Barriers and Facilitators to Deaf Trauma Survivors’ Help-Seeking Behavior: Lessons for Behavioral Clinical Trials Research: A Master’s Thesis

Deaf individuals experience significant obstacles to participating in behavioral health research when careful consideration is not given to accessibility in the design of study methodology. To inform such considerations, we conducted a secondary analysis of a mixed-methods study that explored 16 Deaf trauma survivors’ help-seeking experiences. Our objective was to identify key findings and qualitative themes from consumers\u27 own words that can be applied to the design of behavioral clinical trials methodology. In many ways, the themes that emerged are what we would expect of any research participant, Deaf or hearing – a need for communication access, empathy, respect, strict confidentiality procedures, trust, and transparency of the research process. However, additional considerations must be made to better recruit, retain, and engage Deaf trauma survivors. We summarize our findings in a “Checklist for Designing Deaf Behavioral Clinical Trials” to operationalize the steps researchers should take to apply Deaf-friendly approaches in their empirical work

Signs of Safety: A Deaf-Accessible Toolkit for Trauma and Addiction [English and Spanish versions]

A Spanish translation of this publication is available to download under Additional Files below. Researchers at the University of Massachusetts Medical School’s Systems and Psychosocial Advances Research Center (SPARC) assembled a team of Deaf and hearing researchers, clinicians, filmmakers, actors, artists, and Deaf people in recovery to develop Signs of Safety – a population-specific client toolkit and therapist companion guide that supplements Seeking Safety. See the embedded video to view the contents of this document in American Sign Language (ASL)

Deaf 101: How to Navigate Clinical Interactions with Deaf Sign Language Users

This webinar provides some basic guidelines for interacting with culturally Deaf clients, including how to work with American Sign Language interpreters and Certified Deaf interpreters, how to respect Deaf culture and Deaf social norms, and how to adapt common treatment approaches to be more Deaf-friendly

Open access to novel dual flow chamber technology for in vitro cell mechanotransduction, toxicity and pharamacokinetic studies

<p>Abstract</p> <p>Background</p> <p>A major stumbling block for researchers developing experimental models of mechanotransduction is the control of experimental variables, in particular the transmission of the mechanical forces at the cellular level. A previous evaluation of state of the art commercial perfusion chambers showed that flow regimes, applied to impart a defined mechanical stimulus to cells, are poorly controlled and that data from studies in which different chambers are utilized can not be compared, even if the target stress regimes are comparable.</p> <p>Methods</p> <p>This study provides a novel chamber design to provide both physiologically-based flow regimes, improvements in control of experimental variables, as well as ease of use compared to commercial chambers. This novel design achieves controlled stresses through five gasket designs and both single- and dual-flow regimes.</p> <p>Results</p> <p>The imparted shear stress within the gasket geometry is well controlled. Fifty percent of the entire area of the 10 × 21 mm universal gasket (Gasket I, designed to impart constant magnitude shear stresses in the center of the chamber where outcome measures are taken), is exposed to target stresses. In the 8 mm diameter circular area at the center of the chamber (where outcome measures are made), over 92% of the area is exposed to the target stress (± 2.5%). In addition, other gasket geometries provide specific gradients of stress that vary with distance from the chamber inlet. Bench-top testing of the novel chamber prototype shows improvements, in the ease of use as well as in performance, compared to the other commercial chambers. The design of the chamber eliminates flow deviations due to leakage and bubbles and allows actual flow profiles to better conform with those predicted in computational models.</p> <p>Conclusion</p> <p>The novel flow chamber design provides predictable and well defined mechanical forces at the surface of a cell monolayer, showing improvement over previously tested commercial chambers. The predictability of the imparted stress improves both experiment repeatability as well as the accuracy of inter-study comparisons. Carefully controlling the stresses on cells is critical in effectively mimicking <it>in vivo </it>situations. Overall, the improved perfusion flow chamber provides the needed resolution, standardization and <it>in vitro </it>model analogous to <it>in vivo </it>conditions to make the step towards greater use in research and the opportunity to enter the diagnostic and therapeutic market.</p

Relationship between cardiovascular risk and lipid testing in one health care system: a retrospective cohort study.

