7 research outputs found
Erbgut gut – alles gut? Bericht von der Tagung „Genetische Daten zwischen Ethik, Recht und personalisierter Medizin“ an der Gottfried Wilhelm Leibniz Universität. Hannover, 24. Januar 2008
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A data protection framework for transeuropean genetic research projects
No full textThe paper proposes a data protection framework for trans-European medical research projects, which is based on a technical security infrastructure as well as on organizational measures and contractual obligations. It mainly relies on pseudonymization, an internal Data Protection Authority and on a Trusted Third Party. The Outcome is an environment that combines both good research conditions and in extensive protection of patients privacy
