Securing Personal Input from Individuals Aging with Intellectual Disability: Do Differing Methodologies Produce Equivalent information?

Research is limited on whether differing methodologies for facilitating personal contributions from individuals aging with intellectual disability produce equivalent knowledge outcomes. Two matched purpose-developed tools examined five quality-of-life domains. Results showed substantial variance between qualitative interview responses and Likert-scale data, and indicate validity concerns for using either methodology in isolation

Identity viewed askew : a debate with special reference to a feminist theological organisation : a thesis presented in partial fulfillment of the requirements for the degree of Doctor of Philosophy in Sociology, Department of Social and Cultural Studies, Massey University, Albany, New Zealand

A critical task in the formation of any political group is the determination and articulation of group identity, purpose and goals. In holding that identity is impervious to capture, much poststructuralist thought has little to contribute to an understanding of the precise processes and ongoing tensions involved in such drives for representation. The essentialism debate in feminist theory, for instance, has been primarily concerned with determining which conceptualisation of women's subjectivity will best facilitate feminism's political goals. However, under the influential feminist deconstructive perspective, a dilemma emerges regarding how an anti-essentialist notion of femininity might be reconciled with the essentialism required for a distinctly feminist voice. Alternatively, post-Lacanian psychoanalysis views subjectivity as an effect of fundamentally irresolvable antagonisms in language, allowing the emphasis to shift from the (attempted) reconciliation of irresolvable tensions to the identification of mechanisms that work to conceal those tensions, thereby permitting a sense of subjectivity to be articulated. This thesis explores the methodological implications of these theoretical debates, examining how the psychoanalytic line of questioning might be used to analyse feminist identity in an empirical setting. Research was conducted with the Women's Resource Centre (WRC) based in Auckland, New Zealand, an organisation originally established to provide feminist theology resources to women undergoing theological education. Using a conversational methodology and the observation of material expressions of identity, the research attempts to view the Centre's identity 'askew.' In doing so, it considers the creative yet eventually regressive impact of the postmodern privileging of difference and multiplicity on the feminist identity of the Centre. Referring specifically to the changing expression of the Centre's identity (in promotional material, funding applications and the WRC Story), the thesis traces the effects of ideological tension (in incorporating more inclusive notions of justice with feminist politics) and organisational change (dispersion of the original community, high staff turnover, shift in organisational culture, funding difficulties). Wider implications of the research for voluntary and feminist organisations are indicated, along with an evaluation of post-Lacanian psychoanalysis for the empirical study of identity and for the overarching theoretical concerns of the thesis

Transforming organisational practice and culture through embedding critical reflection and research

This chapter reflects on a potentially transformative research project and explores lessons learned thus far, from attempting to foster service-wide critically reflective practice in an Australian non-government organisation. It focuses on challenges encountered from the perspectives of Christine and Chez who is responsible for project managing the research inside the organisation. The chapter emphasises the importance of our partnership in navigating the challenges and suggests ways forward to embed critical reflection and shift organisation culture. It should be noted our narratives about the project are current at the time of writing. The Empowering Children's Voices research project was conceptualised in 2017 following the Australian Royal Commission into Institutional Responses to Child Sexual Abuse and publication of the National Principles for Child Safe Organisations in which the need for children to participate in decisions that affect them is highlighted. Critical reflection inherently involves challenging thinking, and problematising the taken-for-granted

Can a paradigm shift from risk management to critical reflection improve child-inclusive practice?

Child protection systems within Anglophone countries have been increasingly dominated by neoliberal managerial, risk-dominant paradigms over the past three decades. Assumed to deliver a cost-effective strategy to increase the safety of children, there are many ways this paradigmatic combination systematically undermines child welfare, participation, and well-being. This paper specifically focuses on the ways that risk assessment, neoliberal, and managerial discourses have infiltrated practice and operate to silence and exclude children’s voices. It draws on two case studies to showcase key findings of a comprehensive, state-wide research project called Empowering Children’s Voices, which was initiated by UnitingCare, a non-government organisation within Queensland, Australia, and conducted in partnership with researchers from Queensland University of Technology. It will be argued that a paradigm shift towards a critically reflective reinterpretation of risk can be far more effective at promoting child-inclusive practice and establishing children’s empowered voices as a protective factor against harm.</p

A Māori homeless woman

Indigenous peoples are overrepresented in homeless populations in many countries. As part of a larger ethnographic project, this case study draws upon interviews and photoelicitation projects with a homeless Māori woman, Ariā. The actions of this Māori woman exemplify how Indigenous cultural practices can shape a person’s efforts to retain a positive sense of self and place while homeless. Māori cultural concepts relating to caring, leadership, unity, relationships, spirituality, history and place provide a basis for interpreting Ariā’s actions. This article demonstrates the appropriateness of cultural concepts indigenous to a group for conducting ethnographic research into homelessness within that group

It's different in the country: Supporting ageing-in-place for people with intellectual disabilities