BackgroundThe US Preventive Services Taskforce (USPSTF) recommends routine lipid screening beginning age 35 for men [1]. For women age 20 and older, as well as men age 20-34, screening is recommended if cardiovascular risk factors are present. Prior research has focused on underutilization but not overuse of lipid testing. The objective is to document over- and under-use of lipid testing in an insured population of persons at low, moderate and high cardiovascular disease (CVD) risk for persons not already on statins.MethodsThe study is a retrospective cohort study that included all adults without prior CVD who were continuously enrolled in a large integrated healthcare system from 2005 to 2010. Measures included lipid test frequency extracted from administrative data and Framingham cardiovascular risk equations applied using electronic medical record data. Five year lipid testing patterns were examined by age, sex and CVD risk. Generalized linear models were used to estimate the relative risk for over testing associated with patient characteristics.ResultsAmong males and females for whom testing is not recommended, 35.8 % and 61.5 % received at least one lipid test in the prior 5 years and 8.4 % and 24.4 % had two or more. Over-testing was associated with age, race, comorbidity, primary care use and neighborhood income. Among individuals at moderate and high-risk (not already treated with statins) and for whom screening is recommended, between 21.4 % and 25.1 % of individuals received no screening in the prior 5 years.ConclusionsBased on USPSTF lipid screening recommendations, this study documents substantial over-testing among individuals with low CVD risk and under-testing among individuals with moderate to high-risk not already on statins. Opportunity exists to better focus lipid screening efforts appropriate to CVD risk

Top Tips for Running a Virtual Advisory Board [English, Spanish, Portuguese, and Mandarin versions]

Spanish, Portuguese and Mandarin translations of this publication are available to download under Additional Files. In this tip sheet, the iSPARC Stakeholder Engagement Program offers advice on how to run an advisory council virtually. It also talks about some of the benefits of having your council meet virtually. Learn more about the iSPARC Stakeholder Engagement Program here

How to Share Research about Education and Employment with the Deaf Community

The U.S. Deaf community is a sociolinguistic minority group of at least 500,000 individuals who communicate using American Sign Language (ASL).1 ASL is fully distinct from English – i.e., it is not “English on the hands.” ASL is a natural, formal language with its own syntax, morphology, and structure. Members of the Deaf community identify as members of a cultural minority group with shared language, experience, history, art, and literature. This tip sheet focuses on best practices for sharing research findings with culturally Deaf individuals who primarily use ASL. However, many of the strategies described below align with principles for universal accessibility and will, therefore, apply to a diverse range of hearing people and people with hearing loss

Why Engage Frontline Staff When Implementing a New Practice? Five Important Reasons [English, Chinese and Vietnamese versions]

Chinese and Vietnamese translations of this publication are available to download under Additional Files below. This tip sheet offers five critical reasons to integrate frontline providers throughout the process of implementing a new practice, program, or policy at your organization

PTSD/SUD in Individuals with Physical Disabilities: Identifying Problems and Promising Interventions

Co-occurring posttraumatic stress disorder (PTSD) and substance use disorder (SUD) is common, affects multiple domains of functioning, and presents complex challenges to recovery. Initial research indicates that individuals with physical disabilities experience higher rates of lifetime trauma and PTSD, and exhibit more severe SUD compared to non-disabled individuals. To expand upon these initial findings, we conducted a series of two studies on PTSD and SUD among individuals with physical disabilities

Stakeholder Engagement through Participatory Action Research at iSPARC

The Implementation Science & Practice-based Advances Research Center (iSPARC) is a new DMH-funded collaborative effort between the former Systems and Psychosocial Advances Research Center, Quantitative Health Sciences and Boston University\u27s Center for Psychiatric Rehabilitation. With 52 core and affiliate investigators, iSPARC features five interacting programs: Stakeholder Engagement, Public Mental Health and Implementation Research, Technical Assistance and Consultation, Workforce Development, and External Funding. The mission of the Stakeholder Engagement Program is to lead the mental health research community and beyond in working in partnership with individuals with lived mental health experience, their families, and the agencies that serve them. This program intersects with several of iSPARC\u27s activities. It includes three active advisory groups with more than 20 members representing youth, individuals with lived mental health experience, and family members. These advisory groups adopt a participatory action research (PAR) approach and seek to engage community stakeholders at every stage of research, from development through enrollment and dissemination. Starting in 2018, the Stakeholder Program will seek to increase engagement and diversity through several additional initiatives. A new community provider advisory group is currently being developed and the Program is working to assess and assure diversity across all advisory groups. The Program will use a structured assessment tool and continuous quality improvement approach to measure and facilitate participatory action research across all iSPARC\u27s projects. The Program will develop and disseminate products to assist other organizations in initiating and maintaining stakeholder engagement. The proposed poster will summarize these activities and include examples of products created