Supporting people with cognitive disabilities in decision making – processes and dilemmas

The exploratory study found that participants, including those with cognitive disability, mostly supported the broad concept of supported decision making. However supporters saw this as a complex, dynamic and frequently chaotic process. Fundamental to the process were relationships and tailoring support to the individual. The skills and knowledge required included communication skills, self-awareness, the capacity for reflective discussion, conflict resolution skills, and knowledge of strategies for tailoring the decision making process to the individual. The study revealed multiple dilemmas and tensions associated with supporting someone with cognitive disability to make a decision but most commonly mentioned were remaining neutral, managing conflicting perspectives amongst differing supporters, balancing rights with risk and best interests, and resource constraints. The study provides some key insights into the practice of supporting people with cognitive disability to make decisions and knowledge that can be incorporated into training programs for people in this role. The findings also highlight the need for further research in this area, particularly in relation to ‘what works’ in support for decision making for people with cognitive disabilit

Remarriage: A Family Developmental Process

Peer Reviewedhttp://deepblue.lib.umich.edu/bitstream/2027.42/90523/1/j.1752-0606.1982.tb01442.x.pd

Checking up to keep on track: an Aboriginal-led approach to monitoring well-being

This article reports the process of identifying a well-being monitoring and evaluation approach for a community development programme with Aboriginal Native Title Holders in Northern Australia. The process involved the use of an empowerment-based Aboriginal Family Well-Being framework to enable Native Title Holders to articulate domains of value to their local community. These domains aligned with an existing culturally sensitive Aboriginal well-being survey tool which the Native Title Holders saw as relevant for their use. The attempts to provide Aboriginal people with a broader and more long-term perspective from which to judge the value of short-term projects is a different approach to traditional programme assessment (monitoring and evaluation). It aims to provide Aboriginal people with a more relevant frame from which they can make judgements about the worth of any programme or project in their location, supporting local control and decision-making. Potentially it provides Aboriginal people with the information from which to advocate for other supports and to assess the value of Government and other projects

“A safe haven to support me”: an evaluation report on the Central Coast Family Wellbeing Program

A significant proportion of young people in Australia including the NSW Central Coast region are not engaged in school, work and other social systems. The consequences of disengagement can be profound and are linked to higher rates of social and mental health problems, including suicide, alcohol and drug use. Being male and Indigenous are amongst the key factors identified as being risks for youth disengagement. This report presents an analysis of the Family Wellbeing (FWB) program on the NSW Central Coast. FWB implementation is designed to enhance the social and emotional wellbeing of young Aboriginal men and improve engagement in education, employment and other social and cultural participation. The report draws attention to the need for more sustainable funding for promising programs such as the Central Coast FWB including properly resourced long-term evaluation. Insecurity and loss of funding means a loss of opportunity for future participants to be supported, mentored and engaged in learning and employment. It will also impact on those who have completed FWB and who rely on the FWB network for ongoing support

Generations in Families Talking Safe Sleep (GIFTSS)

Background: Sudden Infant Death Syndrome (SIDS) and suffocation account for more than half of all Sudden Unexpected Infant Deaths (SUID) and are leading causes of post-neonatal deaths. Risk reduction strategies, including supine sleep position and safe sleep environment, are critical for prevention. Teen mothers, especially those in rural, poor, southern states, are at higher risk due to low compliance with recommendations. Methods: We will conduct a randomized trial to test a tailored educational intervention on the sleep-related safety behaviors of teen mothers. In one study arm, the intervention will include not only the teen mothers but also senior caregivers (SCGs) to assess the influence they have in the decision-making of young mothers regarding infant health and safety. Our hypotheses are H1) teen mothers exposed to intervention will be more likely than controls to adopt safe sleep practices, and H2) teen mothers will be more likely to use those practices when they and their mothers or other significant female senior caregivers also participate in safe sleep education. Discussion: Better understanding of the mediating role of female SCGs in the health decision of young mothers for their children may have implications for interventions addressing important health problems

Student Voices from a Student- and Faculty-Led Diversity, Equity, and Inclusion Committee

Speech-language pathologists and audiologists have recognized an increased need for discussions surrounding diversity, equity, and inclusion (DEI) in the profession. The purpose of this work is to describe one evidence-informed approach to forming a departmental student- and faculty-led committee at a university and to highlight participant student voices from the committee. The committee’s formation, organization, and activities are discussed from the perspectives of its members

Drawbacks of a Dual Systems Approach to Family Firms: Can We Expand Our Thinking?

Conceptualizing the family firm as a dual system with properties of both the family and the business has prevented the field from fully examining the nature of these firms and has biased our observations and interventions. Too narrow a focus on the contribution of subsystems leads to a stereotyping of subsystem functioning, inconsistent and inadequate analysis of interpersonal dynamics, exaggerated notions of subsystem boundaries, and an underanalysis of whole system characteristics. Each of these drawbacks is discussed, and a beginning view of the family firm as a single entity is presented.Peer Reviewedhttp://deepblue.lib.umich.edu/bitstream/2027.42/67216/2/10_1111_j_1741-6248_1991_00383_x.pd

“We are not stray leaves blowing about in the wind”: exploring the impact of Family Wellbeing empowerment research, 1998–2021

Background: An Aboriginal-developed empowerment and social and emotional wellbeing program, known as Family Wellbeing (FWB), has been found to strengthen the protective factors that help Indigenous Australians to deal with the legacy of colonisation and intergenerational trauma. This article reviews the research that has accompanied the implementation of the program, over a 23 year period. The aim is to assess the long-term impact of FWB research and identify the key enablers of research impact and the limitations of the impact assessment exercise. This will inform more comprehensive monitoring of research impact into the future. Methods: To assess impact, the study took an implementation science approach, incorporating theory of change and service utilisation frameworks, to create a logic model underpinned by Indigenous research principles. A research impact narrative was developed based on mixed methods analysis of publicly available data on: 1) FWB program participation; 2) research program funding; 3) program outcome evaluation (nine studies); and 4) accounts of research utilisation (seven studies). Results: Starting from a need for research on empowerment identified by research users, an investment of $2.3 million in research activities over 23 years produced a range of research outputs that evidenced social and emotional wellbeing benefits arising from participation in the FWB program. Accounts of research utilisation confirmed the role of research outputs in educating participants about the program, and thus, facilitating more demand (and funding acquisition) for FWB. Overall research contributed to 5,405 recorded participants accessing the intervention. The key enablers of research impact were; 1) the research was user- and community-driven; 2) a long-term mutually beneficial partnership between research users and researchers; 3) the creation of a body of knowledge that demonstrated the impact of the FWB intervention via different research methods; 4) the universality of the FWB approach which led to widespread application. Conclusions: The FWB research impact exercise reinforced the view that assessing research impact is best approached as a “wicked problem” for which there are no easy fixes. It requires flexible, open-ended, collaborative learning-by-doing approaches to build the evidence base over time. Steps and approaches that research groups might take to build the research impact knowledge base within their disciplines are discussed