of 10 years of operation in the Grenoble area

International audienc

: actions to improve a shared-decision-making model

International audienc

: actions to improve a shared-decision-making model

International audienc

Computing Professionals for Social Responsibility: The Past, Present and Future Values of Participatory Design

©Authors 2020. This work has been posted here for your personal use. Not for redistribution.Values play a central role in technology design. But beyond acknowledging the politics of technology, questions remain around where those values are coming from, which values we need, and how they play out and shape the socio-technical systems we create. New challenges such as the climate crisis and societal polarization call for technologists to become part of the public and political arena. This results in a new sense of responsibility, but the closing of CPSR, the Com- puting Professionals for Social Responsibility, has left a gap. Today, across tech workers, academics and computing pro- fessionals, there is a renewed sense of urgency for engaging the public and politics to change course in how computing shapes society. What should a CPSR for the 21st century look like? This interactive workshop aims to re-invigorate the debate around values and social responsibility in Participatory Design with special attention to the Latin American context.This work is partially supported by the Canadian Natural Sciences and Engineering Research Council through RGPIN- 2016-06640 and the Canadian Social Sciences and Humanities Research Council

Improvement of Rheumatic Valvular Heart Disease in Patients Undergoing Prolonged Antibiotic Prophylaxis

Secondary prophylaxis of rheumatic heart diseases is efficient in reducing disease recurrence, heart damage, and cardiac impairment. We aimed to monitor the clinical evolution of a large Brazilian cohort of rheumatic patients under prolonged secondary prophylaxis. From 1986 to 2018, a cohort of 593 patients with rheumatic fever was followed every 6 months by the Reference Center for the Control and Prevention of Rheumatic Fever and Rheumatic Cardiopathy (CPCFR), Paraná, Brazil. In this cohort, 243 (41%) patients did not present cardiac damage (group I), while 350 (59%) were diagnosed with rheumatic heart disease (RHD) (group II) using the latest case definition. Among group II, 233 and 15 patients had impairment of the mitral and aortic valves, respectively, while 102 patients had impairment of both valves. Lesions on the mitral and aortic valves presented a regression in 69.9 and 48.7% of the patients, respectively. Active patient recruitment in the reference center and early detection of oropharyngeal GAS were important factors for optimal adherence to the prophylactic treatment. Patients with disease progression were associated with noncompliance to secondary prophylaxis. No patients undergoing regular prophylaxis presented progression of the rheumatic cardiac disease. Eighteen valvular surgeries were performed, and four (0.7%) patients died. This study confirmed that tailored and active efforts invested in rheumatic heart disease secondary prevention allowed for significant clinical improvement.info:eu-repo/semantics/publishe