Perspectives on quality of life by people with aphasia and their family: Suggestions for successful living

Understanding the client's perspective is essential for good practitioner care in rehabilitation after stroke, and nothing is more relevant than enquiring directly about our clients' quality of life to inform our management. Relatively little is known about how older people with aphasia consider the quality of their current lives, and this article seeks to explore this issue. Four women's accounts of their life quality are presented, as well as their husbands' or daughter's accounts of their lives. Their stories share some common elements. Who you love or share your life with; where you live; feeling independent and/or in control; and engaging in satisfying activities mattered to these women's life quality. The impact of aphasia varies across the cases, and the need to accept change for successful living is illustrated in all accounts

Auditory-visual speech perception: The effect of visual acuity in older people

"Article Copyright 2004 The Authors." "Published edition Copyright 2004 Australian Academic Press. Published version of the paper reproduced here with permission from the publisher."This study aimed to investigate the benefit gained by older people in auditory-visual speech perception compared to auditory-only perception and to investigate the correlation between visual acuity and benefit gained. A total of 77 community-based older people participated in the study. Pure-tone audiometry showed that 36% had normal hearing, 40% had a mild hearing loss and the remainder (23%) had a moderate or greater loss. Objective easurements of corrected distance and near visual acuities were obtained using the Bailey-Lovie logMAR distance and near visual acuity tests. According to the criteria used in the present study, 34% had some distance vision impairment and 9% had some near vision impairment. The benefit gained in auditory-visual speech perception was determined by comparing auditory-only and auditory-visual performance on the Bamford-Kowal-Bench Australian Version Speech reading Test. An average visual benefit of 28.8% was achieved by the participants, and, for the vast majority of participants (86%), the benefit gained was statistically significant. A significant correlation was not found between either distance or near visual acuity and benefit gained in auditory-visual speech perception. The implications of these findings are that it is important for audiologists to recommend the use of lipreading to older clients, irrespective of their visual impairment, as the majority will gain significant benefit from the use of visual cues

Determinants of living well With aphasia in the first year poststroke: a prospective cohort study

Objective: To determine factors that contribute to living well with aphasia in the first 12 months poststroke

Intensive Comprehensive Aphasia Programs: An International Survey of Practice

Background: In response to the need to simultaneously address multiple domains of the International Classification of Functioning, Disability and Health (ICF) in aphasia therapy and to incorporate intensive treatment doses consistent with principles of neuroplasticity, a potentially potent treatment option termed intensive comprehensive aphasia programs (ICAPs) has been developed. Objective: To conduct an international survey of ICAPs to determine the extent of their use and to explore current ICAP practices. Methods: A 32-item online survey was distributed internationally through Survey Monkey between May and August 2012. The survey addressed ICAP staffing, philosophy, values, funding, admission criteria, activities, family involvement, outcome measures, and factors considered important to success. Results: Twelve ICAPs responded: 8 from the United States, 2 from Canada, and 1 each from Australia and the United Kingdom. The majority of ICAPs are affiliated with university programs and are funded through participant self-pay. ICAPs emphasize individualized treatment goals and evidence-based practices, with a focus on applying the principles of neuroplasticity related to repetition and intensity of treatment. On average, 6 people with aphasia attend each ICAP, for 4 days per week for 4 weeks, receiving about 100 hours of individual, group, and computer-based treatment. Speech-language pathologists, students, and volunteers staff the majority of ICAPs. Conclusions: ICAPs are increasing in number but remain a rare service delivery option. They address the needs of individuals who want access to intensive treatment and are interested in making significant changes to their communication skills and psychosocial well-being in a short period of time. Their efficacy and cost-effectiveness require future investigation

Clinician Perspectives of an Intensive Comprehensive Aphasia Program

Background: Intensive comprehensive aphasia programs (ICAPs) have increased in number in recent years in the United States and abroad. Objective: To describe the experiences of clinicians working in an ICAP. Methods: A phenomenological approach was taken. Seven clinicians from 3 ICAPs were interviewed in person or on the phone. Their interviews were transcribed and coded for themes relating to their experiences. Results: Clinicians described 3 major themes. The first theme related to the intensity component of the ICAP that allowed clinicians to provide in-depth treatment and gave them a different perspective with regard to providing treatment and the potential impact on the person with aphasia. The second theme of rewards for the clinicians included learning and support, seeing progress, and developing relationships with their clients and family members. Third, challenges were noted, including the time involved in learning new therapy techniques, patient characteristics such as chronicity of the aphasia, and the difficulty of returning to work in typical clinical settings after having experienced an ICAP. Conclusions: Although there is a potential for bias with the small sample size, this pilot study gives insight into the clinician perspective of what makes working in an ICAP both worthwhile and challenging