Background: Dramatic improvements in life expectancy have led to a large cohort of people with intellectual disabilities (ID) who are ageing. To date, there is limited comparative research across metropolitan and rural regions with respect to understanding issues faced by ageing individuals with disabilities and their carers. Method: The purpose of the current study was to explore key dimensions that enable or impede ageing-in-place options in metropolitan and rural regions. This included understanding the complex range of issues in healthy ageing and the interplay of health, social and support factors. This project utilised a mixed-methods study design aligned with principles of inclusive research. The study consists of 2 distinct stages: Stage A saw semi-structured interviews undertaken with individuals with ID and their carers. The sample comprised of participants who lived in the community and those who had moved to residential care facilities. The focus of these interviews was to assess the "enablers and impediments" to successful ageing-in-place for people with ID. Stage B was a semi-structured survey of health professionals. The questionnaire covered information on demographics, training and training needs (both pre-service and in-service), knowledge on issues ranging from disability, ageing, bereavement, as well as mental and emotional well-being. Results: Preliminary findings of the research detail the factors that have supported or hindered successful ageing-in-place for people with ID. There were key similarities and differences for individuals residing in rural and metropolitan areas. Conclusions: As the life expectancy of people with ID continues to rise, there is an increasing need for support models that meet individual needs. Models need to be based upon information gained from inclusive research to ensure the complex needs are appropriately addressed in both rural and metropolitan localities

Supporting ageing-in-place for people with intellectual disability: A rural and metropolitan comparison

Dramatic improvements in life expectancy have led to a large cohort of people with an intellectual disability who are ageing. This emerging phenomenon presents a considerable challenge for carers and service providers as they have not previously had to manage a substantial number of individuals with the concurrent issues of ageing and intellectual disability. To date, there is limited comparative research across metropolitan and rural regions with respect to understanding issues faced by individuals and their carers in coping with health and well-being issues. The purpose of the current study was to explore key dimensions that enable or impede community-based independent ageing-in-place options, and specifically how they differ in metropolitan and rural regions. These dimensions include the understanding complex range of issues in healthy ageing and interplay of health, social and support factors from onset of ageing through to end-of-life care. This project utilised a mixed-methods study design aligned with principles of inclusive research. The preliminary findings of the research will be presented, with a focus upon the identification of factors that facilitates or hinder successful ageing in place for people with intellectual disabilities. The key similarities and differences for individuals residing in rural and metropolitan areas will be discussed

‘Near and Far': Social Distancing in Domiciled Characterisations of Homeless People

For domiciled individuals, homeless people provide a disturbing reminder that all is not right with the world. Reactions to seeing homeless people frequently encompass repulsion, discomfort, sympathy and sometimes futility. This paper considers domiciled constructions of homeless people drawn from interviews with 16 participants recruited in the central business district of a New Zealand city. It documents how, when trying to make sense of this complex social problem, domiciled people draw on shared characterisations of homeless people. The concept of ‘social distance’ is used to interrogate the shifting and sometimes incongruous reactions evident in participant accounts. ‘Social distancing’ is conceptualised as a dynamic communal practice existing in interactions between human beings and reflected in the ways that domiciled people talk about their experiences with homeless individuals.

Enablers and impediments to successful ageing-in-place

Objective: The life expectancy of both the mainstream population and of people with intellectual disabilities has increased significantly in the past 100 years. However, there are research gaps regarding the comparative experience of ageing with and without a lifelong intellectual disability, and differences that are evident between metropolitan and rural localities. Methods: The current study examined the main factors that supported or hindered successful ageing for both people with and without lifelong intellectual disability across both metropolitan and rural regions of NSW and Queensland. The project utilised a qualitative design in which 40 semi-structured interviews were undertaken with individuals ageing both with and without an intellectual disability and their carers. The sample was comprised of participants who were still living in their local community and those who had transitioned into a permanent residential aged care placement. The purpose of the interviews was to gauge what different factors were enablers or impediments to the successful ageing process. Key Findings: The paper will present the findings, with a focus upon the social, environmental, political and personal health factors that underpin successful ageing. The key similarities and any differences for individuals both with and without lifelong intellectual disabilities residing in rural and metropolitan areas will be discussed. Conclusions: There is an increasing need for support structures that meet the often complex individual needs of people ageing with an intellectual disability. These models need to be based upon information gained from inclusive research to ensure that the disparate needs of people with intellectual disabilities are met in both rural and metropolitan localities. Learnings from the mainstream ageing communities can further assist in the development of appropriate systems of support. The results have also informed ways in which bridges can be built between disability and aged care policies and practices

'Near and Far': Social distancing in domiciled characterisations of homeless people

For domiciled individuals, homeless people provide a disturbing reminder that all is not right with the world. Reactions to seeing homeless people frequently encompass repulsion, discomfort, sympathy and sometimes futility. This paper considers domiciled constructions of homeless people drawn from interviews with 16 participants recruited in the central business district of a New Zealand city. It documents how, when trying to make sense of this complex social problem, domiciled people draw on shared characterisations of homeless people. The concept of ‘social distance’ is used to interrogate the shifting and sometimes incongruous reactions evident in participant accounts. ‘Social distancing’ is conceptualised as a dynamic communal practice existing in interactions between human beings and reflected in the ways that domiciled people talk about their experiences with homeless individuals