Setting a research agenda to inform intensive comprehensive aphasia programs

Research into intensive comprehensive aphasia programs (ICAPs) has yet to show that this service delivery model is efficacious, effective, has cost utility, or can be broadly implemented. This article describes a phased research approach to the study of ICAPs and sets out a research agenda that considers not only the specific issues surrounding ICAPs, but also the phase of the research. Current ICAP research is in the early phases, with dosing and outcome measurement as prime considerations as well as refinement of the best treatment protocol. Later phases of ICAP research are outlined, and the need for larger scale collaborative funded research is recognized. The need for more rapid translation into practice is also acknowledged, and the use of hybrid models of phased research is encouraged within the ICAP research agenda

Stroke genetics informs drug discovery and risk prediction across ancestries

Previous genome-wide association studies (GWASs) of stroke — the second leading cause of death worldwide — were conducted predominantly in populations of European ancestry1,2. Here, in cross-ancestry GWAS meta-analyses of 110,182 patients who have had a stroke (five ancestries, 33% non-European) and 1,503,898 control individuals, we identify association signals for stroke and its subtypes at 89 (61 new) independent loci: 60 in primary inverse-variance-weighted analyses and 29 in secondary meta-regression and multitrait analyses. On the basis of internal cross-ancestry validation and an independent follow-up in 89,084 additional cases of stroke (30% non-European) and 1,013,843 control individuals, 87% of the primary stroke risk loci and 60% of the secondary stroke risk loci were replicated (P < 0.05). Effect sizes were highly correlated across ancestries. Cross-ancestry fine-mapping, in silico mutagenesis analysis3, and transcriptome-wide and proteome-wide association analyses revealed putative causal genes (such as SH3PXD2A and FURIN) and variants (such as at GRK5 and NOS3). Using a three-pronged approach4, we provide genetic evidence for putative drug effects, highlighting F11, KLKB1, PROC, GP1BA, LAMC2 and VCAM1 as possible targets, with drugs already under investigation for stroke for F11 and PROC. A polygenic score integrating cross-ancestry and ancestry-specific stroke GWASs with vascular-risk factor GWASs (integrative polygenic scores) strongly predicted ischaemic stroke in populations of European, East Asian and African ancestry5. Stroke genetic risk scores were predictive of ischaemic stroke independent of clinical risk factors in 52,600 clinical-trial participants with cardiometabolic disease. Our results provide insights to inform biology, reveal potential drug targets and derive genetic risk prediction tools across ancestries

Communication disability in aging: from prevention to intervention/ Worrall

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The number of patients with communication related impairments in acute hospital stroke units

Effective communication between patients who have had a stroke and their healthcare providers is vital. However, this may be difficult if patients have communication related impairments as a result of the stroke and/or have age related impairments that impact on their ability to communicate. This study sought to identify how many patients admitted into two acute hospital stroke units had a hearing, vision, speech, language and/or cognitive communicative impairment regardless of the cause. A total of 69 patients participated in this study. The majority (88%) of patients had one or more mild or more severe communication related impairments, 69% of patients had two or more communication related impairments and 39% of patients had three or more communication related impairments. The most common type of impairment was hearing impairment, followed by near vision impairment. That a high number of patients in acute hospital stroke units have communication related impairments suggests that many patients in acute stroke units may experience difficulty communicating their healthcare needs with healthcare providers and that alternative ways to support patients with communication related impairments in acute stroke units need to be available

The efficacy of outpatient and community-based aphasia group interventions: a systematic review

Aphasia group therapy offers many benefits, however people with aphasia report difficulty accessing groups and speech-language pathologists are faced with many challenges in providing aphasia group therapy. Telerehabilitation may offer an alternative service delivery option. An online aphasia group therapy program - Telerehabilitation Group Aphasia Intervention and Networking (TeleGAIN) - has been developed according to the guidelines of the Medical Research Council (MRC) framework for complex interventions. The purpose of this paper is to describe the development of TeleGAIN and the results of a pilot trial to determine feasibility and acceptability